Ok, so I had requested my daughter's pediatric rheumatologist write a brief letter explaining her diagnosis so that we would not be given any hassle in getting a GAC for "stroller as wheelchair", seeing as her disability is not visible to the casual observer. Yes, have been told on this forum I do not need a letter, and that they won't even look at it. I get it. But it gives me a sense of security, so I wanted it.
Well when I asked him, I was told no problem, he writes letter routinely and has a "standard letter". So today I got the letter in the mail (he lives 90 mins. from us), and at the end of the letter, he asks for them to please give her a "VIP Pass". I have never heard of this mentioned anywhere, and therefore I realize it likely doesn't exist. Does anyone know differently, and if so, what the heck is it?
All I wanted was to use her stroller as a wheelchair....
Well when I asked him, I was told no problem, he writes letter routinely and has a "standard letter". So today I got the letter in the mail (he lives 90 mins. from us), and at the end of the letter, he asks for them to please give her a "VIP Pass". I have never heard of this mentioned anywhere, and therefore I realize it likely doesn't exist. Does anyone know differently, and if so, what the heck is it?
All I wanted was to use her stroller as a wheelchair....




) but it will also be some amazing gift for your daughter. As a mom you can be a huge support for her to learn to cope beyond mere surviving (which is what many people will find themselves doing when faced with such a thing, including loved ones like parents etc) and griefing but unto being a girl that has been able to deal with things in such a way it does not rule her but instead she rules her life which unfortunately also includes dealing with her diagnosis.
- such an amazing roll model for her in this, such a support. Both you and she deserve that you get some support in dealing with this and starting to feel better. I know how difficult it can be to even think, let alone truely believe, but the time really can come that all of you can't just deal with this but have a very positive outlook for her and her honestly enjoying a full life that she finds more than worth living with quality of life and love for life. Getting such news is a griefing process. Letting go of al those dreams and hopes you had, watching them crumble and come undone before your eyes. Being greated by the unknown, uncertain, unpredictable. Just like with death, for some it's easier to deal with than others. You're having a too rough a time. Give yourself the gift of support in griefing for this in a way that you need but that also allows you to again come out of that dark place one step at a time. And I can promis you; you will need to built new dreams and hopes, other ones. But not all other ones are less. And you might very well find in time that some hopes and dreams you now see crumbling aren't that unrealistic.