Can anyone share occupational therapy success stories?

Maggie'sMom

DIS Veteran
Joined
Feb 26, 2008
Messages
7,840
DD was diagnosed bipolar in February 2009. At the time, some sensory issues were noted, but we were so focused on the mood disorder that I didn't pursue OT at the time. We've been treating the moods, but problems are persisting. We had a MFE performed and the OT from the school district hit on a bunch of sensory issues that were impacting DD's ability to function in the classroom. I contacted a couple highly recommended OT practices and after a few months on waitlists, we finally got an opening. We went for the evaluation last week and will start therapy this coming week.

I am really hopeful this will make a difference in DD's ability to cope with life. Can anyone share their experiences with OT and how it helped their child?

TIA!
 
We had 2 therapists that helped a lot, one was speech and she helped with pragmatics (non logical constructs of speech) and an OT who was amazing. DS was sensry defensive to fine input (especially to stickey), low musch tone and low fine motor dexterity. Within 15 month she had all of these in the lower end of the typical level. She had been a school teacher and quit out of frustration of all the kids who had sensory issues that were interfering with their education and became an OT. Seh had a uncanny ability to read needs and how far to puch at any moment of day adn still keep it "fun"

If yo have a great one you will be amazed at the progress (and how much it lowers anxiety).

bookwormde
 
Thanks for sharing your experience. The OT practice we got into is the most highly regarded pediatric OT practice in our area.

I don't have the full report from the OT yet. I should get that tomorrow, but she emailed that from the evaluation she's noted that Maggie has has difficulty filtering, prioritizing, and integrating sensory information. She also has trouble coming up with ideas about what to do, planning actions, and carrying them out. From what I saw at the evaluation, I think the therapist working with DD will be really wonderful. She had that ability you noted to read DD's needs and to know how far to push her. There were a few times I thought DD was about to give up and the therapist was able to quickly switch things up to keep her motivated to go on.

I really do hope it helps with DD's anxiety levels. There are times when I think her anxieties are the most difficult part to deal with, even moreso than the mood swings.
 
It is important to remember that OT for children with spectrum characteritics and for typical genetics which sharing many of the same mechanisms, requier entirely different "styles", so I hope you have found a clinical group that can match your childs style, if you have the benefits to your child can be amazing, and you will know very quickly.

bookwormde
 
My dd has been in OT for two years now. One hour per week. This has been the most important part of dd's therapy, in my opinion. Some weeks it seems as if they don't do much, but the OT really gives me pointers on what to do at home. At the appt, dd does many different things. They start every appt with swinging. When dd started OT, her sensory profile included extreme proprioceptive disturbance as well as vestibular problems, on top of fine motor issues and poor muscle tone, poor tracking and other motor issues. While she still has these issues, they are greatly improved. When dd started OT two years ago she would swing on the swing and never became dizzy (underresponsive Vestibular processing). She now has better vestibular processing. DD has modulation issues that have been hard to address-she can be underresponsive sometimes and overresponsive other times. The OT works hard to develop appropriate sensory modulation. This happens through controlled sensory exposure over time. DD does still have over and under responsiveness but things have gotten much better. When she started she could not tap out a beat with her fingers, now they are working on tandem (two hands in sync) tapping and dd is doing quite well.

In your post you talked about planning and carrying out...I believe this is the proprioceptive piece. They have trouble with their body in relation to other things, like the floor they're walking on, the paper they're trying to write on, the door they try to shut, etc, etc. It takes a long time to modulate and correct the problems, but for us, these corrections have been so worthwhile.

Also, we began the Wilbarger Brushing Protocol, and this helped dd with her modulation issues. She will now ask to be brushed. I don't know why it works but it does, giving stimulation to the sensory system, much like Temple Grandin's squeeze machine. Sensory stimulation can be very comforting, calming, and helps re-set the over functioning sensory responsiveness (this is why so many of these kids self stim, I believe).

Another area where dd has had tremendous help is in fine motor skills. When she started OT, at almost age 5 she could not trace a circle nor cut with scissors. She is almost on grade level now and while she will probably have handwriting issues (due to the fine motor and proprioceptive issues) she is doing quite well. Our OT put DD through Handwriting Without Tears, which was a very good program.

I also have a dd with overwhelming anxiety issues. While OT has helped with them somewhat, I am finding for my dd, the anxiety is just as much social confusion and lack of understanding of what's going on around her as much as the sensory piece. While we have done quite well addressing the sensory piece, the social anxiety, emotional volatility and poor affect regulation are what I am needing to deal with now that the sensory piece is being addressed. So I am bringing this up just to relay that treating the sensory piece does not by itself cure the anxiety, there is still a need to teach age appropriate coping mechanisms and social skills. Only time will be able to develop my dd's ability to understand the proper give and take of interacting with peers without leaving her feeling overwhelmed.

Good luck.
 



New Posts










Save Up to 30% on Rooms at Walt Disney World!

Save up to 30% on rooms at select Disney Resorts Collection hotels when you stay 5 consecutive nights or longer in late summer and early fall. Plus, enjoy other savings for shorter stays.This offer is valid for stays most nights from August 1 to October 11, 2025.
CLICK HERE









DIS Facebook DIS youtube DIS Instagram DIS Pinterest

Back
Top