Dis Breast Cancer Survivors Part IV - GAGWTA

It has been an interesting experience since my last chemo. My stomach hasn't bothered me as much, but the whole thing hit me much harder than the previous two sessions. I've been wiped out.

I lost my sense of taste. My mouth has been hyper sensitive. I was told to eat yogurt and gargle with salt water. Finally, today, I am beginning to taste things again. I had no idea how hard it is to eat when you can't taste anything. I'm hoping it all comes back before my next session on April 23rd.

Someone one asked me, if I had to give up a sense, what would it be. I can tell you now that it wouldn't be my sense of taste!

Hope everyone is doing well!
 
Peg - so sorry you are having the taste issues. I hope you can find something that agrees with you and that you like to keep your strength up

fortwilderness - sorry your onc. is leaving. I know what you mean. You build a rapport up with them and trust them etc. and then boom. My ob/gyn left and worse was my stomach surgeon. He moved to Vermont. After 4 operations I really trusted that guy and I know I am in for more stomach surgery in the future because this mesh only lasts so long. I hope you like the new onc.

Laurie- you will be so proud of me sista! The trip is booked! Just finished it, well the hotels and the flights and then onto the adrs.

I am so proud of myself. I am trying to save $ because we need the new roof and driveway etc. Well we cashed in dh frequent flier miles for 4 days at the beach club in club level. Its a standard room, but its ok. That will be May 28-June lst and then June 1st to 4th we are switching over the the Yacht Club for a passholder rate lagoon view. That we are paying for.

Then when I checked dh southwest points I found out we got his whole flight for $2.50 and when I checked mine I saw I got 1/2 of mine for free so only paying $125. Then I realized I cant find my one wallet that has the aps and tiw card in it. Oh well, I have until may to find it and I know it cant have gone far.:)

Peg - if you are feeling better maybe you can meet Laurie and I one day and have Kendall come too etc. I know you dont feel well, but if you feel up to it, it might do you good.:)

Well now its time for the adrs today or tomm. Dh of course has put in his requests.
 
LMP, your trip plans sound great.....and how nice to be able to save some money in the process! :cool1:

Peg, I remember all to well how hard it is to eat with no sense of taste. :hug: Sorry this last round has been so hard. Hang in there.

PrincessK, great news! :thumbsup2

Laurie, glad to hear that your DD was able to handle getting her car back all on her own! But yeah, how frustrating! Your WDW trip in May sounds nice....I bet your DD and her friend are looking forward to it too!

We have decided to take a family vacation in June.....going back to San Diego again! Neither of our DDs have ever been there, so it should be fun. Also going to spend a couple days at DL. LOL, I wish I knew last June when we were there that we'd be back two more times in the same year, I would have bought an annual pass for sure! I can't believe we are actually getting to do this. :upsidedow

My poor little 3 year old bichon Lulu is going in for surgery Tuesday for a luxating patella. :sad1: She is such a little sweetie. I can't hardly stand the thought of putting her through it, but I know its for the best. The recovery time is fairly long....keeping her inactive for 3-4 weeks is going to be tough! I guess we will probably have to keep her crated or on a leash all the time.

Hope you all had a good weekend
GAGWTA!!:goodvibes
 

Good morning ladies. I went for my mammogram a couple of weeks ago. Was expecting the "all clear" letter I've been receiving for the past 16 years.

The doctor's office called and said they wanted more "views". I went back last Wednesday and the radiologist made it sound like nothing - they have a new machine, just looking to see why left side looks different from right - said if they thought it was anything I would be going for a biopsy, not more pics.

Well the doctor called again and referred me to a breast specialist. My appt. is at 2:00 today. I can't seem to stop my heart from racing, my legs get weak, etc. I'm going by myself and just can't wait for this day to end. DH just brushes it off, telling me it's nothing.

I'm just so scared. Thanks for anyone who took the time to read this.
 
Good morning ladies. I went for my mammogram a couple of weeks ago. Was expecting the "all clear" letter I've been receiving for the past 16 years.

The doctor's office called and said they wanted more "views". I went back last Wednesday and the radiologist made it sound like nothing - they have a new machine, just looking to see why left side looks different from right - said if they thought it was anything I would be going for a biopsy, not more pics.

Well the doctor called again and referred me to a breast specialist. My appt. is at 2:00 today. I can't seem to stop my heart from racing, my legs get weak, etc. I'm going by myself and just can't wait for this day to end. DH just brushes it off, telling me it's nothing.

I'm just so scared. Thanks for anyone who took the time to read this.

Sending good thoughts your way:grouphug:
 
Good morning ladies. I went for my mammogram a couple of weeks ago. Was expecting the "all clear" letter I've been receiving for the past 16 years.

The doctor's office called and said they wanted more "views". I went back last Wednesday and the radiologist made it sound like nothing - they have a new machine, just looking to see why left side looks different from right - said if they thought it was anything I would be going for a biopsy, not more pics.

Well the doctor called again and referred me to a breast specialist. My appt. is at 2:00 today. I can't seem to stop my heart from racing, my legs get weak, etc. I'm going by myself and just can't wait for this day to end. DH just brushes it off, telling me it's nothing.

I'm just so scared. Thanks for anyone who took the time to read this.
Hopefully they are just being extra cautious. Hang in there. :grouphug:
 
Sorry, I don't understand.
She's talking about the young woman that posted a few weeks ago with symptoms of Inflammatory Breast Cancer who never returned to update us or any of the many other posters who were pulling and praying for her. Allegations were it was a hoax. (If it was, she needs more prayers than we thought. And if it wasn't, I hope she's doing ok.)
 
Peg - so sorry you are having the taste issues. I hope you can find something that agrees with you and that you like to keep your strength up

Peg - if you are feeling better maybe you can meet Laurie and I one day and have Kendall come too etc. I know you dont feel well, but if you feel up to it, it might do you good.:)

Thankfully, my sense of taste is coming back! Still not back to normal, but much better! I just hope I don't lose in during my chemo next week.

I'd love to meet you guys! I'll be looking forward to it!
 
Thanks, Linda. Hard to believe those posts were a hoax.

Yes, meeting would be great! How wonderful.

Snapppyd, don't let your husband minimize your feelings. Is there someone else who can accompany you? It could be that a second doc reviewed the images and wanted a second look. The odds are in your favor, even if you end up being sent for a biopsy, 80% reflect begnign results. Is your visit with the specialist scheduled yet?

I am in NYC tonight. I have had an unnerving week. DD22 was rushed to the hospital about 1 am last week on Wednesday. She had a seizure while settling to sleep, fell and hit her head extremely hard on the nightstand. Her boyfriend and his parents rushed her to the hospital, from the ER she went to a room, had a bunch of tests, and was hooked up to a video EEG for 4 days. She was put on IV meds, had am MRI.

I booked a flight a few hours after she called me Wednesday to tell me what had happened. Unfortunately I had to go through Houston, the weather was horrible and I got stuck overnight, so I did not get there until Thursday morning.

She is home and stabilized and is finishing an ambulatory out patient EEG to clear her to go to work. She is anxious to go back to work, Thursday maybe. Today the neurologist called to say she saw something she wants to look at again on the MRI, so she needs a second one, but it does not seem to be an emergency so I am optimistic. Maybe the neurologist is being extra thorough?

DD's boyfriend's parents invited me to stay at their house. They have been so generous. She was supposed to work yesterday before the ambulatory EEG was moved up (it was scheduled for May but that had a cancellation late Monday). So I took the train into Manhattan to spend a day with my brother. I am heading back to home tomorrow. DD seems to be stabilized but will be getting ongoing followup. We don't know exactly what happened, but she was sleep deprived and stressed. She will have to pace herself for a while. She has been working long hours and pushing herself constantly. She even worked while in the hospital. I never saw anyone so motivated to go back to work in my life. It is making me crazy.

Luckily her neurologist is very good, DD's boyfriend's father has known her for a long time and works with her at the hospital where DD went several days a week. The doc was very attentive and thorough. I will feel better when we have results from the second MRI.

I did get to relax a bit today and went to the Met, walked all over Central Park, and went to a play tonight with my brother. It will be difficult to leave tomorrow.

Keep DD in your prayers for me.
 
Linda - prayers for all of you and Mass :hug: Saw that Yankees/Red Sox sign on the news too

snappyd - hope things went well for you today I am gad they are being cautious

Peg - Laurie and I will have to share our plans with you and see what works out. I am one of those A planners who plans the adrs etc. My poor dh keeps saying, I thought we are suppose to be on vacation. When is rest and pool time etc.

Laurie - I am so sorry to hear about K. I am sure that was frightening and scary for all of you. It was so good you got to be with her. I hope her new tests have good results too and that she will get a good balance with work and rest. Yes, NY is def. the city that never sleeps. Seems like her employers expect a lot from her? This is the way with dh as well. Never says no to a project etc.

Poor ds25 got a bad job review. Well strange he said it was actually never completed? So he is not in a good mood and going to check it out and challenge it etc. He said he might look for a different job. There is really no chance of advancement where he is but they are pretty lenient with him doing his basketball and adjusting his hours and its so close to home, so I guess he has to weight it all out.
 
Wow Snappy, how scary, glad she seems to be doing so much better. Didn't something similar happen to Kelly Osborne (Sharon's daughter).

Not the best experience yesterday. At first when he looked at pictures and did sonogram he didn't think I would need the biopsy. Then he decided to check a small cyst behind the right nipple. The needles were very painful.

The worst part was when he put on the bandage and I sat up. I started bleeding all over the place. He said one time in one hundred they hit a blood vessel/artery. He pressed so hard on my breast to try to stop the bleeding that I started fainting from the pain. He kept telling me to press the bandage really hard, I couldn't breathe.

Finally he re-bandaged it and wrapped an ace bandage tightly around my chest. Then I had to sit in a chair for two hours before he let me leave to be sure the bleeding didn't start again.

Very uncomfortable night. He said it is 90% chance it is a benign cyst. Now I just have to wait til next week for the results. Hoping the bruising/pain are gone before May 1st, we are supposed to go on vacation.

Thanks for listening once again :worried:
 
Wow! Such a stressful week for so many of you! Hope things are going smoother. Praying for each of you and your families.
 
Wow! Such a stressful week for so many of you! Hope things are going smoother. Praying for each of you and your families.

Sounds like you have had your own challenges lately; hope you are doing well and each day gets easier.
 
Snapppyd, sorry to hear that the biopsy was so difficult and with complcations. Sending lots of good thoughts your way for good results. :hug:

Laurie, glad to hear your DD is feeling better. Sounds like she received very good care, and I'm sure she was glad you were able to be with her. Hopefully her last round of test were all ok, and she will learn to take it easy (or at least a little bit easier). What a frightening experience - for both of you!

Linda, glad to see you are ok.

My Boston DD & SIL are fine. DD was not supposed to even be home last Monday, but she decided for whatever reason not to go to NYC for work until Tues. their apartment is just a little less than a mile from the site and she was home at the time....said she could see lots of people out walking by her building, but that was about it.

My little Lulu had knee surgery yesterday, she did fine. Has a big ole bandage on here entire leg. Now the hard part is keeping her inactive. Her big brother Charlie doesn't get it at all why she cant play!

GAGWTA!! :goodvibes
 
I hope you had a better night last night snapppd.What an awful experience with the biopsy. I had a bit of a bad one on my good side after my original diagnosis in 2004. It did not hurt though, it was only nerve wracking. For me it seemed to be where the lump was that the surgeon thought she felt (the first breast surgeon had not found anything there).

Hopefully you will get clear results soon.

Glad your DD was ok in Boston, Cheryl. Did you have trouble getting through to her for a while? That must have been scary for you until you spoke to her.
Poor little Lulu. Was her condition an injury or related to the breed? glad she is home and recovering.

MaryAnn, glad you have your plans, we will be there at the same time. We need to figure out when we can get together. DD17 and her friend are old enough to do their own thing, but I would love for you and Peg to meet her as well.

Got home to my own comfortable bed around 11 pm. It felt good to say the least. My sweet doggie Snappy just about went nuts greeting me. Almost like she hugged me over and over.:grouphug: I swear she knew I needed it. DD22's second extended EEG was clear of abnormalities so the med is doing its thing.
No driving until she bridges to the second med with fewer side effects but is slower acting. More blood work in a few weeks to make sure that med is at the right levee. I suspect another ambulatory EEG at that point too, but they haven't told her that yet. She went to work for half a day yesterday via two trains and a subway, which is what I did to get just to my brother's office in the Chelsea neighborhood of Manhattan Monday morning. How do people do that every day?

The second brain MRI is Monday. I would have liked to stay but I had to get home. There was something that was there, but I just don't know what the deal is. Who reads the MRI, the neurologist? She was the one who asked for the second. Maybe they will take more views or something, kind of like a diagnostic mammogram? DD22 does not seem to be concerned, so I am downplaying it too.

She and her boyfriend were supposed to join my brother and me for a Broadway "play" Monday night, but when they moved up the EEG she couldn't go of course with all the wires hooked up to her skull. Tom and I still went and we were literally feet from the stage. It was like a retrospective of the Rascals group from the 1960's, with all 4 of the original band members, produced by Steve Van Zandt from Bruce Springsteen's E street band. It was great! I had not thought about that band in , well, 40 plus years (they disbanded in 1970), but I knew most of their music. I thought my brother and his friend would be bored but there was so much energy and it was so well done, we had an absolute ball. There were many a grey haired head in the audience bobbing in the audience, and they got a number of standing ovations.

Lots of energy and fun, nostalgia style. Can you say Groovin' on a Sunday afternoon? I sang along for most of the time, as did quite a few.

Do I really have to go to work today? Ugh!

All my best to you, and thanks for the support here. I just feel spent, but I feel better than when I left here last Wednesday, and much better than when the cab dropped me off at the hospital last Thursday after being stuck at the Houston airport all night. Don't fly when there are any storms around, ladies.

GAGWTA!
 
Sending prayers for your DD, Laurie. :hug: Glad you made it home safely.

And for snappyd and Lulu, too. :flower3:
 
Has anyone tried arnica gel for brusing? my poor you know what looks like it was run over by a car.
 
Snapppyd, I've never heard of that gel....sorry. Have you tried ice? I hope it's not too awfully sore. When will they let you know the results?

Laurie, glad you are back home safe and sound! Sounds like your DD is quite the trooper going back to work already.....I bet she will be happy when she can drive again. Will she be on medication for the long term?

The play/musical sounds fun....nice that you were able to relax for a bit.

I was able to reach DD in Boston without any trouble. However, I WAS NOT expecting her to be there! She should had been in NYC. I was really just checking in with her to make sure SIL was ok, he works downtown Boston. Turns out he was out of town and she was home. I'm not even going to mention the fact that I had to hear about the bombing on TV and then call her - I mean, really? Didn't it occur to her to call home??? :duck:

The vet actually had to make a deeper grove in the bone in Lulu's leg, and relax one side and tighten the other. That should then keep the knee from slipping. Luckily, the other leg looked good on the X-ray, so hopefully that is the case. We are keeping her confined in a pen in the kitchen.

Here are a few pictures, one of her leg all bandaged up, and the other is of Charlie, who just can't quite figure out why she won't play with him.


charlielulu2_zps43da6d56.jpg


charlielulu1_zps18e76e9d.jpg
 
Sending healing thoughts for Lulu, what a cutie pie!
 












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