My family and I need some prayers.....

[SpaceMan5]

It is my nature to be strong and supportive for others but I am at a point that I need to ask for a little help for me and my family..

My DD21 is enduring an on going battle with endometriosis. The constant pain she deals with is not fair for such a young lady to being dealing with on a daily basis. Another MRI is scheduled for this Friday and will likely result in another surgery for her in December. Medication options are nearly non-existence and the most viable option has such horrible side effects. One of her last doctors was such a jerk and told her to take a walk and that she would feel better after that. We are sadly seeing that endometriosis is such a mystery.

My DD24 is scheduled to have a brain tumor removed on 11/22 at the UW. This has been a roller coaster of a ride of doctor visits, blood tests, MRI's, second opinions and everything else for quite a while now. She/we have decided on the most aggressive option because it will yield the results. The other options could lead to permanent vision loss and motor functions. My wife and I will take a medical leave of absence from our jobs to take care of our girls. My DS18 is a trooper. He is really calm about it all and has said that there is nothing to worry about it until something actually happens.

I always like to say that if we throw all of our problems into a circle with other ppl problems we will realize that we don't have it so bad.. Being honest, I am having a really hard time believing that right now.. Feeling lots of emotions as we come closer to the day of surgery.

 

[AprilsZoo]

Good vibes & prayers.

I’m always reminded of the saying that God will never give you more than He knows you can handle. I’ve found that to be true— but boy does He like to push it sometimes.

 

[Rogue1677x]

I'm so sorry to hear that you and your family are dealing with this. It's a lot to carry.

I know personally how frustrating it has become with the medical system, doctors brushing off ailments, etc. I'm on my 7th neurologist just to manage migraines and I live near Boston, which is considered home to some of the best healthcare in the country. This neurologist is far outside of Boston because no one will even look at my records at the hospitals in the city.

Positive thoughts your way.

 

[bobbiwoz]

I will be praying that things will get better for you all.

 

[Snowysmom]

You and your family are dealing with alot right now. It is so hard to see our kids with health issues. Your DS has a good outlook on everything and seems so calming. Family is what gets us through tough situations. Praying for peace, for the doctors who will be taking care of your DDs, and better health for all.

 

[dznymemories]

Your family certainly is dealing with a lot right now. I'm sure you and your DW would give
anything if the problems were yours instead of your DDs. You will get through this together
as a family. Sending prayers for all of you and steady, knowledgeable hands for the medical
personnel who will be leading the way.

 

[WDWEPCOT]

Sending hugs & prayers ! I dealt with endometriosis from the time I started until I went to through menopause if you have any questions please feel free to reach out to me I had at least 10 surgeries and multiple rounds of medication to treat it there’s no cure but it can’t be treated unfortunately I found there a lot of bad doctors out there but also there’s a lot of good ones to
As the old saying goes you need to take it one step at a time and as much as on your plate maybe one breath at a time
Let all the little stuff slide focus on your girls and we’re all praying for a wonderful outcome!! it’s gonna happen!!! We’re here for you

 

[Giraffe_Zen]

It is my nature to be strong and supportive for others but I am at a point that I need to ask for a little help for me and my family..

My DD21 is enduring an on going battle with endometriosis. The constant pain she deals with is not fair for such a young lady to being dealing with on a daily basis. Another MRI is scheduled for this Friday and will likely result in another surgery for her in December. Medication options are nearly non-existence and the most viable option has such horrible side effects. One of her last doctors was such an a#$hole and told her to take a walk and that she would feel better after that. We are sadly seeing that endometriosis is such a mystery.

My DD24 is scheduled to have a brain tumor removed on 11/22 at the UW. This has been a roller coaster of a ride of doctor visits, blood tests, MRI's, second opinions and everything else for quite a while now. She/we have decided on the most aggressive option because it will yield the results. The other options could lead to permanent vision loss and motor functions. My wife and I will take a medical leave of absence from our jobs to take care of our girls. My DS18 is a trooper. He is really calm about it all and has said that there is nothing to worry about it until something actually happens.

I always like to say that if we throw all of our problems into a circle with other ppl problems we will realize that we don't have it so bad.. Being honest, I am having a really f'ing hard time believing that right now.. Feeling lots of emotions as we come closer to the day of surgery.

As someone who has suffered with the hell on earth that is advanced endometriosis for 30 years now, as well as a empathetic good natured person, I'm putting all my thoughts and prayers behind you and your family.

If you ever need to talk to someone about the endo part of things, I am here.. feel free to send me a PM.
Some so called "endo specialists" are the worst, no compassion whatsoever.

I wish the best for you all and pray the surgery goes well.

 

[Mamabun]

So much to deal with prayers that things turn around for you all quickly.

 

[SpaceMan5]

Thank you all for your support, prayers, sharing your personal struggles, stories and the willingness to speak with my daughter.

Lots of really good ppl here on the boards. Much love all

 

[flyingdumbo127]

I am so sorry SpaceMan! Big hug and many prayers. I am still going through daily chronic foot pain which sure is taking a toll on me. I pray to keep my own strong faith and positive outlook. As a human of course it takes a toll! I do feel stuck at times. I will send you mail soon.

 

[SpaceMan5]

I am so sorry SpaceMan! Big hug and many prayers. I am still going through daily chronic foot pain which sure is taking a toll on me. I pray to keep my own strong faith and positive outlook. As a human of course it takes a toll! I do feel stuck at times. I will send you mail soon.

Thank you so much.

I have been following your thread. So sorry you are dealing with the chronic pain. It is so frustrating for those that have to deal with it on a day to day basis. Just doesn't seem fair some days.

As @dznymemories stated, I would give anything to trade places with my daughters so they wouldn't have to endure the pain and surgeries.

I am also thankful for those that are willing to talk to a stranger about their experiences

 

[AnnaS]

Sending prayers and hugs

 

[flyingdumbo127]

Thajk you SpaceMan so very much. I did PM you.

 

[Dan Murphy]

It is my nature to be strong and supportive for others but I am at a point that I need to ask for a little help for me and my family..

My DD21 is enduring an on going battle with endometriosis. The constant pain she deals with is not fair for such a young lady to being dealing with on a daily basis. Another MRI is scheduled for this Friday and will likely result in another surgery for her in December. Medication options are nearly non-existence and the most viable option has such horrible side effects. One of her last doctors was such an a#$hole and told her to take a walk and that she would feel better after that. We are sadly seeing that endometriosis is such a mystery.

My DD24 is scheduled to have a brain tumor removed on 11/22 at the UW. This has been a roller coaster of a ride of doctor visits, blood tests, MRI's, second opinions and everything else for quite a while now. She/we have decided on the most aggressive option because it will yield the results. The other options could lead to permanent vision loss and motor functions. My wife and I will take a medical leave of absence from our jobs to take care of our girls. My DS18 is a trooper. He is really calm about it all and has said that there is nothing to worry about it until something actually happens.

I always like to say that if we throw all of our problems into a circle with other ppl problems we will realize that we don't have it so bad.. Being honest, I am having a really f'ing hard time believing that right now.. Feeling lots of emotions as we come closer to the day of surgery.

Very sorry to read of the problems your daughters are having, @SpaceMan5. That's a lot on your plate, on theirs. I like your son's thoughts. But still, a lot to deal with. Keeping you all in my prayers, along with others here.

 

[SpaceMan5]

Very sorry to read of the problems your daughters are having, @SpaceMan5. That's a lot on your plate, on theirs. I like your son's thoughts. But still, a lot to deal with. Keeping you all in my prayers, along with others here.

I appreciate it Dan!

As I have ventured into other threads here on the boards I have truly seen a deeper, more spiritual side of fellow DLers. It is both amazing and humbling at the same time.

Update - my DD21 is going in for surgery on 12/7 for her endometriosis.

 

[flyingdumbo127]

extra for your daughter and of course a hug to you, SpaceMan!

 

[Scootin'By]

Sending love your way!

 

[flyingdumbo127]

Love from me, too and extra prayers!

 

[SpaceMan5]

This is my first time being on the boards since we headed to the UW on Tuesday morning for my DD24 brain surgery.

It was successful!! Thank you for all of your prayers and support!! I can't express that enough!

It will be a long road to a full recovery and hopefully she will be able to come home on Sunday. I want to give a shout out to the UW ICU nurses. The heartfelt care, concern, patience with a stressed out Mom and Dad was way beyond our expectations.