I know nothing will happen, I have a habit of imagining the worst possible scenario. New experiences do that. It is funny too, if I was traveling alone, I wouldn't worry about myself but because my DD is with me, I worry about Both our safety. Funny how kids change the whole scenario.
I am SOOOOO excited! It is getting so close! Just over 2 weeks! We are just doing the cruise. At some point I hope we all have the chance to go to Disney. When the little one is older. My "dream" is for us all to go on the 7 day Land/Sea. That would be Great! My dad's co. wants to make a donation for us through the make a wish foundation. The "rules" are she has to be able to make the wish. So, I hope in a couple years we can take them up on the offer and at least do Disney. At this point, I don't know how I would schedule it between all her treatments etc. Besides, I have tio give her a shot every other day and I HATE doing it on the run. I hate doing it, but I like our routine at home better than doing it in hotel rooms etc. It was hard for me to get away at all. I am the one who takes care of her 95% of the time. My DH is off for the holiday so the 4th worked Really well for us. She can stay with him. He is capable of caring for her of course but It is hard to leave her for days without Mom! I have never been away from her since she got sick and only once before. I feel guilty. She is really attached to me because nobody else ever keeps her. Her sister goes and does and stays with family and she is always with me. I can't even walk out of the room without her crying. Her development is delayed and she is still babyish. She will be 3 in September and her speech is unintelligable to everyone but me. We have speech therapy & developmental therapy weekly. Physical therapy and IVIG treatments monthly. Plus I think we are going to start Chemo again next month. And she is the one staying home again! Poor little thing. How I would ever get her on a plane though, I don't know. I think all the other passenger's would suffer. Her being around all the people would be bad too because her immune system is suppressed from the steroids. She had her last immunizations at 12months and will never have the rest of them. We are opting to home-school her because of the risk of infection, especially in the preschool and elementary years. So, guilty or not, she is not going on the cruise with us. I will have to bring her back something really cool! Well, The speech therapist is going to be here in 1/2 hour, better clean my house. YIKES!