Hi everyone
I apologise for not posting sooner. I have been reading the DIS a little here and there, but not posting much.
I started my new job on the Monday after Thanksgiving, and I am totally exhausted every single day (and night!).
I work 6pm - midnight, and don't get to sleep until around 1:30am. Then I get up at around 6:30am with DH to see him a little before he leaves for work, then we chat on the cell phones while he's driving in to work. Then I usually fall back to sleep, and sleep most of the day away.
I start getting ready and dressed for work at 5pm, I leave around 5:30pm, and before that, I have to try and make something to leave for dinner for DH and DSs.
Fortunately they aren't picky, so I just make/leave easy things for them to eat. Once in a while I actually cook a meal. LOL
Anyway, the exhaustion is from the fibromyalgia. It really stinks to be so exhausted all of the time. Fortunately I'm ok during the 6 hours of work in the evening, since that's generally always been my best part of the day.
The job is ok; I'm working for a company taking orders for products from people calling in. It's mainly a company selling wigs, and women's apparel. I like the job itself, even the occasional grumpy customer. LOL The job is physically comfortable, which as I'm sure all of you can relate to, is important. And it's only a 10-minute drive which is great.
These days most of my pain is coming from dental work that I need to follow up on. I really need to schedule appointments for the dentist and then KEEP the appointments. In the last couple of months I've ended up cancelling due to exhaustion on the day of the appt. :/
to all of the new posters. This really is a wonderful thread, and I do want to contribute on a more regular basis. Just having people who understand what you're going through is such a great thing.
*hugs* to all of you.And pixiedust of course.
. I'm best from about 2-5pm which is good because this is the busy time in my kids schedules but I cant go to the dr and get my kids from school at the same time so I put it off. If I could get my meds without seeing my gp twice a year I would put that off too. Nobody can fix this right now so why waste even 4hr of my precious energy a year
and pixie dust to all
Thanks for the reply Bonnie! Ok this makes sense now. I am in my early 40's and just over the last few years am I seeing alot of fibro issues and digestive issues around ovulation and periods. GI Doctors sometimes don't listen and want to downplay hormone issues. My rheumy doctor listens and agrees with me. I have an appt in Feb for female doctor and will be discussing with them also.
Thanks for letting me know I am not the only one!
I have found a very good solution. Called the Tanda Zap it uses blue light to kill bacteria under skin. If you pay attention to a places that feel like they might break out then uses it a couple times a day on that spot the breakout will never show and if it starts to show before you treat I have had break outs clear in 24-48 hrs with little showing. I sometimes get sores from my bra and if its a closed sore it works on it too! Its expensive $35 but I have had mine about 6 months just changing the batteries and its still going strong. Supposed to work for 1000 uses if I remember correctly.and pixie dust to all I have found a very good solution. Called the Tanda Zap it uses blue light to kill bacteria under skin. If you pay attention to a places that feel like they might break out then uses it a couple times a day on that spot the breakout will never show and if it starts to show before you treat I have had break outs clear in 24-48 hrs with little showing. I sometimes get sores from my bra and if its a closed sore it works on it too! Its expensive $35 but I have had mine about 6 months just changing the batteries and its still going strong. Supposed to work for 1000 uses if I remember correctly.and pixie dust to all 
.. I find it is most def worse at that time of the month, and the cold. It is SOOOO cold here, and that really plays a tough role for me.
Hi everyone!!!
Tigg, how is your son? I just saw the lyme post. Acne, yep I hear ya!
SeaSpray, that sounds like a tiring day. It made me tired reading it. I am happy it is physically comfortable, and OH so close!!
5 at disney, I really should try eliminating things. I always say I will, and DON"t
I had a CTSCan today, and now play the waiting game.
Just booked a mini (VERY) holiday to Mexico. We are leaving Wed to Sunday. WE have gotten RECORD snowfalls, and downright nasty cold temps. I know it is winter, but this year I just am having a hard time. My husband works at the airport, and basically slept there through the holidays, so he is just plain old exhausted, and he definitely need this.
I think of you all often
Welcome to all
lilpig and carrie6466. Please come here to vent, get support, ask questions, etc. I'm sorry to hear of all of the health problems you have. It seems that fibromyalgia is always made worse when there are other health issues going on. Also, stress is one of the worst triggers for me, and I've read that it's a big trigger for most people. 
Finally had the Dr appointment with my PC who kept pushing anxiety/depression last visit. Luckily he never put that in my chart and we had a long chat about how it never been an issue for me and how he is frustrated when he sees things like 48 days of migraine and cant help. It was a very good visit and for the most part I'm stable which is a bit of an oximoron for us isnt it? I might try anti convulsives for the migraines in June. Any luck with that here? Hi, I am a regular browser on the disboard.(mostly reading) I have been going through health issues for the last 5 years. I have been diagnosed with atypical migraine, nocturnal epilepsy and yesterday I was diagnosed with fibromyalgia.
Right now am having a hard time wrapping my head around it in general because I do not know much about it. I only know what some peoples thoughts of it are. I came home and started reading about it was telling my husband. We call our oldest in to tell her, (at this point I am waiting to tell the other two ) and when she asked what is that. My husband said in my opinion unkind things. I am not hear to bash him. So I will not put them here.
So right now I feel confused, unsupported, and scared. I called my mom she did tell me that my grandma(passed away) and aunt had / have it. I knew my dad has it (its his mom and sister).
I just thought what better place to find people to understand and give helpful words then here. And when I came to the disAbilities section this was the first one to come up
. People with FM are like snowflakes no two are alike. I cant tolerate medications and cant work but have been able to get better with suppliments, meditation and alternative techniques. Sometimes I exersize sometimes not. Learning to deal with these diseases is realy about knowing your body and going with the flow. Our symptoms tend to floow the weather and the stress in our lives. Hi everyone
I wish that I had advice for the sleeping all the time problem; that is my worst symptom right now. Because I also have rheumatoid arthritis, I'm used to being in pain, but the constant fatigue and need to sleep all the time, just gets to me. I feel that I'm wasting time, and my life away, with all of this sleep. And it's not as if I feel any better when I wake up.
Fibromyalgia is one of those "hidden" diseases where you appear totally fine, and a lot of the time it's hard for people to understand how horrible we're feeling. Some people still think that it's not a real thing and that we are just lazy hypochondriacs.
Even when we have family who recognise this as a real disease, it still can be difficult. My DH is great, but often times he thinks that if I just "fight" it, I can be up and about and full of energy and pain-free. I wish that were true!
I'm still spending my days like this (each 24 hour period): 25% at work, 60% sleeping, and 15% tv/laundry/cooking. I guess it could be worse, right? lol
Ladies, I've noticed an increase in symptoms in relation to my hormones, too. For years now I've thought that there MUST be a correlation, but nothing that I've read or heard has ever mentioned this. I think that WE probably know more than the doctors, at this point.
Well I have to go and decide what will get done in the next 3 hours before work. Will I take a shower, or start dinner, or fold laundry? All of these *should* be done, but I don't know if I'll do any of them before I leave for work.
*hugs* to all of you.
and pixie dust to all
lilpig said:Thank you so for the warm welcome
Carrie, I am so sorry. I can't imagine how difficult this is for you.
I am not good yet at the quoting yet sorry.
I have had multiple tests and a few mri's . I changed Doc's at one point because I thought I was being treated poorly. She has checked ( I believe ) for other causes.
I am on topamax and deseryl for the migraines, I am on keppra for the seizures and lyrica. I am also on flexeril as needed but I try not to take it.
I am so useless right now. I work and have three kids 17, 14, 10. When I come home all I want is to sleep or watch tv in "my spot" so at least im in the "awake"
Thanks for being here
. Got kids/hubby off to school now off to bed. Last few weeks I've been sooooo tired. Up an hr then in bed for 40min then up 40 min back to bed and sleeping in coma type sleep for 3-4hrs. Get them all off but not much else. I can fight off migraines and pain but In 18 yrs never figured out how to outsmart fatigue. I fall asleep sitting up. Lilpig, a few years back I was at a girl scout camp at local museum. I was sitting on top of a table and the next thing I knew I was asleep sitting up with nothing supporting my back! Yep just sleeping in middle of table LOL. So you are not alone in extreme fatigue.
ashmarie06 said:
. My advice is take it slow on flexeril til you know how it effects you. If you feel foggy next day even if 24 hrs after taking pay attention and be sure its Lupus/FM not side effect of Flexeril.
ashmarie06 said:
. Every time I do even the smallest of things like picking up junk off the floor I use dollars so If I waste them on fighting then I cant watch a movie later that night. Everything you do, talking on phone, chores, etc has a price. The trick with FM is learning to assess upon waking how many dollars you have and pacing how you spend them. Do less than you think you can or you will inevitably do too much and have less the next day. I cannot fight the fatigue...it is a sure fire way to get worse. It took me two years to even come close to getting the fatigue thing down. Its hard not to do what you want when you want but with fatigue its vital. I kept a journal the first few years so I could assess my meds, supplements and symptoms because I had all the chronic fatigue symptoms and FM symptoms at once. I constantly had heart attack and stroke like symptoms, was in er for evals off all types. My husband could not touch me in any way not a hug or handholding and I left my home only 5 times in a year. All this at 27! My body was seriously out of control. When I stopped fighting, stopped looking for a medical fix, began meditation, visualization, relaxation techniques etc I did much better. I went into remission while pregnant and all the things I learned helped me keep some assemblance of a life ever since. Its a very tricky balance but I drive again, get my kids to school and activities and sometime get the chores done LOL. I miss working terribly but for me I must maintain control of the balance and demands of a job would put me back in bed Everyone one here has a different experience with meds etc but if you type in fatigue in the search of this thread it is one of the universal things we have trouble managing.
I have "normal" confusion now that I just have come to terms with. People say I have a look on my face that says "HUH?!" I just say its my thinking face. Then I have my migraine confusion and that looks more like y I hide from the world when I am like that. (Thankfully it doesnt happen that much.) Then have the I don't know what I am doing..how to use a key or putting things away.
