Disney with fibromyalgia?

[LuvGoofy6]

That's the other thing, I opted out of medicine besides aleve or ibprophen. The meds available to me didn't work well for me. Made me feel worse than the actual disease.

I am right there with you...hated the medicine and tried many. I stick to Aleve and find that to be what works best for me. I am able to work everyday but miss more work than I used to. If this helps, these are a few of the things I do while at Disney. Humidity is what does me in as far as fatigue. Of course, many people get tired with humidity but since my fibro it seems worse and there is still humidity in January at WDW. The things that are key are taking breaks such as a sit down meal to get out of the heat/humidity and rest. Sometimes, I just get an iced coffee and sit on a shaded bench while my family rides a few of the rides that I don't want to ride (they come back and pick me up when they are done). If it isn't time for a meal then perhaps go to the shows if you need a break. For example, Magic Kingdom has Country Bear Jamboree, Monsters Inc. Laugh Floor, Mickey's PhilharMagic or the Hall of Presidents. Just know that it is ok to go back to the hotel early or get to the parks later than the rest of your party. It's really hard to plan outside of "generally speaking" because we never know which days will be bad days. You know your body best and just listen to it while you are there. I hope you have a great trip!

 

[LuvGoofy6]

Since I have had fibro I try very hard to focus on what I can do rather than what I can't do.

Same! Positive thoughts always and acceptance when I have bad days.

 

[mbh98akh]

stalkingmickey, I can't find the name of the doctor I went to. It was a number of years ago. I know he was in Newton-Wellesley Hospital. He did not diag. me, that was my primary doctor who sent me to him. He was very nice, but I don't think enough is known about fibro yet. Hopefully someday they will find out more and it will help us. As for daily functioning.... well, I think we all have to find what works. For me I HAVE to walk every day or I get worse. Walking, even though every step is painful, helps me. I don't know if it "loosens" my muscles or what, but it does help. My heating pad is my friend. I don't even put it away, it's in my family room and is part of my "decor" HA HA!! For me the sun helps very much. I live in the Boston area and we don't get good weather all year, but I find that I am better in the summer. We go to Disney a lot in the summer and I find that it helps me. As I said before, I take a LOT of breaks. Rides don't mean that much to me anymore, and the "jerky" ones...I don't do many, although I love Dinosaur. It somehow doesn't bother me (it is much calmer than the original ride). I am more of a wedway type of person anyway!! I think as far as Disney goes, we all have to find out what works for us. IMHO Disney is one of the best places to visit for anyone with health issues because there is so much to do. You can do as much or as little as you like. There are times we plan to go on a ride and as I am walking up to it I'm just not "feeling" it and don't go on. A big one is Ellen's. I really like the ride, but another "issue" I have (WOW!! Not more secrets here!!! LOL!!!) is the bathroom!! I know every bathroom is Disney!!! I should write a book!! Ellen's is a long ride so I have to judge if I can do it or not. I realize some people are bothered by this, but I have LONG past gotten over it. As I said before I focus on what I CAN do, not what I CAN'T do. This is much longer than I thought and hope I didn't bore people. Fibro is a very hard thing and it is always a learning thing. There are days I go to the mall, get out of the car, hit one store and BAM I'm done. Other days I'm good to go. Same at Disney. Pace yourself, relax, LAUGH(it really is the best medicine) and go with the flow. Enjoy The Magic!!

I am the same way. Some days are awesome, lots of energy and happy and some not so good. I do have to move some on the bad days as well. I noticed at the beach last year that the humidity and heat made me feel much worse and I hurt more. So here's to hoping for low humidity and cool breezes in January!

Sent from my iPhone using DISBoards

 

[Orlando or Bust]

I dont have fibro so I can only imagine that it is worse than what I have. Which is a beeped up knee and I get pains all over my body especially if I have been doing WDW a bit too hard. However, I found that a nice swim or bath when I get back to the hotel helped relaxed my whole body and helped me sleep. I am often on alot of pain killers when I go but I think its worth it.