Im needing to vent ...** sigh ** ignore me

[itsdisneytime]

I am so frustrated with my new normal ... things are just going wrong with me left and right ... and THE LORD KNOWS that I do not want to sit around and woes me .. but I am sooo tired of being tired and sooo tired of hurting .... its sooo double edged for me ... its like I curse the day I found out I had thyroid cancer and had to have surgery to remove it but in the same aspect I am grateful to be alive .... I have had to become humble and accept a new normal that many of us do ... and most of the folks Ive met who are dealing with medical ailments have so much more to face than I do and yet they smile and they go on their way with hope and a prayer. .. ... I feel like the harder i try to smile, the more things i find that are wrong with me. I keep trying to focus on my trip in October and today I asked my oncologist if he would write a note for me for a GAC card for my upcoming trip since I have issues that a few of you are aware of when I posted here previously ... and ... the doctor told me to tell him what to say exactly...
for some reason, that made me uncomfortable as I do not know what to tell him .. I wish he didn't have to say anything about any of the number of things that are my new normal but unfortunately it has to be done or i will have a miserable trip trying to hide the sick mommy I have become to my 9 year old daughter. I do not want to say in the open air what I think I will have him say because I am very much aware of folks who abuse the sytem and what a sad world we have come to live in that someone would even THINK OF playing sick .... to top it off, because of my excessive weight gain from all my treatments and my medications, I have torn a tendon in my foot and i am in agonozing pain which is making me feel even more sorry for myself. All I want is to take my daughter and have a good time -- the way things USED TO BE before I got sick .... before the medications every few hours which make me want to throw up and or have diarreah scares ... im just soooo tired of this frame of mind and I really hope Disney comes to the rescue and lets me remember the time of when I felt good and life was simple.

 

[livndisney]

I am so frustrated with my new normal ... things are just going wrong with me left and right ... and THE LORD KNOWS that I do not want to sit around and woes me .. but I am sooo tired of being tired and sooo tired of hurting .... its sooo double edged for me ... its like I curse the day I found out I had thyroid cancer and had to have surgery to remove it but in the same aspect I am grateful to be alive .... I have had to become humble and accept a new normal that many of us do ... and most of the folks Ive met who are dealing with medical ailments have so much more to face than I do and yet they smile and they go on their way with hope and a prayer. .. ... I feel like the harder i try to smile, the more things i find that are wrong with me. I keep trying to focus on my trip in October and today I asked my oncologist if he would write a note for me for a GAC card for my upcoming trip since I have issues that a few of you are aware of when I posted here previously ... and ... the doctor told me to tell him what to say exactly...
for some reason, that made me uncomfortable as I do not know what to tell him .. I wish he didn't have to say anything about any of the number of things that are my new normal but unfortunately it has to be done or i will have a miserable trip trying to hide the sick mommy I have become to my 9 year old daughter. I do not want to say in the open air what I think I will have him say because I am very much aware of folks who abuse the sytem and what a sad world we have come to live in that someone would even THINK OF playing sick .... to top it off, because of my excessive weight gain from all my treatments and my medications, I have torn a tendon in my foot and i am in agonozing pain which is making me feel even more sorry for myself. All I want is to take my daughter and have a good time -- the way things USED TO BE before I got sick .... before the medications every few hours which make me want to throw up and or have diarreah scares ... im just soooo tired of this frame of mind and I really hope Disney comes to the rescue and lets me remember the time of when I felt good and life was simple.

First of all

Secondly, you don't need a note from the Doctor. There are not "magical words" to obtain a GAC. You need to tell them what your needs are.

Third, I hope you and your DD have a wonderful trip.

 

[scooby9932]

First, to you. I know where you're coming from. I believe it's difficult for all of us to accept our "new normal."

Second, my best advice? - Just know that you & your situation are unique to you. Everyone deals with their challenges in the best way we can. Don't compare yourself & your journey to others. There is no right or wrong way to feel about it. Just feel what you feel. If that includes feeling down and miserable, let yourself feel that. Then try again later. I have found the key to be honest with myself about what's lost. And then I try to figure out what's been gained. I know, for me, it's an uphill battle each and every day. But I always try to see if there is a hidden blessing in the challenges I'm facing. If I find one, I try to concentrate on that instead. Some days I do better than others. I bet most others will tell you the same.

Keep on dreaming of Disney. It's my happy place - it's the best drug the doctor never prescribed.

Enjoy your daughter and your trip to Disney!

 

[bouncycat]

Another big for you too. I'm not dealing with cancer, at the moment, but I too feel your pain. I have a type of Muscular Dystrophy, and it's getting worse, and as it does, I'm having a hard time dealing with it. Disney is my happy place as another poster mentioned, and I go all the time. I do have to take narcotic pain pills while there, and it sucks. Sometimes I even tour DW on wheels But, there's nothing we can do about our ailments, and they say God doesn't give you more than you can handle....but sometimes I just wanna ask why me!!??? There's a reason for everything, maybe your reason is to slow down and tour the parks a little slower. When we do that with me, we see LOTS more than we would running from ride to ride. I've seen snakes, bunnies, LOTS of ducks, even baby ducks, deer, even an alligator or 2!! There's times I just sit and watch the animals, or the people as I'm resting while the family is on a ride. Another good tip, is to know your own limits, and when you get close....say so. I didn't in May on a trip with family that was on their first trip, and I paid for it dearly! Anyways, have fun, do what is best for YOU, and enjoy!! Most of all, do not let other people ruin YOUR magic!! They don't know you, and will probably never see you again.

 

[jmartinez1895]

You don;t need a note and the CM's will not look at it and so don't add stress worrying about what to tell him to write. Just go to guest services and explain to them what your limitations are and they will be able to help you.

 

[anne thomas]

You just keep on plannig and think of how much fun your are going to have!! I believe no one can make me feel bad but me and I refuse to feel bad. I try to be happy atleast 50% or more of the time, which means I ignore alot of people You sound like a wonderful person who worries to much so.....stop it..... and have a fantastic time and make them lemons into lemonade.

 

[Dan1]

Anne is spot on re "You just keep on plannig and think of how much fun your are going to have!! "

To me, that's what makes any vacation fun is the planning.

And if there is a place were special needs folks are made to feel welcome it is DL or WDW in my opinion.

That's why even with my special needs daughter now 24 and the rest of the family having zero interest at all in Disney I have started taking her there on my own. Yes, it was incredibly scary the first time it was just her and I; yet, we (her and I) are going back now for 2 weeks next spring!

Keep the faith!
Dan