Dancemom03
Flexican wannabe
- Joined
- Jun 14, 2005
- Messages
- 1,795
Hi all,
New to disabilities and will need to learn a lot quickly it appears. DH has had a problem with his legs giving out without warning for years now. It's gotten progressively worse until now he has real problems walking, can't stand for more than fifteen minutes or so, and falls suddenly a couple times a day.
Last week, he feel and thought he might have broken his rib so, after a day of pain, he finally gave in and went to the ER. While there, the doctor discovered that the weakness in his legs has begun to affect his arms as well. We're waiting on an MRI of brain before making a final decision to travel. We were supposed to leave for wdw on Thursday and are hoping for the best but it's been a stressful week. As if there wasn't enough to worry about already, a certified letter came from the hospital Friday saying there was a nodule showing on his lung xray. His doctor hasn't returned our calls so the weekend leaves us feeling even more uncertain than we were before.
DH has Crohn's and heart issues already but has always been one to keep moving. He won't talk about it. As his legs get worse though, he's falling much more and is more often injured in the fall.
If we go, he'll need an ECV. Last week the radiologist tech suggested that perhaps Carefirst/BC/BS might pay for a short term ECV rental, if his doctor prescribed it. Is that a possibility? Does anyone have any experience with short term ECV rentals?
Another question... I'm planning to drive to Orlando so we'll have a vehicle just in case, while his nephew will take him to the airport to fly so he isn't subjected to the long car ride. I'd like to rent the ECV here and have him use it at the airport. Is there any reason that wouldn't be advisable? Should we wait and have one delivered in wdw instead?
Is there an extra charge for an ECV on Southwest planes or do they just gate check free like strollers? Would you gate check a rental ECV or is that just risking too much damage/wear & tear?
New to disabilities and will need to learn a lot quickly it appears. DH has had a problem with his legs giving out without warning for years now. It's gotten progressively worse until now he has real problems walking, can't stand for more than fifteen minutes or so, and falls suddenly a couple times a day.
Last week, he feel and thought he might have broken his rib so, after a day of pain, he finally gave in and went to the ER. While there, the doctor discovered that the weakness in his legs has begun to affect his arms as well. We're waiting on an MRI of brain before making a final decision to travel. We were supposed to leave for wdw on Thursday and are hoping for the best but it's been a stressful week. As if there wasn't enough to worry about already, a certified letter came from the hospital Friday saying there was a nodule showing on his lung xray. His doctor hasn't returned our calls so the weekend leaves us feeling even more uncertain than we were before.
DH has Crohn's and heart issues already but has always been one to keep moving. He won't talk about it. As his legs get worse though, he's falling much more and is more often injured in the fall.
If we go, he'll need an ECV. Last week the radiologist tech suggested that perhaps Carefirst/BC/BS might pay for a short term ECV rental, if his doctor prescribed it. Is that a possibility? Does anyone have any experience with short term ECV rentals?
Another question... I'm planning to drive to Orlando so we'll have a vehicle just in case, while his nephew will take him to the airport to fly so he isn't subjected to the long car ride. I'd like to rent the ECV here and have him use it at the airport. Is there any reason that wouldn't be advisable? Should we wait and have one delivered in wdw instead?
Is there an extra charge for an ECV on Southwest planes or do they just gate check free like strollers? Would you gate check a rental ECV or is that just risking too much damage/wear & tear?
