MeeskaMomma
DIS Veteran
- Joined
- Apr 27, 2013
- Messages
- 753
Hello all,
I know this is very early, but I just finished my trip report from our May 2013 trip
A pinch of pixie dust + pinch of OCD = a fun trip for all!
and to fill the void that has left, decided to start this PTR. It is my first PTR so be nice. I love doing crafts, collecting strange data, and making spreadsheets, so you can expect to find all these wonderful things pop up on this report over the next 11 months. I am also still very much a Disney newbie so I would love suggestions and input.
Let's meet the cast. First there is me, Kate, formally a finance director for a non-profit, now a stay at home mom. Let's be honest, I'm a grown up geek. I love data, useless information, trivia. I constantly over prepare and crowds as well as most social situations scare me. Luckily I am married to another grown up geek, who I will refer to here as Mr. Incredible, works as an engineer by day, super dad by night. His social anxiety makes me look like an outgoing person, so we mostly stick to our little family of 3. Let's not be too misleading we do have friends. I am actually quite active in the community. My son and I do lots of mommy and me classes, story time at the library, and a number of playgroups. If you looked at my weekly schedule you would never guess I actually much prefer to hide inside and reorganize the pantry for the gagillionth time. I am adaptable like that. Mr. Incredible attends the necessary work related social functions, and was just invited to join the board of a non-profit, but other than that we really do like to spend our weekends playing at home.
Let's not forget the center of our lives. Our soon to be 3 year old who I will refer to here as "Goose" (short for silly goose
).
Is that not the most adorable little boy! Goose has definitely inherited some of our quirkiness. He is a strangely orderly toddler and loves to sort and line up his toys. Right now his favorite things are cars, planes, trains, robots and letters. He didn't really know who Mickey was until our trip in May but has recently become quite attached to all things Mickey. His favorite movies are Cars, Finding Nemo and the Sound of Music. He is also rather obsessed with Dinosaur Train but how could you not be, it has dinosaurs and trains.
Aphakia awareness time As I post pictures of Goose, 3 things may stand out, he wears glasses, dark sunglasses and sometimes has an eye patch. At 6 months, after we noticed one of his eyes was not tracking well, 2 cataracts were found in his left eye. Pediatric cataracts are extremely rare, sometimes they are genetic, sometimes they are caused by other serious metabolic disorders, and sometimes there is no explanation. After lots of testing it was determined Goose falls in the last category. It is a lot harder to treat pediatric cataracts because the vision is still developing. Goose has had multiple surgeries and will need at least two more. With the help of a high powered contact lens and his glasses Goose can see pretty well. He is still too young to get a clear idea of just what his vision is, but he gets around just fine! Aphakia is the technical term for his condition. Aphakics have some interesting traits. Since they don't have a lens they can actually see into the uv spectrum, this also makes them very light sensitive. The vision of aphakics can range from almost normal, to legally blind. There are bilateral aphakics where both eyes are affected and unilateral aphakics like Goose where only one eye is effected. Oh and if you are like me you may think, but he has the one good eye! Apparently this creates a whole other set of challenges, since the brain is getting two different images it cannot reconcile. Luckily had some great doctors and we are very optimistic about his vision. I have read a lot of the make a wish stories on here and my heart just aches for those parents. We have really been blessed that Goose's struggles have been so treatable and non-life threatening.
The Where: AoA, cars
I will leave you there for now. This will most likely be my most long winded post. I hope you follow along, and help me with my trip!
I know this is very early, but I just finished my trip report from our May 2013 trip
A pinch of pixie dust + pinch of OCD = a fun trip for all!
and to fill the void that has left, decided to start this PTR. It is my first PTR so be nice. I love doing crafts, collecting strange data, and making spreadsheets, so you can expect to find all these wonderful things pop up on this report over the next 11 months. I am also still very much a Disney newbie so I would love suggestions and input.
Let's meet the cast. First there is me, Kate, formally a finance director for a non-profit, now a stay at home mom. Let's be honest, I'm a grown up geek. I love data, useless information, trivia. I constantly over prepare and crowds as well as most social situations scare me. Luckily I am married to another grown up geek, who I will refer to here as Mr. Incredible, works as an engineer by day, super dad by night. His social anxiety makes me look like an outgoing person, so we mostly stick to our little family of 3. Let's not be too misleading we do have friends. I am actually quite active in the community. My son and I do lots of mommy and me classes, story time at the library, and a number of playgroups. If you looked at my weekly schedule you would never guess I actually much prefer to hide inside and reorganize the pantry for the gagillionth time. I am adaptable like that. Mr. Incredible attends the necessary work related social functions, and was just invited to join the board of a non-profit, but other than that we really do like to spend our weekends playing at home.
Let's not forget the center of our lives. Our soon to be 3 year old who I will refer to here as "Goose" (short for silly goose
).
Is that not the most adorable little boy! Goose has definitely inherited some of our quirkiness. He is a strangely orderly toddler and loves to sort and line up his toys. Right now his favorite things are cars, planes, trains, robots and letters. He didn't really know who Mickey was until our trip in May but has recently become quite attached to all things Mickey. His favorite movies are Cars, Finding Nemo and the Sound of Music. He is also rather obsessed with Dinosaur Train but how could you not be, it has dinosaurs and trains.
Aphakia awareness time
As I post pictures of Goose, 3 things may stand out, he wears glasses, dark sunglasses and sometimes has an eye patch. At 6 months, after we noticed one of his eyes was not tracking well, 2 cataracts were found in his left eye. Pediatric cataracts are extremely rare, sometimes they are genetic, sometimes they are caused by other serious metabolic disorders, and sometimes there is no explanation. After lots of testing it was determined Goose falls in the last category. It is a lot harder to treat pediatric cataracts because the vision is still developing. Goose has had multiple surgeries and will need at least two more. With the help of a high powered contact lens and his glasses Goose can see pretty well. He is still too young to get a clear idea of just what his vision is, but he gets around just fine! Aphakia is the technical term for his condition. Aphakics have some interesting traits. Since they don't have a lens they can actually see into the uv spectrum, this also makes them very light sensitive. The vision of aphakics can range from almost normal, to legally blind. There are bilateral aphakics where both eyes are affected and unilateral aphakics like Goose where only one eye is effected. Oh and if you are like me you may think, but he has the one good eye! Apparently this creates a whole other set of challenges, since the brain is getting two different images it cannot reconcile. Luckily had some great doctors and we are very optimistic about his vision. I have read a lot of the make a wish stories on here and my heart just aches for those parents. We have really been blessed that Goose's struggles have been so treatable and non-life threatening. The Where: AoA, cars
I will leave you there for now. This will most likely be my most long winded post. I hope you follow along, and help me with my trip!
