GKTW Pictures - Prayers Needed ~ Updated 7/29

[mejkjj97]

Thank you so much for posting this update. Noah and his family are in my thoughts and prayers.

 

[NC Belle]

Noah and his family are in my thoughts and prayers.

 

[maroo]

Maroo, I'm sorry to hear that Noah is sick. He and his family are in my thoughts. They've been through so much.

Thank you! You have done so much to shed light on GKTW!

Thank you for that!

Oh Maroo I am so sorry to read about Noah.

I am a respiratory therapist that works in a PICU frequently and I have to tell you the first thought I had was this sounds like H1N1. We have seen several of our chronic kids get horrible pneumonias from it this spring and summer.

I will certainly pray For Noah and his family.

This is what I think Nichole has feared a lot with them traveling recently.

H1N1 is no small thing (despite it's "reputation") and I really hope they don't have to deal with that!

Thank you so much for posting this update. Noah and his family are in my thoughts and prayers.

You are very welcome!

Noah and his family are in my thoughts and prayers.

Thank you so much for praying!!


I don't see any more news on their blog....

I will keep checking - a lot - and post something here, too...if I see an update!

Thank you all for praying!!!

 

[SamSam]

I, as many others, have been touched by Noahs story. Noah and his family is in my prayers and thoughts.

 

[safetymom]

I will keep Noah and his family in my prayers. He sounds like he is putting up a fight for his life.

 

[wdwfreeksince88]

We are praying for him and he will remain in our thoughts.

 

[maroo]

This precious boy has beaten the odds no less than 4 times since I have "known" them last year. Christmas, January, February and on the way home from his Wish trip.

I know he must be really tired. He does not seem to be responding to the things he normally responds to.

Here is the last update in the words of his Mom and then his Dad...


Things are rough here...we are living hour to hour...things are still critical. The night was very rocky with worsening blood gases. Noah is proving to be very difficult to ventilate. His asthmatic issues really complicate things, causing these long, forced expirations, that do battle with the breathes the ventilator is trying to give him. Ketamine has been added to his ever growing list of drugs to help with the asthmatic issues, as well as lots of ventolin. Many ventilator changes to try and find a happy place for Noah, but we still don't seem to be there yet. Gases are still bad, but not worsening this evening. Noah's blood pressure has begun to drop...he recieved more albumin and a dopamine infusion was started. He is still spiking crazy high fevers and his kidneys are not functioning well. Nothing has grown so far on any of the cultures and H1N1 results won't be back until tomorrow. So really, not definative diagnoses yet other than ARDS (acute respiratory distress syndrome).

Line access, as always, has been a major issue again, as Noah is needing more and more meds. Since our central line is only a single lumen and Noah needs that for his TPN, more access was quickly needed. The docs managed to get a double lumen PICC line in his femoral vein, but because of so much scarring, were unable to thread it much. Hopefully it will at least buy us some time.

Praying once again for another miracle.

(Update: 2:00 am July 29 ... Nichole called me (Brad) in early this morning because Noah was going downhill very fast. The Doctors were not sure if he would make it through the night. Noah is currently on medication to sustain his blood pressure and effective heart beat, he is also on the oscillating ventilator and kidneys have shut down. More updates to come as there are any.)

 

[safetymom]

I see there was a sad update. I will keep them all in my prayers. There is a new angel in heaven today.

 

[AnneR]

Very Sad news. What a couragous family. My thoughts and prayers go out to them.

 

[MariDisney]

I read their blog and Wish Trip info last night. What a sweet, sweet family. We are praying hard for them and for Noah. Poor baby.

 

[MariDisney]

I am sorry to report that I just checked the blog and it said that Noah passed this afternoon. I am so sad.

I apologize that I didn't read the post a few above this one that already said that.

 

[SamSam]

Very, very sad. Prayers to his family to help them through this very difficult time.

 

[Cruz Family]

My thoughts and prayers are with Noah and his family.

 

[Madi100]

I am so sorry to hear about this I was inspired by Noah's story.

 

[TSWJan78]

So sad.. I will continue to keep Noah and his family in my prayers

 

[*NikkiBell*]

Much pd to the family of this precious angel. I hope he is now in peace.

 

[jewjubean]

My thoughts and prayers go out to this brave boy and his family and friends. I cannot imagine how they must feel right now. I cannot wait to move to FL for the Fall to volunteer with GKTW during my CP. I will be working in honor of Noah and the others who were 1000 times braver at that young age than I will have to be in my life. RIP little buddy and give my puppy Mickey a big hug for me!

 

[Decorated_Dust]

I am not an emotional person at all, but Noah's story touched me to the core. Thankfully Noah is at peace in the arms of his Father, but the family left behind is likely feeling very far from that peace.

Prayers going out to them at this awful time.

 

[Becx N Gav]

My thoughts are with his family and I hope Noah can now find peace after all the suffering and fighting he has had to do

A million thanks to everyone who has given their time and money to causes like this - it puts my faith back in the human race (typing whilst at work trying not to burst into tears )

 

[mejkjj97]

My thoughts and prayers are with Noah's family.