I don't know if I can handle this, DS sick again...

[Desnik]

As many of you know my little guy has had a tough life in his short time here. Well, I had to take DD to the Dr. today and I had to have DS checked b/c he was sick a few weeks ago. I was worried alittle b/c I've noticed he doesn't seem to be gaining weight. Anyway, sure enough he hasn't gained anything since his last weight check visit on 3-18. I have noticed him after he eats spiting up but then he swallows it back down. He sometimes refuses drinking. He had reflux as a baby but we thought he outgrew it. Well, he didn't he has to go back on Zantac and be monitored weekly again. The Dr. is afraid he will refuse eating if he associates it with the pain/burning of the reflux. Him not gaining weight is not good at all. The Dr. said she wants to first try the Zantac and see if that helps. She doesn't want me to get scared, but there is again a possibiliy he may need to be hospitalized if the Zantac doesn't help. I'm a wreck. I'm trying not to show it b/c I don't want to get my husband and DD the same way. I don't know how I can handle seeing him have to go through tests and the hospital again. I'm trying really hard to positive but it's so hard. Please keep my son in your prayers that the medicine helps and he starts gaining weight.

 

[wendyl]

I'm sorry to hear about this!!

How old is the little guy??

 

[shatzjsl]

A sick child that you can't help is one of the worst things that can happen to a mother. I hope that he gets better soon without hospitalization.

 

[Desnik]

He's 14 months now. He has been in 3 different hospitals. Has had 3 sonograms, an upper GI, numerous blood tests, IV, special formulas, weekly Dr. visits. This all started when he was 2 months old. He was born at almost 35 weeks and had complications at birth, but seemed OK. He had a slight case of Pyloric Stenosis, but it wasn't operable. They labled him "failure to thrive". He has been seen by nutritionists, pediactric surgeon, gastroenterologist. I am just at a loss....

 

[lil mermaid]

Oh sweetie, I am sorry. I can't imagine how hard it is for you to watch your little guy having such a tough time.

I will keep you and your family in my prayers. I hope he starts to gain weight soon!

 

[binny]

:hugs:
So sorry. My prayers are with you all!

 

[luvwinnie]

http://www.thnt.com/thnt/story/0,21282,626150,00.html

This is an article about my friend's daughter and her disease. It took them a long time to diagnose...might be good to just mention it??? GOOD LUCK!

 

[dianeschlicht]

Has he been checked for enzyme production and utilization? I had a friend with an adopted child who had this, and early detection is critical to a cure. Failure to get early enough treatment can lead to much worse problems down the road. If you want details, PM me.

 

[piglet too]

's I am sorry that you and he are going through this. I hope that the Zantac does the trick and he gets better real soon!

 

[helenabear]

So sorry you are going through this... I pray the meds help

 

[bentley483]

Prayers & PD on the way for your little one!

 

[C.Ann]

I went through the same thing when my youngest DD was little.. She basically spent the first two years of her life in the hospital due to failure to thrive.. At one point they acutally diagnosed her with cystic fibrosis, but THANK GOD they were wrong!

After hundreds of tests and hospitalization after hospitalization they accidentally discovered that she was allergic to the food coloring in her baby vitamins! Once they were stopped, she was fine.. But can you imagine going through all of that for something that was so simple??

I'll pray for your little boy and for you.. It's tough - but you're a Mom and you'll get through it because you love that little guy so much..

Hugs,
C.Ann

 

[Dan Murphy]

Sorry to hear little Robert is still having a seemingly tough time, Nikki. He sure is in my prayers, from long back, tough times he had then. Do hope the Zantac works and he is able to move on and add weight. Poor little guy, and mom and family too. BTW, did you ever hear how Jeremy fared? My best for him too. Sad.

Dan

 

[JerseyJanice]

This sounds like a mother's worst nightmare.

Prayers said for your little guy and you--may you find the strength to deal with whatever comes. {hug}

 

[Jillpie]

I just said a huge prayer for your precious son and for you too. Please let us know how everything goes, ok?

 

[Pop Daddy]

Im praying for youe son Desnik and you also

 

[slo]

I understand what you are going through. I have been through a lot of illnesses with both of my DD's and it is very stressful, emotionally draining, and exhausting.

May God be with you and your family!!!

 

[Serena]

 

[Liz]

I really understand how you feel. Sending prayers for your little one that he will be able to gain weight and all will be well soon.

 

[Desnik]

The love, support and compassion here is incredible! I truely appreciate you all so much! Thank you from the bottom of my heart for all your kind words.

DS has had his blood tested for everything the Dr. could imagine. They tested for absorbtion problems and such.

Dan, I never did hear about what happened to little Jeremy. It brings me to tears eveytime I think of him

DS also isn't walking yet, crawling but, not showing any signs of even wanting to attempt to walk. The Dr. said if he's not walking by 15 months, then he will need to be tested to make sure he will develop properly.

After loosing a baby before I had my DS I thought I couldn't handle anything else. I prayed so hard to just get through the pregnancy with DS. I never even thought he would/could have all these problems. The worst part is just not knowing what's wrong. Give me a diagnosis, I can handle that. I like to know what I'm dealing with so we can get him the right meds and fix this. "Failure to thrive" are the worst words to hear. It's like there's just no answer!

Thanks for listening.