Make a Wish (and other organizations) - Wish Trippers UNITE! Volume SIX!

Discussion in 'disABILITIES!' started by maroo, Mar 23, 2013.

  1. mkb3

    mkb3 Mouseketeer

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    Friday we got the news we are going the week after Thanksgiving and then on Wednesday we got the news my WK is cancer free!!!!! Fantastic week, cannot wait to hear what MAW has in store for a reveal.
     
  2. disneyfan123

    disneyfan123 <font color=magenta>He got my hubbies steak once<b

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    Our daughter just got told she is being granted a wish and she is choosing a week in Aulani in early 2020!
     
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  4. tinkslite

    tinkslite Mouseketeer

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    So, not everyone who knows me knows that I have a somewhat odd hobby. It isn't odd that I make quilts, that is something many women do. It is odd that I have turned it into my own form of charitable giving.
    I make photo quilts as gifts for family members, and friends. Using photos from childhood for graduation quilts, or wedding photos as a wedding gift quilt from our family.
    But in the past couple of years, I've been honored a few times to have a Make a Wish family (family of a Wish Child) share their precious photos from a granted wish, and turn those photos into a special quilt that an ill child can look at to remember the wish that allowed them to reclaim a little bit of their lost childhood. A memory quilt that can go to hospital with them and cover them with warmth and the memory of a happy time when they just got to be a kid.
    I love every single quilt I make.
    But these precious quilts are my favorites. I am truly honored and humbled that these families would share these photos with me, and allow me to be a small part of the magic of a wish.
    If you are a parent in a Wish family, and willing to share the images of your wish magic with me, I would be honored to create a special quilt for your Wish Kid. PM me for info on Wish quilts. No charge!! This is not a sales pitch!! This is a way to stretch out the magic of the Wish.
     
  5. TheRustyScupper

    TheRustyScupper Do all the good you can, to all you can.

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    HOT DARN !!!!!!!
    I am so happy for her (and, of course her accompanying family members)!
    Sometimes when I hear such stories, I sit here and have tears.

    God Bless, and have a truly happy time!
     
  6. starearedkid

    starearedkid Mouseketeer

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    So, unfortunately our daughter relapsed last year. She had her first make a wish trip to Disney when she was 3.5; (she is 7 now). Our social worker told us that she would qualify for a second wish through the Marty Lyons Foundation. Again, she wants to do Disney. However, since it is a second wish--she wouldn't stay at the GKTW or get the genie pass. It would also just be Disney. Has anyone used the Marty Lyons foundation for a second wish to Disney-what can we expect?
     
  7. tink15823

    tink15823 DIS Veteran

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    Our daughter will be getting her dream trip from Sunshine Foundation. We will not be staying at the Dream Village . She will get $2000. toward her trip and we will cover the rest it’s so generous . We are so grateful for the opportunities to see her excited this last year has been harder than normal. In 2011 Autumn had a cheerleading accident in a pyramid and the coaches panicked and moved her . Autum has a short in her spinal cord that causes the brain to swell and seizures as well as hemiplegic migraine and Reflex Neurovascular Dystrophyand , late stage Lymes. So her conditions are chronic but this year it’s been on relapse after the other . I sat today and cried as I read through the boards you guys get it . For us she could be fine on moment and not able to speak , see and pralized on her left side she may not know us .

    For all the families living on the roller coaster . May you have an amazing time full of memories and kindness. I’m so excited for our trip . Does anyone know if they have a person that works with Dream trips granted through Sunshine foundation?
     
  8. TheRustyScupper

    TheRustyScupper Do all the good you can, to all you can.

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    1) Sunshine Foundation is a nice "camp". The are small, but VERY CARING.
    2) Our Kiwanis Key Club (high school branch of Kiwanis) volunteers there frequently.
    3) You will be pleased with their attention to people with health issues.
    4) Have fun and enjoy the trip . . . all of you!

    NOTE: Sunshine Foundation takes kids who have severe and chronic health problems, where as GKTW takes kids sponsored by Make-A-Wish and are *usually* terminal. A big difference, but they fill a very critical need, and they do it very well. We are highly proud of this organization.
     
  9. tink15823

    tink15823 DIS Veteran

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    Please let them know how grateful we and so many others are for so many to take so much time and give . Truly some days it’s what keeps so many family going . This last week alone we had a minimum of 3 doctors appointments per day .
     
  10. SirDuff

    SirDuff DIS Veteran

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    Are you sure on that? Definitely not true based on the sample on this thread (admittedly, it could be biased). Many do have diseases that could/may be fatal, but it is definitely not true that most children have received a terminal diagnosis (I have a personal issue with referring to a person as "terminal", but admit that that is a person thing).
     
  11. tink15823

    tink15823 DIS Veteran

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    Please accept my apology my intentions were to not offend anyone . I should have said more severe that would have been a better word . As I had posted in a previous post it was a very long couple of months wth hospital ,therapy appointment and doctors. Autumn had been paralyzed and in rigger for day which means I had to care for my child as if they were a stroke patient.
     
  12. SirDuff

    SirDuff DIS Veteran

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    That wasn't directed at you (I've rewritten that a few times and cannot make it not sound snarky - please know it isn't meant that way). Unless, I missed it, you didn't actually ever use the word "terminal". It was directed at RustyScupper and his claim that children at GKTW have *usually* been diagnosed with a terminal illness.

    I hope that you and your family have an amazing experience!
     
  13. tink15823

    tink15823 DIS Veteran

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    We have a friend that had a child with leukemia when she was 2 and they got their wish poor mom did not realize they gave wish’s to children that were non terminally ill . The doctor read the fear on her face and explained that it wasn’t as it sounded . I’m happy to say 24 years later that beautiful little girl took her babies on their first Disney trip September 2018 . So it’s definitely for children if many illness and parents that face way to much heartache and worries .
     
  14. redberyl

    redberyl Mouseketeer

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    our MAW chapter grants wishes to kids with conditions that are considered "life threatening." So not necessarily terminal illnesses, but with the potential to be.
     
  15. tink15823

    tink15823 DIS Veteran

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    Can someone tell me if our daughter is eligible for a genie pass if her trip is through the Sunshine foundation?
     
  16. lanejudy

    lanejudy Moderator Moderator

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    I believe the Genie pass is only given out through GKTW.

    Enjoy your Wish Trip!
     
  17. Minnie Mouse2789

    Minnie Mouse2789 Earning My Ears

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