Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FOUR!

[mom2pixies]

Austin is doing really well post kidney transplant! We are going home tomorrow (hopefully)! We are now one step closer to his Disney wish! We are hoping to go not this fall but the following.

So glad to hear this news! Go Austin!

 

[mom2pixies]

You can go to www.disbiggive.com and register. We would love to have you!

Thank you! I would love to be part of this amazing experience!

 

[mom2pixies]

As promised, photos are finally up for today's BIG GIVE-ATHON! Check them out here and here.

Thank you so much BIG GIVERS! You are putting such smiles on my girls' faces!

 

[Happy Dreams1]

My dad just bought me a pretty cool Snow White shirt for my MAW trip! So excited! Guess where? TJ Maxx!

 

[brookerene]

Austin is doing really well post kidney transplant! We are going home tomorrow (hopefully)! We are now one step closer to his Disney wish! We are hoping to go not this fall but the following.

Yay that is awesome....! I hope all continues to go well!!!!!!

 

[katieb4]

Austin is doing really well post kidney transplant! We are going home tomorrow (hopefully)! We are now one step closer to his Disney wish! We are hoping to go not this fall but the following.

fantastic!!!!

 

[danut]

While we were away last week, we received 4 new BIG GIVES--and another 2 today! Come and check out some of the ones we've opened to date. We're just waiting for Avie to wake up from her nap to get to the new ones....

So exciting!!

how awesome!

Austin is doing really well post kidney transplant! We are going home tomorrow (hopefully)! We are now one step closer to his Disney wish! We are hoping to go not this fall but the following.

Happy to hear that he is doing well!

As promised, photos are finally up for today's BIG GIVE-ATHON! Check them out here and here.

Thank you so much BIG GIVERS! You are putting such smiles on my girls' faces!

I love the pics. What wonderful gift and wonderful people!

My dad just bought me a pretty cool Snow White shirt for my MAW trip! So excited! Guess where? TJ Maxx!

That is great! I am going to have to check out TJ Maxx around here!

 

[Happy Dreams1]

Today I visited my cardiologist. Echo shows no change. But he did send me home with a 24-hour Holter Monitor.

 

[angeque143]

Hello all. Sorry I have been out of touch. We are so busy with getting ready for college ( ME and Carissa) I broke down and decided to continue my education and move on from a Practical Nurse to an RN! Eva is doing well! Planning away continues. We have a family reunion on Saturday and AJ has Lyme disease!! SO..... you can say that there is NEVER a dull moment!!

 

[Happy Dreams1]

The wires(leads) and stuff:

 

[katieb4]

Thats just a lot of wires lady! I hope you are still able to sleep!


Hoping Austin is also home sleeping in his own bed tonight!


Kinda quiet around here this week really! We've been busy at the doctor this week for all of us BUT our cancer child go figure. My 6 year old has sinus isses we are trying some new meds, otherwise we might need to look into some more invasive things. Then today my son got pink eye...in both eyes. Super. Icky for him and busy for Mom trying to keep him quarantined adn away from the rest of us! Lysol, my friend....ha! I'm up next as I'm having swallowing issues that can no longer be ignored. Just always something huh?

Its helpful and a little AHHHH to think that in two months, I get to introduce Disney World to my kids for the first time!

Hope everyone is hanging in there!!

 

[Happy Dreams1]

Thats just a lot of wires lady! I hope you are still able to sleep!


Hoping Austin is also home sleeping in his own bed tonight!


Kinda quiet around here this week really! We've been busy at the doctor this week for all of us BUT our cancer child go figure. My 6 year old has sinus isses we are trying some new meds, otherwise we might need to look into some more invasive things. Then today my son got pink eye...in both eyes. Super. Icky for him and busy for Mom trying to keep him quarantined adn away from the rest of us! Lysol, my friend....ha! I'm up next as I'm having swallowing issues that can no longer be ignored. Just always something huh?

Its helpful and a little AHHHH to think that in two months, I get to introduce Disney World to my kids for the first time!

Hope everyone is hanging in there!!

Sorry for all the health issues your family's passing through right now but so happy Gabbie is okay despite everything else. Oh, pink eye's the worst!

What kind of swallowing issues? Seeing an ENT?

 

[Menfusse]

Trying to keep up with everyone but things are crazy busy. I read, but am not able to respond. Just know that everyone is in my thoughts and I enjoy following along!

We are meeting with some of our DF volunteers today to pick up our expense check and paperwork for our rental (we are driving). We leave NEXT WEEK!!!!!!!

We didn't have much time to plan, because we wanted to go soon to avoid the illness issues my little squirt starts dealing with come Fall. She's had a healthy summer and we want to take advantage of it! But, we're just going to sit back and enjoy the ride. We are so excited!

 

[mom2pixies]

Big Give fairies visited us again! Swing on by to see what they brought!

 

[mom2pixies]

Hello all. Sorry I have been out of touch. We are so busy with getting ready for college ( ME and Carissa) I broke down and decided to continue my education and move on from a Practical Nurse to an RN! Eva is doing well! Planning away continues. We have a family reunion on Saturday and AJ has Lyme disease!! SO..... you can say that there is NEVER a dull moment!!

Good for you, Angie! That's amazing. Now you and Carissa can have study dates together! LOL!!

Poor AJ--I hope he recovers soon. Disney is only a short hop, skip and a jump away!

Are Eva and AJ getting super excited? I know we all are!!

 

[mom2pixies]

The wires(leads) and stuff:

Yikes! That looks uncomfortable! Hope you were able to rest with it on.

 

[mom2pixies]

Trying to keep up with everyone but things are crazy busy. I read, but am not able to respond. Just know that everyone is in my thoughts and I enjoy following along!

We are meeting with some of our DF volunteers today to pick up our expense check and paperwork for our rental (we are driving). We leave NEXT WEEK!!!!!!!

We didn't have much time to plan, because we wanted to go soon to avoid the illness issues my little squirt starts dealing with come Fall. She's had a healthy summer and we want to take advantage of it! But, we're just going to sit back and enjoy the ride. We are so excited!

Ack! So soon! Have an amazing trip....You are in our thoughts, too!

 

[Happy Dreams1]

something happened, my post didn't appear...gonna post below.

 

[Happy Dreams1]

Well, we're back from the cardiologist and the results are more on the negative side. The good news: Stress test was negative.
The bad news: Holter Monitoring was positive for frequent Premature Ventricular Contractions. Since the echo came back clear, now he wants an MRI of my heart to see is there's a problem with the muscle itself. In his working diagnosis, it says to rule out Arrhythmogenic Right Ventricular Dysplasia. I really don't think I have this but we're doing the MRI so he can give me the all clear to go on my trip next next week!

THE AWESOME NEWS!: MAW called and they have told my mom that everything's confirmed and that we are DEFINITELY going to Disney World in 11 days.

 

[Happy Dreams1]

Okay, I'm really scared for the MRI because it's with contrast. I've always procedures done with butterfly needles expect for one time. I HATE adult-sized needles.