Yvet
<marquee behavior=alternate><font color=blue>♫ Sh
- Joined
- Apr 29, 2006
- Messages
- 2,045
WARNING:YET ANOTHER LONG STORY.
As the title says; i have good news and i have bad news....
Let me start with the good news because it's realy good news.
I have physiotherapy and that works great!!!
I can walk again and i'm almost walking 100% normal again.
The only thing that's still very difficult is walking stairs but it's getting better and better each day and it's looking very very good.
It goes better then the physiotherapist expected so that says enough!!!
I'm soooo happy that this is going so well because i was a bit afraid that it would ruin our trip (nor ruin up untill the point that i would cry myself to sleep and complain to Disney about it).
But it looks very very good and i hope that it's going to improve soo much that i can even dance along with the Thrill the Wonder (but we will see).
Then the bad news and it's bad bad news.....
I had an appointment with my eye doctor (this probably says enough).
I will start explaining what happened the last few years with my eyes so this story does make more sence.
I'm (very) myopic with my right eye -19 and my left eye -11.
In 2001 i had contactlenses implanted in both my eyes.
In 2007 my eye doctor discovered that my endothelial cells where dropping (endothelial cells are a layer in the cornea that provides the fluent regulation for the cornea).
It dropped in both eyes and after a while the left side stopped dropping and stayed in the upper 1700 the right eye kept dropping and when it was in the upper 1100 the doctor decided that it was necessary to get a surgery.
When the endothelial cells gets under 800 it can't properly regulate the fluent for the cornea anymore and that would mean that eventually the cornea will get blurred. When this happens it means that the cornea needs to be replaced with a cornea tranplantation.
To prevent this from happening i got a preventative eye operation, they removed my implanted lens and then removed my own eye lens and put there an implanted lens (so they removed my implanted lens and then performed a cataract surgery).
Then it all went wrong, normally the day after the operation you can see, i couldn't.
After this surgery i have an eye sight of 20% and i have black spots in my eyes, i have had cystes in my retina, that's gone now i have fluent in my retina.
In september 2009 they finally did everything they could do and i was told to come back after a year for my annual appointment.
And the time was there for my annual appointment.
When i was at the doctors office the did again a lot of tests the normal ones and an endothelial cell counting and a scan of my retina.
Everything looked fine they couldn't give the test results of the endothelial cell counting because that takes a while (parts do happen by hand) so i could come back next year.
The endothelial cell counting results i would receive in a phone call.
And they called.
It's wrong, it's way wrong.....
The right eye was 1169 and has dropped to 982 and the left eye was 1764 and that one has dropped to 825
I got an emergancy appointment with a cornea specialist for November 30th and then i will hear what they think can be done for me.
This will mean that i need another surgery, what kind of surgery and how that i have to wait and see because it's so low that maybe the dont perform preventative surgery anymore and then i would get a transplanted cornea.
I also don't know what i would want to happen.
Because it all went soooo wrong with the right eye i can't afford to loose the sight in my left eye. I always yelled after the surgery of my right eye "when my left eye needs this i won't do it!! I won't let my left eye be operated i rather wait for the transplantation and see what happens then."
I still feel the same but now at this point it isn't all about feelings anymore but also about risks...
How much does the risks for complications rise when i decide to wait, what are my options.....
I have to wait untill my appointment November 30th to hear what they are going to say about this.
I also immediately made an appointment for a second opinion.
My eye doctors right now are the top specialists for The Netherlands and my second opinion is goin to be in Leuven, Belgium the appointment for the second opinion is going to be January 11th.
Before i make any decision i'm going to both appointments and then i have to figure out what is best for me and wich what kind of approach feels good to me.
This whole thing feels as a slap in the face.
From June 2008 (when the surgery took place of my right eye) untill September 2009 i went to the eye doctor every month (sometimes even more) and every time there was something wrong. The searched and searched but couldn't find out why these things happened to me. I have had multiple laser threathments, eye surgeries and nothing helped so finaly they told me that this was it.
From September 2009 up untill now i learned to live with this step down in my live.
I got my cane, i got glasses for my work (the same glasses chirurgeons wear) i got magnifying computer software for my work so that way i could work normal again.
I learned how to coop with a disabillity and the fact of being disabled.
I didn't noticed any difference in my eyes so it felt okay at the eye doctors appointment they confirmed my feeling that it was all okay and looking good (as far as we can speak of looking good).
And then this........
It realy feels like a slap in the face maybe even more like i have been runover by a truck and that several times.
I know that this feeling will get less after a while and that i will step up again to show how tough i am and i know that i will learn how to coop with this and i know that whatever willl happen eventually i learn how to deal with it.
I'm tougher and stronger then i'm feeling right now, so i will overcome!!!
I'll keep you all updated again.
As the title says; i have good news and i have bad news....
Let me start with the good news because it's realy good news.
I have physiotherapy and that works great!!!
I can walk again and i'm almost walking 100% normal again.
The only thing that's still very difficult is walking stairs but it's getting better and better each day and it's looking very very good.
It goes better then the physiotherapist expected so that says enough!!!
I'm soooo happy that this is going so well because i was a bit afraid that it would ruin our trip (nor ruin up untill the point that i would cry myself to sleep and complain to Disney about it).
But it looks very very good and i hope that it's going to improve soo much that i can even dance along with the Thrill the Wonder (but we will see).
Then the bad news and it's bad bad news.....
I had an appointment with my eye doctor (this probably says enough).
I will start explaining what happened the last few years with my eyes so this story does make more sence.
I'm (very) myopic with my right eye -19 and my left eye -11.
In 2001 i had contactlenses implanted in both my eyes.
In 2007 my eye doctor discovered that my endothelial cells where dropping (endothelial cells are a layer in the cornea that provides the fluent regulation for the cornea).
It dropped in both eyes and after a while the left side stopped dropping and stayed in the upper 1700 the right eye kept dropping and when it was in the upper 1100 the doctor decided that it was necessary to get a surgery.
When the endothelial cells gets under 800 it can't properly regulate the fluent for the cornea anymore and that would mean that eventually the cornea will get blurred. When this happens it means that the cornea needs to be replaced with a cornea tranplantation.
To prevent this from happening i got a preventative eye operation, they removed my implanted lens and then removed my own eye lens and put there an implanted lens (so they removed my implanted lens and then performed a cataract surgery).
Then it all went wrong, normally the day after the operation you can see, i couldn't.
After this surgery i have an eye sight of 20% and i have black spots in my eyes, i have had cystes in my retina, that's gone now i have fluent in my retina.
In september 2009 they finally did everything they could do and i was told to come back after a year for my annual appointment.
And the time was there for my annual appointment.
When i was at the doctors office the did again a lot of tests the normal ones and an endothelial cell counting and a scan of my retina.
Everything looked fine they couldn't give the test results of the endothelial cell counting because that takes a while (parts do happen by hand) so i could come back next year.
The endothelial cell counting results i would receive in a phone call.
And they called.
It's wrong, it's way wrong.....
The right eye was 1169 and has dropped to 982 and the left eye was 1764 and that one has dropped to 825
I got an emergancy appointment with a cornea specialist for November 30th and then i will hear what they think can be done for me.
This will mean that i need another surgery, what kind of surgery and how that i have to wait and see because it's so low that maybe the dont perform preventative surgery anymore and then i would get a transplanted cornea.
I also don't know what i would want to happen.
Because it all went soooo wrong with the right eye i can't afford to loose the sight in my left eye. I always yelled after the surgery of my right eye "when my left eye needs this i won't do it!! I won't let my left eye be operated i rather wait for the transplantation and see what happens then."
I still feel the same but now at this point it isn't all about feelings anymore but also about risks...
How much does the risks for complications rise when i decide to wait, what are my options.....
I have to wait untill my appointment November 30th to hear what they are going to say about this.
I also immediately made an appointment for a second opinion.
My eye doctors right now are the top specialists for The Netherlands and my second opinion is goin to be in Leuven, Belgium the appointment for the second opinion is going to be January 11th.
Before i make any decision i'm going to both appointments and then i have to figure out what is best for me and wich what kind of approach feels good to me.
This whole thing feels as a slap in the face.
From June 2008 (when the surgery took place of my right eye) untill September 2009 i went to the eye doctor every month (sometimes even more) and every time there was something wrong. The searched and searched but couldn't find out why these things happened to me. I have had multiple laser threathments, eye surgeries and nothing helped so finaly they told me that this was it.
From September 2009 up untill now i learned to live with this step down in my live.
I got my cane, i got glasses for my work (the same glasses chirurgeons wear) i got magnifying computer software for my work so that way i could work normal again.
I learned how to coop with a disabillity and the fact of being disabled.
I didn't noticed any difference in my eyes so it felt okay at the eye doctors appointment they confirmed my feeling that it was all okay and looking good (as far as we can speak of looking good).
And then this........
It realy feels like a slap in the face maybe even more like i have been runover by a truck and that several times.
I know that this feeling will get less after a while and that i will step up again to show how tough i am and i know that i will learn how to coop with this and i know that whatever willl happen eventually i learn how to deal with it.
I'm tougher and stronger then i'm feeling right now, so i will overcome!!!
I'll keep you all updated again.
We will all make sure you have a GREAT time on the cruise.
