alizesmom
Dreaming of Disney.
- Joined
- Jun 17, 2007
- Messages
- 1,462
There is no need to respond. In fact I invite others to politely add their frustrations.
My elderly dad is failing quickly. His days are up and down more than a roller coaster. My DH is an active alcoholic and getting worse. He thinks he can beat it all by himself. DD6 still is punching and kicking herself on a daily basis though she is improving. DS5 is still having daily seizures (as many as 7). Both kids have trachs and feeding tubes but nursing help is bring whittled away by insurance. Also both kids have decided to give up sleeping at night. I could go into all of the drama that goes along with all of this but it is too depressing.
Thanks for listening. It's all I needed. KWIM?
Now, if the mods approve, scream away. Karen
My elderly dad is failing quickly. His days are up and down more than a roller coaster. My DH is an active alcoholic and getting worse. He thinks he can beat it all by himself. DD6 still is punching and kicking herself on a daily basis though she is improving. DS5 is still having daily seizures (as many as 7). Both kids have trachs and feeding tubes but nursing help is bring whittled away by insurance. Also both kids have decided to give up sleeping at night. I could go into all of the drama that goes along with all of this but it is too depressing.
Thanks for listening. It's all I needed. KWIM?
Now, if the mods approve, scream away. Karen
(closest I could find to a scream)

. He just got done with this months steroid pulse. He screamed and cried for 7 days straight
. He barely slept. He got sent home from school 4 times for extreme headaches. The oncologist almost had him hospitalized for IV meds to help calm him down. He see's 4 different specialists. I've been fighting with the school about his IEP and I've been trying to prepare for his next one in a couple of weeks. My DS2 is a little terror
. He's been throwing fits (probably due to the fact that DS7 has been practically ruling the house this last week). He has epilepsy and we're always on seizure watch. Both my boys see specialists that are over an hour away and we have appointments almost 2 times a week. DS7's oncologist now wants him to only have his Port accessed once a month so now I have to take him to the lab for a draw out of his arm. I have to wrestle him to have it done (and he's heavy)! 
