Dis Breast Cancer Survivors - GAGWTA!

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Thanks Merry and Laurabelle, for the suggestions! I never thought about a "care package" I am going to get some of her favorite tea and some of my chocolate merangue cookies in the mail to her this week!

Continued blessings and prayers to everyone!!!

pinnie
 
Pinnie, some of the gifts I most appreciated were my new CD player (my old one was acting cranky) and the Michael W. Smith CD Worship (contemporary religious music). I also received several very lovely spiritual books, one is Having a Mary Heart in a Martha World and another is Prayers for the Domestic Church, a Handbook for Worship in the Home. I listened to CD's and read my books alot. After surgery I had weekly dr visits for 6-8 weeks with a lot time spent in the waiting room, the music and reading was a Godsend in more ways than one. Another friend gave me some lovely very mild moisturizing cream that I used on the scar after it healed, it was Archipelago botanicals No. 3 oat creme milk.

My most special gift was a little wooden cross my sister gave me. Her husband cuts the wood in his workshop and she glues and stains them. She also adds a special touch, a piece of paper that is tied to the cross with some thin rough rope. Here is what is written on the paper:

This little cross, fashioned of scraps of wood by hands that prayed for you, was never meant to adorn a wall. Rather, it is just the right size to hold in your hand whenver you need to be reminded of how close the Lord is to you.

From Isaiah 49: 15-16: thus says the Lord. . . ". . .I will never forget you. Upon the palms of my hands I have carved your name.. ."

My sister has always been a spiritual person, she was in the convent at one time and has worked in more than one parish in Louisiana, now she volunteers due to health problems.

They made these the last year and a half to raise money for the Relay for Life team that my brother-in-laws cousins head up in Grammercy (one of his cousins has stage IV BC). My mom and I give them to friends and family with sick loved ones or who are bereaved.

I also benefitted from meals supplied, mostly from neighbors and DH's co-workers. Someone put together a schedule. DH's boss (he's single) just gave us a large $ gift card from Jason's Deli.

I would stay away from plants (high upkeep).

A box of nice stationery or cards and stamps is not a bad idea.
I really loved receiving get well cards too, especially the ones with notes.
I also received religious medals and St. Jude's oil.

Good luck tomorrow and Tuesday, Daxx. If you are still reading this thread, tell me the time of your biopsy and surgery, so I can pray for you at that hour. (CST or EST?)

Welcome back from your trip, Ann.
Hope it was wonderful.

Merry, I experienced similar probems with COBRA years ago, not for mammos though. Thankfully we were on it a limited time. I hope they get their act together soon.

GAGWTA!!! Hope everyone has a beautiful day. :sunny:
 
snappy said:
Good luck tomorrow and Tuesday, Daxx. If you are still reading this thread, tell me the time of your biopsy and surgery, so I can pray for you at that hour. (CST or EST?)
My biopsy appt. is at 1 pm EST tomorrow (Mon) - but w/the paperwork and all, I know I won't get in that room until 1:30! lol! Appendectomy is scheduled for 8 am EST on Tues. (the next day!). Thanks for the prayers and thoughts. They are much appreciated - more than you can imagine!

Yesterday, I decided to treat myself to a few nice goodies in light of my pending procedures. I bought a gorgeous cardigan sweater from Kohl's. The color is called "mochachino" but to me, it looks more like those Kraft caramel squares. Running down the middle of the sleeves (long), is an argyle pattern in chocolate brown and white. I have these great chocolate velvety-ish pants to wear w/the sweater. It will be perfect for school! The other sweater I bought was my " bargain of the day" -- $6.99 at Casual Corner in the outlet mall. I bought it for skiing, really, but I can wear it to work, too. It's pale pink w/a bit of a mock-neck to it. It has a pretty fair-isle pattern on the yoke. I love it and still can't believe it was $6.99! I also bought a pair of those nice "sweat pants but not sweat pants" type pants from Old Navy. Black w/draw string. You know the type. I needed something that I could wear a bit looser fitting but still be comfortable in. I figure that I will wear the pants (and a comfy top) to the hosp. and when I get out of surgery, I will just wear the outfit home, can just crash in bed in the outfit and not have to worry about changing into pj's. I have to go out today to get some fun magazines (as Linda suggested) to help me through my recovery. I'll pick up People, In Touch, In Style, etc. Any suggestions on other magazines to get?!

The crosses you described, Snappy, sound beautiful! I have a small silver-tone cross that I carry. Like your wood cross, it fits in the palm of your hand. Each student and teacher received one at Ash Wednesday mass.

GAGWTA, my friends! Have a fantastic day!

Warmly,
Susan
 
Snappy,

What a fantastic idea! My DH dabbles in woodworking and I will ask him to make one for me to give to her! I have been trying to find a medal of St. Agatha, but can't seem to locate one. The cross will be perfect!!!!!

Thank you so much for your suggestion!

pinnie
 

I will be thinking of you Susan, and say a prayer this afternoon :grouphug:

GAGWTA on this Monday morning!
 
Pinnie, I thought of a couple more things that people gave me. A good friend gave me a little breast cancer bear. He was so tiny and soft that I took him with me to my doctor's visits. It was kind of like a reminder of the support of my friends. I know a stuffed animal sounds kind of dumb, but I was so scared that it actually was quite appropriate.

I also got the most lovely pot of hand lotion. Can't remember the brand, but the proceeds went to breast cancer research.

I felt different about the plants. Flowers died and made me think of death (not that I didn't enjoy them while they were alive). Plants seemed to say that I'd be around for a while to take care of them. Funny how we all take things differently.

Magazines and books are always great, especially if you know of something she'd enjoy reading.

Don't feel like you have to do big things. Just a phone call or a note says so much! It tells her that you are thinking about her.

Susan, I've been praying. I'm hoping you're about through by now. Post when you can.
 
have you ever tried to laugh and cry at the same time?

my duaghter Becca...

her bat mitzvah was saturday. in her speech to the congregation she said shewas going to donate some of her bat mitzvah money to the American Cancer Society "so that they can find a less painful way to cure this disease."

and just as I felt the tears....she said "and I know you're crying now, mom, but stop it..."

and I just had to laugh...
 
Wow. Lessa of Pern - you raised her very well! She has a brain and a heart! You are very blessed.
 
there's a Yiddish phrase -- nachus. it means "pleasure from your child's accomplishments", but it's got a very emotional context. I had nachus from that child this weekend.
 
GAGWTA!

I need your expertise!

Went to Oncologist and he wants to put me on Tamoxifin (however, it is totally my decision)????

Went to Radiologist and she says it's up to me if I want radiation treatments or not?

(WHY is it MY decision - I'm never went to college for my PHD in carcenomas)????

If I opt for radiation it would be for 15 minutes a day, 5 days a week, 7 weeks. If not, I will have periodic follow up visits to closely monitor me.

Hmmmm? What do you all think? It will be my decision, so no-one should feel they need to hold back.
 
weigh the pro's and the con's of each type of treatment -- ask a lot of questions -- like what are the side effects, and what are the benefits. does the treatment decrease the likelyhood of a recurrence? by how much?
 
Lessa of Pern said:
weigh the pro's and the con's of each type of treatment -- ask a lot of questions -- like what are the side effects, and what are the benefits. does the treatment decrease the likelyhood of a recurrence? by how much?

Lessa - I asked.

Tamoxifin

Pro's - Can lessen the reoccurance by 17%.

Con's - Nausea, Blood Clot, Uterin Cancer

Radiation

Pro's - "insurance policy" as described by Dr. - no apparent % for derailing reoccurance.

Con's - Tissue will be different, Skin will become different to the touch. Two ribs will be affected and may/can fracture, part of lung will be exposed and will show up on x-ray but will have no ailments or problems.

Both Radialogist and Oncologist say it is up to me. I guess I am on the borderline or do not need it, but it is an option for me.
 
Laurajean1014 said:
Tamoxifin

Pro's - Can lessen the reoccurance by 17%.

Con's - Nausea, Blood Clot, Uterin Cancer

I can't help with the radiation decision. They didn't consider me for that, so I didn't ask the questions. I can tell you that I've been on Tamoxifen for 3 years. I never have had any nausea.

My doctor said that blood clots can occur, but are not common. I'm to watch for a painful lump and let them know asap. So far, no problem.

Uterine cancer is a concern, but also fairly rare. As my OBGYN put it, as long as I come for regular visits they can catch that early if it arises and "yank" it out if needed. :teeth: He says if you are pre-menopausal tamoxifen has less chance of causing problems of this sort. It's when you aren't sluffing off that lining that it CAN become a problem.

Things that you didn't mention were hot flashes, night sweats, v. dryness (don't think they'll let me say that word!), and loss of libido. I have had all of these. Am I sorry that I'm taking it? Sometimes. But I guess the good outweighs the bad. Thank God, I have an understanding husband who is willing to put up with my middle aged crazies.
 
Lessa, your daughter is a treasure. It sounds like she is very grounded and well knows her priorities. Congrats on raising her.

In addition to its role in reducing recurrences, Tamoxifen will also reduce the incidence of NEW BC (other breast or in another area of same breast).

Not sure of your age, but if you are like me, I was knocking at the door of menopause anyways, the tamoxifen just opened it. My hot flashes are even more mild now.

Arimidex is another drug that is prescribed instead of Tamoxifen. Did your doc talk any about it? I asked mine, he thought Tamoxifen was preferred in my case, severe bone loss runs in my family. I had a bone density test, and I am headed in the same direction. Arimidex hastens this condition, Tamoxifen has the opposite impact. Arimidex is also a whole lot more expensive, which is a factor in my case since I have a high deductible med insurance now.
 
Lessa, Merry and Snappy - I'm still confused.

Merry - you and I both had DCIS- Docs didn't want you to go through radia? I think that's what my doc is saying but letting me decide.
 
I too had DCIS, in two separate areas plus one small .1cm area of invasive cancer. Because of the two foci of cancer, I had to go with the mastectomy.
He was able to get wide margins though so no radiation required.

My understanding from my reading is that the standard of care with lumpectomy is to use radiation to "clean up" the area, even with wide margins. You did have a lumpectomy, right? I do think there is some disagreement among doctors though about whether radiation is alwasys needed. I wonder if there are any studies underway about this.

I have a book that I checked out of my Cancer Services library, I'll see what it has about radiation and lumpectomies.

I'll get back with you.
 
They didn't consider radiation for me because I had a mastectomy with good, clean margins. In fact, my oncologist said I could skip Tamoxifen, but she highly recommended taking it. I waited almost a year before I finally decided to begin taking it.
 
Dear Friend:

We at LBBC share the grief of all Americans and people around the world over
Hurricane Katrina. We are particularly concerned about women recently
diagnosed with breast cancer or who are in treatment but have been evacuated
from their homes or medical facilities or who cannot find treatment centers.

If you are from the hurricane-stricken area or know someone from the area
who has been evacuated and needs breast cancer surgery, please contact
Lillie Shockney at shockli@jhmi.edu at Johns Hopkins Breast Center in
Baltimore, Maryland. Johns Hopkins is accepting breast cancer surgical
patients. We also encourage you to visit the American Society of Clinical
Oncology's People Living With Cancer website at http://www.plwc.org and
click on "Help for Patients With Cancer in Hurricane-Stricken Areas." There
you will find a message board for people to communicate with healthcare
providers, details on volunteering and a list of healthcare facilities
accepting people with breast cancer. We send our love and caring to everyone
impacted by this tragedy.

*****

Just thought I would pass this on incase you know someone that needs the info.

Sorry I haven't been around but been super busy with Tulsa RACE I will let you know how our merchandise figures turned out. But, I know it will blow my mind when I get them. I did have my Dis friends on my back and in my heart. :grouphug: I only cried once. When I recognized a young ladies face, but didn't know from where. She was my DD high school chum. She is right in the middle of tx. 33 is TOO DAm Young!! It was too close to home. I put on my you can do it attitude in front of her. Hooked her up with Y-Me for support groups, parted ways, and sobbed. Please pray for Amanda. :wave2:
 
This is such an awesome forum!

It's weird....I was about the 5th person to post on this thread. I was 3 times lucky on my biopsy's....stressing the importance of monthly exams and annual mammograms.

Well, my monthly exam showed a change in a lump the docs have been watching and lo-and-behold...it showed up on a mammogram. It's only a BI-RADS 3, but with my history, they've scheduled a biopsy....this Friday.

I just wanted to post and be in good company.

Wishing all of you well....

BTW, I got teary when I read about your daughter's Bat-Mitzvah speach, Lessa of Pern....what a beautiful young lady...
 
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