DDA Chapter 22

[Tammi67]

Thanks, Tia. I'll show them the menu and see what they think. They don't have characters at dinner, correct? Just breakfast?

 

[tmfranlk]

Right, no characters. They do have a guy that comes out and plays the ukulele and sings. He also leads the kids coconut race, limbo and does a birthday/anniversary thing.

 

[tmfranlk]

Brendan went to another doctor the other day and now has another worry to add to his list. After his last colonoscopy they found that he now also has ulcerative colitis. The doctor wants him on two new medications. One of these was recommended by his liver doctor about 3 years ago, but the cost after insurance was about $200 per month. At the time, it would not have been that helpful to him in the long-run so the doctor encouraged him not to spend the money. NOW it will help and is imperative with the ulcerative colitis. Without these two medications, his chance of developing colon cancer is 70%. Should he develop colon cancer, he would automatically be ineligible for a liver transplant which will be inevitable for his cirrhosis/Primary sclerosing cholangitis. The plus side is that there are now generics of the medication plus the possibility that costs have come down in the last couple of years and he has a slightly different/better insurance. They haven't been to the pharmacy yet so we don't yet know where it will fall.

I've been rereading stuff about these diseases and his primary diagnosis normally begins in patients between 30-60 years old. Brendan just turned 25. He gets to be one of the rare ones for which it began in childhood. She never says it and tries hard not to show it, but I know that Erin is scared. She can see his memory starting to fail some and his energy slowly decrease and we all know these are signs of progression. Brendan tends to bottle things up until they explode into a glass thrown across the kitchen or a door slammed so hard it breaks off the hinges (bad lessons from a not-so-great father). I know that prayers are already said for them, but I just wanted to post the latest. Thanks everyone!

 

[tinker1bell]

6-10. A short trip, using fewer points. My plan is not to go to WDW next summer and save the points for a really nice December trip. Think I can hold out??? I'm aiming for a cruise in the summer.

The Magic Meet cruise is Thursday July 22 to Monday July 26, 2010. It is really going to be such a fun time!!!!

 

[Steffy]

Tammi, I'm really enjoying your trip report and photos. What a view!! I loved Citricous also. Thanks for sharing.

Elizabeth, so sorry about your neighboor.

I'm sure Jen is enjoying the game.

I am so tired, I think I'm going to bed early. Nite all.

 

[lovesdumbo]

Bernadette - I hope the points work out for your free airfare!

I think we have to fly something like 12 round trips before we have enough miles for a free ticket. They charge a fee to transfer miles from one account to the other, so when fares are relatively low the transfer fee is only about $50 less than the fare to buy a ticket.

Jet Blue is going to change they way do miles in the fall to "improve things for their customers...". Right now I need to fly to Orlando 6.25 times to earn a flight but miles expire after 12 months if you don't have the Amex card. That was why I got the Amex card so that I wouldn't loose the miles I earned actually flying. I have already earned 3 free RT tickets and am soooo close to this next one so I would say it has been worth the annual fee. I can buy 10 points for $50 but I don't know that it would be worth it or not. I'm just really hoping that I just squeak by.

They haven't devulged all the info yet but I bet when they make the change I will need more like 12 RTs to MCO to get a free ticket........

Anne Marie and Bernadette - I got through all of your pictures today and really enjoyed looking at them. Thanks for sharing. It seems you had some nasty weather. I only remember one late afternoon downpour that lasted for a few hours. Last year we had rain almost every day.

Compared to last year with the tropical storm, I would say we had excellent weather! We did have torential rain storms many afternoons but they were all short lived. The rain we had on Elizabeth's birthday, our last day, was the only rain we had in the afternoon-other days was around 5-6pm. It also wasn't as hot as it could have been-low 90's. It was HIGH 90's in May. It has been more uncomfortable here the past few days than it was at WDW.

Brendan went to another doctor the other day and now has another worry to add to his list. After his last colonoscopy they found that he now also has ulcerative colitis. The doctor wants him on two new medications. One of these was recommended by his liver doctor about 3 years ago, but the cost after insurance was about $200 per month. At the time, it would not have been that helpful to him in the long-run so the doctor encouraged him not to spend the money. NOW it will help and is imperative with the ulcerative colitis. Without these two medications, his chance of developing colon cancer is 70%. Should he develop colon cancer, he would automatically be ineligible for a liver transplant which will be inevitable for his cirrhosis/Primary sclerosing cholangitis. The plus side is that there are now generics of the medication plus the possibility that costs have come down in the last couple of years and he has a slightly different/better insurance. They haven't been to the pharmacy yet so we don't yet know where it will fall.

I've been rereading stuff about these diseases and his primary diagnosis normally begins in patients between 30-60 years old. Brendan just turned 25. He gets to be one of the rare ones for which it began in childhood. She never says it and tries hard not to show it, but I know that Erin is scared. She can see his memory starting to fail some and his energy slowly decrease and we all know these are signs of progression. Brendan tends to bottle things up until they explode into a glass thrown across the kitchen or a door slammed so hard it breaks off the hinges (bad lessons from a not-so-great father). I know that prayers are already said for them, but I just wanted to post the latest. Thanks everyone!

Continued prayers for Brendan and Erin.

Hope the medicine he needs is much more afordable now!

 

[MrsHeg]

Happy Birthday to Riley and Laura, congrats on the permit!

Well here's our first attempt at decorating with fondant, Brandon requested a Mario Party,

 

[tinknme]

Debbie what a cute cake!

Tia prayers for Brendon & Erin

Elizabeth sorry to hear about your neighbor.

Tammi Ohana is one of our favorite places to eat dinner. The 1st time we went Riley enjoyed joining in with the coconut races & doing the limbo. Of course now he feels like he is to old for that

 

[tmfranlk]

Debbie - I love the cake! Terra thinks it is really great!

 

[bear74]

Beth and Janet - Happy birthday to both your kiddos!

I just booked our flight down for January and it only cost me $28!!!! Well, not really since I had a credit for the SWA flights I canceled. But still, those had already been paid for so I'm only out a few dollars more. Now I need to wait for SWA to release the rest of the Jan. dates so I can book our return flight.

Hi Glynis.

sweet

Congratulations! to Lauren on getting her permit

Debbie - I love the cake! Terra thinks it is really great!

ditto

 

[Blueeyes101817]

I'm sure Jen is enjoying the game.

You know me well : It was AMAZING!!!! i had so much fun and we took a ton of pictures. it was great. Our seats are awesome and the cowboys won, so its a good day here !! uploading my pictures now

 

[Blueeyes101817]

Well here's our first attempt at decorating with fondant, Brandon requested a Mario Party,

It looks great!!

 

[Blueeyes101817]

Morning everyone!

 

[Mommy2EmMoLu]

Janet- Happy Birthday to Riley!! I hope he heals quickly.

Beth- Happy Sweet 16 to Laura!! Congrats on her gettting her learner's permit!

Elin- Enjoy Kathrin's visit!!! Sorry about the spat, but glad it's all behind you.

Debbie- I hope Brandon has a spectacular birthday!

Tammi- Loving the trip report!

Glynis- for date night!!! I hope you enjoy the movie.

Anne Marie- DisneyLand!!! Hope it works out for you all!!!

I know I've missed lots more...please forgive me!! 's & all around.

Things are crazy here...my niece is acting out a bit more each day. I am sure it's a testing the boundaries thing but it's exhausting. My nephew, however, is a complete doll. So much personality. My mom, dad and sister have been over here pretty much every day. Drives me crazy...just too many people in my space, my house doesn't feel like my house. Once my sister gets her new apartment set up and CPS inspects it the kids will be going back with her. No one believes that she has gotten it together that quickly but we can't keep them and if we pursue custody then we involve my niece's father (and that brings on a whole new set of issues). So basically we hope and pray that she can do the right thing and if things change then we'll do it over again. But until then, I need to regain my house and get my kids settled into a routine.

My SIL and her family arrive back in the states today. The girls are beyond excited as they will be stationed in Northern VA. Hopefully, they won't be too close for comfort.

 

[Mommy2EmMoLu]

Tia- Lots of good wishes and for Brendan & Erin.

Jen- on a fabulous time at the game! Great pics!!!

Elizabeth- Wow, sorry about your neighbor.

Bernadette- I hope the points come through for you.

Debbie- Fabulous cake!!!

 

[tinknme]

Robyn I hope you can get some order back into your home. Continued prayers for your niece & nephew

Thanks for all the birthday wishes for Riley. My baby is 13 today

He is slowly healing, walking is still a little slow for him & his mouth is still swollen some. I talked to the Dr. & if needed he will write me a note to let Riley out of gym. We will see how he is doing Monday.

My toe is doing better, still tender & purple lol

 

[tinknme]

Good morning

 

[jackskellingtonsgirl]

Tia- Lots of good wishes and for Brendan & Erin.

Jen- on a fabulous time at the game! Great pics!!!

Elizabeth- Wow, sorry about your neighbor.

Bernadette- I hope the points come through for you.

Debbie- Fabulous cake!!!

What a handy ditto!

Robyn- I hope you are able to get things back on track soon!

Debbie - That cake looks TERRIFIC!! Happy, happy birthday to Brandon! I know he will have a wonderful time at his party!

We have to finish emptying out the suitcases today. Blah.
I think I am down to the last 2 days of pics, so I should finish my trip report in between loads of laundry. That's about it for our weekend!

 

[Steffy]

Happy Birthday to Riley and Laura, congrats on the permit!

Well here's our first attempt at decorating with fondant, Brandon requested a Mario Party,

And this is your first attempt???

Needless to say, it is gorgeous!! Happy Birthday Brandon!!!!

Happy Birthday Riley and Laura!

Tia.

 

[Steffy]

You know me well : It was AMAZING!!!! i had so much fun and we took a ton of pictures. it was great. Our seats are awesome and the cowboys won, so its a good day here !! uploading my pictures now

I am so happy for you. It was a good game, what I saw until I fell asleep. But I knew they were going to win.