nyveggie
Earning My Ears
- Joined
- Mar 5, 2009
- Messages
- 20
We have three sons:
Bradley 6-01-96
Steven 12-22-98
Matthew 11-06-04
Our youngest son Matthew has been diagnosed with Mitochondrial Disease Complex I & III along with several other medical conditions. He endured over 2 years of hospital visits and intense testing before we finally got a diagnosis in April of 2008.
He is very small for his age(he's 4) and is the size of a typical 18 month old child. He only weighs 22 pounds despite getting over 1200 calories a day. Because of his size and weak muscles, he is easily knocked over by other children. He prefers quiet play.
Matthew's wish was approved in the fall of 2008. He wished for two things: To have the biggest lollipop in the world and to eat with the princesses at Disney World. We were told that Matthew will be dressed as a prince when he eats with the princesses. He is so excited.
We will be leaving for our trip on March 30th-April 5th.
Bradley 6-01-96
Steven 12-22-98
Matthew 11-06-04
Our youngest son Matthew has been diagnosed with Mitochondrial Disease Complex I & III along with several other medical conditions. He endured over 2 years of hospital visits and intense testing before we finally got a diagnosis in April of 2008.
He is very small for his age(he's 4) and is the size of a typical 18 month old child. He only weighs 22 pounds despite getting over 1200 calories a day. Because of his size and weak muscles, he is easily knocked over by other children. He prefers quiet play.
Matthew's wish was approved in the fall of 2008. He wished for two things: To have the biggest lollipop in the world and to eat with the princesses at Disney World. We were told that Matthew will be dressed as a prince when he eats with the princesses. He is so excited.
We will be leaving for our trip on March 30th-April 5th.