Colestmy / urine stoma

Discussion in 'Coping and Compassion' started by Minnie Mouse2789, Apr 1, 2017.

  1. Minnie Mouse2789

    Minnie Mouse2789 Earning My Ears

    Joined:
    Feb 6, 2017
    Messages:
    27
    I have CP and am considering this method instead of adult diapers. What can people tell me?
     
  2. Tozzie

    Tozzie DIS Veteran

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    Jun 21, 2008
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    3,929
    Post this on the Disabilities board I think you will get better info over there
     
  3. leebee

    leebee DIS Veteran

    Joined:
    Sep 14, 1999
    Messages:
    8,215
    My sister, who is 51, has CP. When she was 30 she had colon cancer and has had a colostomy since that time. Because of her limited mobility and spasticity, it took her a long while to adjust to being able to manage the equipment, emptying, etc., but she knew she didn't want to use adult diapers. I think some things to consider are how is the spasticity/flexibility in your hands/arms, how is your balance on your feet, etc. If you use a wheelchair, I think you'd need to consider how close you can get your chair to sinks, toilets, etc. while out in public as well as at home. Although she originally thought she'd want to use irrigation as a method of managing the colostomy, it turned out that she didn't have the mobility to manage this and just ended up making big messes (yes, we can laugh about it... what is the other option, right?). Good luck... surely this isn't an easy decision.

    (She has full use of her urinary system, so no advice there.)
     

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