Gastroparesis...

[megan4777]

does anyone else suffer from this or know of someone that does? I'd like some help.....

 

[Disneylover79]

I suffer from it... and it is acting up as I type... I was nauseous every time I would eat.... So I went to my dr and I had a test done called a gastric emptying test and I have a mild form of it.... I take 5mg of Reglan at night and I have phenergan for the times gets bad.... One of my friends has a very severe case of it and she takes 30 mg of Reglan a day....

 

[megan4777]

I suffer from it... and it is acting up as I type... I was nauseous every time I would eat.... So I went to my dr and I had a test done called a gastric emptying test and I have a mild form of it.... I take 5mg of Reglan at night and I have phenergan for the times gets bad.... One of my friends has a very severe case of it and she takes 30 mg of Reglan a day....

Thanks for the response. I had the gastric emptying test (as well as 4-5 other tests)done and I've tried Reglan. Unfortunately, it made me really tired, dizzy and wiped me out.
I think I've tried every drug known to man and none of them helped. The side effects killed me with most of them and at this point, I think my only option is a drug from Canada that is like $70/month and I'm not sure I want to try it.
I'm just relieved to hear from someone else with this b/c it drives me nuts to feel alone.

 

[Disneylover79]

You have probably tried this drug already but I just wanted to through it out there... Erythromycin... and there is one other.. I can't think of the name... please feel free to PM me if you need anything...

 

[The Cheshire Cat]

I have this condition too! I cant take Reglan because it makes my tummy cramp horribly. After trying what felt like every drug in the book for nausea I am currently on Marinol (synthetic THC) which is working wonders! Good luck to you....its not the end of the world but it sure does suck sometimes!

 

[mickeymedic]

Thanks for the response. I had the gastric emptying test (as well as 4-5 other tests)done and I've tried Reglan. Unfortunately, it made me really tired, dizzy and wiped me out.
I think I've tried every drug known to man and none of them helped. The side effects killed me with most of them and at this point, I think my only option is a drug from Canada that is like $70/month and I'm not sure I want to try it.
I'm just relieved to hear from someone else with this b/c it drives me nuts to feel alone.

I have gastroparesis too! When my symptoms act up I take Reglan at night. I couldn't take it during the day because it made me too tired. I did find that I tolerated it better during the day if I cut my pills in half and only took 5mg instead of 10mg. Also, watch what is in your diet. A diet high in fiber could cause your gastroparesis symptoms to get worse - fiber is hard for your system to empty. I learned this one the hard way. I also have IBS-D. The preferred diet for that is high fiber. But then I had constant abdominal pain and nausea for about 3 months before I was finally referred to a gastroenterologist. That's how I found out I had gastroparesis. Hope you find relief soon!

 

[megan4777]

Thanks everyone! I have actually tried the erythromycin, too, with no help.
I did try the Reglan, at different doses but it made me too ill, tired, dizzy for me to continue taking it.

At one point I tried a motion sickness patch that my dr in Boston mentioned I should try and I ended up walking into walls, not able to read, dry mouth, etc. It wasn't funny at the time, but looking back on it, it was pretty amusing.

I have actually found that if I take chewable vitamins, drink lots of diet pepsi, and eat frozen yogurt at night, I'm ok. I also have a ulcer but I find that eating spicy food sometimes helps. I've never had an issue with the ulcer but they found it while doing the endoscopy. I still eat what I want, on occasion, b/c I can't live eating the same things without any variety.

Thanks to everyone for the replies. As I said before, I just feel better knowing I'm not totally alone.