Do any of your kids have an inflamed esophagas or reflux and take Prilosec?

[Piglet]

My 4 1/2 daughter has lots of health issues. One being Glycogen Storage Disease where her blood sugar is unstable (always a threat for it going low). She is doing great with managing this but has had vomiting episodes ever since she was 2. Her local ped didn't think it was anything major, every time they said she had a virus. She did this at least twice a month, sometimes more. I knew better because she never had fever or loose stools and after vomiting she would usually feel better in an hour or so. So I insisted she see a Pediatric GI Specialist on our next visit to Childrens Hospital in Phila and they did some test. She had an endoscopy done and the biopsy's showed that she has an extremely inflamed esophagas. They put her on Prilosec twice a day. She was taking Pepcid and they took her off of it yesterday to start the prilosec and she ended up in severe pain last evening and had to take her to ER because also when she vomits her blood sugar goes dangerously low. Does anyone have any experience with reflux or food allergy's that would cause the inflamation?? Her biopsy showed cells that were common with food allergy's. And does anyone have any ideas how to get the Prilosec in her?

Any help would be appreciated. I am about to lose my mind.

Thanks

Melinda

 

[Wheelsie]

My Dr either gives my Prilo or Aciphex (he gives me samples cuz of cost)

Altho I take I don't have food allergies...is she taking (Id assume not) pills or is there a lquid version for kids or something...
If the latter is the case Id ask your Ped if you can add it to her food (whatever you find oout on her allergies may help) and see if that helps it get in her system!

I'm sorry Im not any more help but please keep us posted! *sending PD&P*

 

[Piglet]

Thanks Wheelsie. I feel like I really need those P& PD right now. They did give my
daughter a liquid and it is a compound. Sodium Bicarbinate mixed with about 80 capsules taken apart. It has a horrible taste. She is on a really restricted diet so we are limited on what we can mix it with. I tried sugar free kool aid and had to use to much to drowned out the taste and it took her forever to get it down. This morning I told that we would just take the whole thing and squirt it in the side of her cheek and she could swallow it fast and then get a drink. She did it, but not without gagging and not sure she will be able to be talked in to it this evening.

I just talked to her GI specialist and she gave me an idea, so I will let you know later how it goes.

Thanks a bunch.

Melinda

 

[Wheelsie]

well is she restricted of ice cream? thats what my meds were always blended into when I was a whipper snapper

 

[Piglet]

Yeah, No milk products (lactose), fruit or juices (frutose), or anything
with sugar (sucrose). Really keeps us limited.

We do make her an ice cream that is made out of non dairy creamer and
dextrose. Maybe we could try that.

Thanks!!!!!

Melinda

 

[SueM in MN]

Well, that sounds like a really nasty combination of stuff to take. Sodium Bicarb is baking soda. Even in toothpaste, that makes me gag. s
She's allergic to most of the things I was taught to mix meds with in Nursing school. I would agree with trying it with your homemade "ice cream". Sometimes cold stuff works better because it deadens the taste buds. You might also try having her suck on a sugar free ice pop before she tries to get the meds down (same reasoning).
The other thing you could try if you have pills is to teach her how to swallow them. You can try it with little wads of food before trying the pills. Have her chew up some food that she can swallow well (with some texture, but slippery). Once the food is chewed up:
-if it's a solid pill, have her put the pill in her mouth,
put her head slightly down and swallow with a drink of water.
Looking slightly down holds your throat open a little more.
-if it's a capsule, have her put the pill in her mouth, have her put
her head slightly up, give her something to drink and swallow. The idea is the capsules are light and will float toward the top.
I saw this once in a nursing journal to teach kids how to swallow pills. I come from a long line of people who have trouble swallowing pills and using this, I can get down most everything.

 

[Piglet]

Thanks Sue and Wheelsie, the doctor is giving us a capsule to try. She said to take it a part and then try to get it down with cranberry juice. So we are going to try that this weekend. Hopefully it will work. I just need to get her started on feeling better.

Thanks again

Melinda

 

[3yL]

I take Previcid (similar to Prilosec) and have for several years now. I'm not much help with the allergy part, but I can tell you that with my throat, swallowing pills with water is almost impossible. I've taken different medications on and off for years, and until the throat problem, I never had a problem swallowing pills - I could take my medications, vitamins, etc., all at the same time and not have a problem swallowing. But now there is NO way I can take pills without soda or something thick like a shake (I don't drink milk, but that would probably work as well.) If I try to take them with water or something thin, they stay at the top of my throat forever. I limit myself to several cans of soda a week, so the rest of the time I have to have some type of food to "chase" my pills with. If I take the pills and then chew something and swallow it real quick, it's not so bad. I used to think I was imagining the pills staying in my throat, but that's definitely not the case because if I cough or something I will actually caugh up small pieces of partially desolved pills. It doesn't matter whether it's one small pill (those are actually worse) or several pills - they all stick.

My trick for taking pills, and the one my kids use (all but the youngest) is to put the pill in your mouth, take a drink of something, then quick puff out your cheeks and shake your head so the pill gets swishing around with the liquid, then swallow. Typing it out, it looks difficult, but it's not.

Even with the tricks of getting the medicine in without making her sick, stick with your gut feeling and keep pushing the doctors. My 5yo has been on Zyrtec since she was 18 months, and has been getting allergy injections for 2 years now. She gets really debilitating headaches, and they kept blaming them on allergies, and for a while UTI's (she had one for a few weeks - but they tried to tell me that was what had caused her to have 3 months of headaches every single day. ) They finally ordered a cat--scan and then an MRI, and she has an abnormality of the spinal column/brain stem. She'll need brain stem surgery to correct it. Certainly not what we'd hoped to hear, but it was definitely better than 2 years of them saying she'll need to just get used to her head pounding day after day. You know your child, you know if the problems she's having are normal or not - believe it!

 

[tink2dw]

For many many years I would get up in the morning and puke. Kind of like morning sickness.

But I swear it is from post nasel drip during the night[or naps],and the stomach can't deal with all that mucas and makes you toss it back up.
I learned not to eat breakfast till after I had puked,it is easier on your throat if there isn't any food in your to stomach that can irritate the throat. Chips and french fries are 2 of the worst!! They finally diagnosed Reflux diesease. And gave me Prilosec. It is a miricale pill!! It not only helps with the heartburn it helps to heal the irritate too!! I took it as ordered for about 2 yrs straight. Now I only need it occasionally for a few days at a time!!

It really helps to drink something that can help thin out the mucas,cold diet Coke works well for me. It cuts the mucas and cleans my throat and helps in my stomach,too[I am a diabetic so I also need to keep my blood sugar level]. Apple juice and orange juice make more mucas.

But Cranberry juice is good as it isn't overly sweet. Tart is better than sweet. Eating later in the morning helps. Drinking water later in the day helps[not till after you have eaten]. White bread or instant mashed potato's[the kind made with just water and a little margerine] helped to sooth the acids after puking. Water only makes it worse!!! You will want to avoid anything with it's own acids like orange juice or tomatoe sauce that makes the throat more irritated

I have allergies the hayfever type,but the winter molds are worse than anything in the summer!!

They have allergy pills 4 yr olds can take I would get her on one!!
As that also helps to thin out the mucas with the Added bonus of being able to BREATH!! From January thru June I take sudifed so I can beath enough to do more than quitely sit still by.

We used unsweetened apple sauce to put Dd's pills in and then they slip down easier. A heaping teaspoon did the trick!! We used this method from 4 to 14yr old!! Any liquid with the pills and she would gag.

I hope some of my hard learned knowledge will help your Dd to cope and make life alittle easier for her!!

If you want to ask more questions you can e-mail me or pm me,I will glad help all I can!! you can use the buttons at the bottom of my post!!