Behavior Challenge Thread

[mechurchlady]

I cannot get the wheelchair fixed, no scooter probably, Yamabuki is closing, my wrist hurts, and I am overwhelmed again. I am getting teary eyed and probably need a nap. At least it is burgers and that is easy. I need her chair fixed and cannot get help. I need a scooter. I need to loose weight. I need to heal from another reaction alst week maybe.

I need a hug and want t my dole whip and chocolates and a gorn dog and criss cross fries. I will say that 15 doles whips in a long day would be about right.

hgus and chocolates
Laurie

 

[pudge the fish]

Laurie,
here are a few Virtual hugs, dole whips & Chocolate

and

(pretend this is a chocolate cake- couldn't find a smilie for chocolate

This is so everything gets fixed

: pretend this is a dole whip

we'll say this is a virtual corn dog and waffle fries

I really need to find better smilies-
Remember virtual dole whips and chocolate have NO calories

Becky- I remember one time I went to a diabetic seminar and all the people there wanted to do was SELL us stuff that really wasn't all that great-
it seems everyone is an expert and wants to make everyone think they are an expert and make expert money.

Confession time: I forgot to add that I have NEVER ,EVER, NEVER in all my Disney trips have had a Dole whip

 

[DisDreaminMom]

Pudge the Fish, get thee to WDW ASAP and get a Dole Whip so you can relate to us on a deeper level. Full Disclosure: My first one was this last December and now I'm hooked.

Mechurchlady, one thing at a time to fix, OK? The more you beat yourself up about the cravings, the more you eat bad stuff. Why not try this: Eat like you should for two days. Then the third day, eat what you want. Then eat right for three days, then a break. Get it up to six days "healthy" and one day of just total brain numbing eating whatever you want. (or if you are having an "I have to have it to get through the day" moment, then eat it and forget about it-clean the slate). Your body won't think you are starving and you just might stop craving all that food that you are allergic to. It's exactly the same mechanism as alcoholism, those food allergies are. Scientists now tell us that "bad" foods are now made to cause you to crave them, so take it easy on yourself and stop beating yourself up for something that is not that easy to control.

Becky- I detest Pepto Bismol. I would rather have my esophagus be consumed in a burning bath of stomach acid before I would drink that foul stuff. I'm a Pepcid AC girl, myself. As long as I don't try to bend down or tie my shoes, the pineapple won't make me get an upset tummy.

Oh, saw Monsters vs. Aliens today. While I hate Jeffery Katezenburg and all things Dreamworks animation-Geffen is a jerk, too; the kids wanted to see it. Don't waste your hard earned money on the 3-D tickets (unless your money is soft-earned) because the effects weren't anything amazing but the movie was funny with a clever script. It got a tad slow in some spots, but altogether made me laugh out loud in more than a few places. I guess the 3-D is worth it if you have a squirmy ASD kid, but nothing came out of the screen at you or anything fun like that (not like Philharmagic, my all time favorite stuff-coming-out-of-the-screen-movie).

It's officially Spring Break. Going to rain for 3 days straight. Let's seehow sane I am in a few more days. I might take Mechurchlady up on her trade offer by then. I hope she likes pugs.

 

[C&G'sMama]

DS made it through his first Kids Night Out at the Y. We had to tell him several times that "No, you can't go in the girls room with sister" "It's not Fair, the boys room stinks" (he's right) He's used to going in the ladies locker room with me and had only been in the men's locker room 1 time. He said the ladies room was bigger and has better bathrooms. I told him when he turns 6 he can't go in the ladies room anymore (Y policy, and they have a family changing area, but no showers or bathroom) He didn't drown as was sister's fear.

He was mad because nobody wanted to play with him. Well, that's because he won't play unless he can choose what to play. We're working on that one. Kids get ticked off at him because he tries to force them into doing what he wants and then has a fit when they don't do it. But the program director said he was fine so we'll try again in a few weeks. That's another one of those worry points. He still hasn't found that 1 friend. He doesn't really have any. He's only 5, but when he's 10 will I be saying the same thing? I don't know. That's what worriesome, we don't know what the future holds. Bookwormde, you help and Save a Quarter, you help and we have a friend with a 30 something sone with Asperger's who's married with 2 kids and is an attorney. But right now I don't see that for him. I hold onto hope but I don't know.

 

[BeckyScott]

I understand what you're saying.

DS's birthday is next weekend. I am trying to throw together something really quick, as it sort of snuck up on me.

I had two options. Either invite his whole class but do it at the park so I don't have to have all those rugrats in the house. Where no doubt they will touch something they shouldn't like the iCoaster. And our house is pretty small.

Or invite just a few kids and some family members.

Except the weather has been so wacky lately, shorts last week, and it was supposed to snow last night! So maybe the park isn't a good plan and we should do the smaller house party.

I asked DS if there were kids at school he wanted to invite to his party. His answer was what I thought- he has one friend, his "girlfriend". (she's been his girlfriend for about two years now) She also, not coincidentally, is one of the other kids that share the para. Not autism, I'm pretty sure LD, but she's a sweet girl and the luv is mutual. He said he didn't want to invite any of the boys because they pick on him in the bathroom. (first time I'd heard anything about that)

Aside from this one girl, and I really hope she'll come over, I am piecing together children to show up. Oldest DS's friend. (he only really has one too) A couple of nephews. My best friend who has two kids. It's hard, trying to come up with a guest list when there's not much to pick from. At least doing it at the house I don't need to come up with many kids, because I am at a loss as to invite.



Part Two:

So I was reading Family Fun yesterday and there was a blurb for this computer game- http://www.amazon.com/Viva-Media-00408-Crazy-Machines/dp/B0016A7B8C. (please note: it does require a souped-up computer, but there is a Crazy Machines 1 that apparantly does not) DS saw me on the computer and said we should see if there was a demo online, which there is. Started to download the demo, and got to the screen where you have to "pick your language" and had country flags. But there wasn't a US flag. I clicked on what I swear was the UK flag. I guess not. The game downloaded, took forever, and when it started up I had downloaded it in Swedish. At least I think it's Swedish. We sort of figured out some words well enough to finish the install and get the game started. Anyway, for you lovers of the Rube Goldberg machines, I thought I'd swing you that link. I think we are going to buy DS the first version, as our computer isn't that good.

 

[C&G'sMama]

You know maybe we should get our kids working on a "tele-transport" project so we could all get together once a week.

We struggle with the birthday thing too. DD has many friends. For her 6th birthday we had 2 parties, one had home with her school friends and one at the zoo with her neighborhood friends. This year she gets to pick 2 friends for a sleepover and "night on the town" (movie and Friendly's) We wanted to take the girls to a nice restaurant, she wants Friendly's. I will also take her and her 2 best friends, twin boys from the neighborhood out.

Then there is DS. We are going to be at WDW for his birthday. Quite frankly that's part of why we picked the week we are going. We'll make a huge deal out of his birthday there. There is one girl from pre-k and we are friends with her parents so we may take the two of them to Chuck E. Cheese. Or we'll do a little get together with a few kids from the neighborhood.

 

[mechurchlady]

That is it I am hurting because of that sunken bed and come back to find some slackers. First of to hit C&G'sMama 50 times with a limp noodle. Snap out of it girl and give him time. Think about other kids who cannot even go to school because they are to deep into the spectrum to be helped. He may seem bad but think about how bad he was and could have been if not for his special momma.

You need to find some people and explain to their kids that your son has to play a certain way. That in time he will learn to take turns. That at times you and his friends will push him a bit like making him take turns and not always setting the rules.

Becky gets 10 hugs and a new coffee pot. Go with family and some friends unless you can get the whole school to show up for a pot luck or what ever. At home he can hide in his room if he feels like a melt down

BIG HGUS
Laurie


I stuff my face with food because of sensory issues. I love the feel of full but not too full as it is sensory. If you have a kid with sensory issues then you have to watch that. I never could understand me stuffing my face constantly even with onion sandwiches. Watch for salt, sugar, spices as for me the best part is the super salty, spicy, lemony, or garlicky dust just thrills me and is another sensory issue.

 

[C&G'sMama]

That is it I am hurting because of that sunken bed and come back to find some slackers. First of to hit C&G'sMama 50 times with a limp noodle. Snap out of it girl and give him time. Think about other kids who cannot even go to school because they are to deep into the spectrum to be helped. He may seem bad but think about how bad he was and could have been if not for his special momma.

You need to find some people and explain to their kids that your son has to play a certain way. That in time he will learn to take turns. That at times you and his friends will push him a bit like making him take turns and not always setting the rules.

Becky gets 10 hugs and a new coffee pot. Go with family and some friends unless you can get the whole school to show up for a pot luck or what ever. At home he can hide in his room if he feels like a melt down

BIG HGUS
Laurie


I stuff my face with food because of sensory issues. I love the feel of full but not too full as it is sensory. If you have a kid with sensory issues then you have to watch that. I never could understand me stuffing my face constantly even with onion sandwiches. Watch for salt, sugar, spices as for me the best part is the super salty, spicy, lemony, or garlicky dust just thrills me and is another sensory issue.

Oww, that noodle hurt
Hey lady, I can't help it, I have my own neurosis (sp), seriously. I'm a born worry wart. If koolaid moms is 5 minutes late from something, I automatically assume the worst. But, yes, I need to work on the not projecting. As for the stuffing issue. That definitely is an issue for DS and we try to be very careful with him. We know it's a sensory thing.

Dole Whips to you
I also must confess I've never had one, but I'm meeting up with another DISer and will be having one then (5 weeks from yesterday actually), as will the kids. I've been told to get the float. DP will have chocolate ice cream or something from another kiosk.

 

[mechurchlady]

Oww, that noodle hurt
Hey lady, I can't help it, I have my own neurosis (sp), seriously. I'm a born worry wart. If koolaid moms is 5 minutes late from something, I automatically assume the worst. But, yes, I need to work on the not projecting. As for the stuffing issue. That definitely is an issue for DS and we try to be very careful with him. We know it's a sensory thing.

Dole Whips to you
I also must confess I've never had one, but I'm meeting up with another DISer and will be having one then (5 weeks from yesterday actually), as will the kids. I've been told to get the float. DP will have chocolate ice cream or something from another kiosk.

I am going to Yamabuki next week to try them as they close on the 11 of April.

The apple does not fall far from the tree.
The apple changes into a seedling that becomes a tree.
That tree then bears fruit.
An apple falls near that tree.

I am going crazy because I am like my mom so much and she like her mom, even looks like her. Time to realize that you may genetically carry some NV in you just as the sickle cell anemia carrier has illnesses related to the genes he carries.

Group hugs and lots of chocolates and dole whips.
Laurie

 

[mechurchlady]

I had to pay $149 and it is in the mail, a wheelchair for mom. That is what she wants and gets. Every time I get ahead then we are in the hole deeper. I jsut do not know how to pay off this months whole Visa bill. That was our eating out money so I guess no April meet and greets and one time with Calvin out. I can do the parks for about $20 or even less a day but not with mom or him.

I cannot afford this but then again I should not have gone with the Divas this month as that cost me over $400. I need so much but went with them because I hoped to belong. I do not think I belong anywhere but here.

The bad things about meing SID is that I can read people too often and see when I am shunned or others are shunned. I am not good at social skills but reading is pretty good. I can sense when you post 20 times and nobody responds but they will respond to booze and stuff.

I hurt so bad and need to get that bed in here. The pain is from the bed being so low down below the desk that the mouse is shoulder height. I had bread for midnight snack so even though it is gluten free I react to the eggs in it or is it dairy. I need to rest and then play some games but the games are what are hurting because of the mouse.

Wow I should give you all apple tarts since there are so many apples falling from trees, lol.
Laurie

 

[C&G'sMama]

Time to realize that you may genetically carry some NV in you just as the sickle cell anemia carrier has illnesses related to the genes he carries.

Trust me, I'm absolutely aware of this. I have a "married in" relative who is an autism Education Specialist and works for her State's DOE. She said if she ever goes for her PhD she wants to do a study on our family, really. As my siblings and I were all born in the 40's through the 60's (my mom was 46 when I was born) none of us were diagnosed with any thing. I have one nephew my DD's age who diagnosed with some processing disorder (I can't remember the specifics). We have a couple of others that should be diagnosed but their parents don't see the problems. (or refuse to acknowledge there are any).

I'll pray for your wheelchair and scooter.

 

[BeckyScott]

When I did oldest DS's family history about a month ago, I was surprised by the lack of "issues" in the family. There are a couple of medical things (like diabetes) that popped up, but what I think is really going on is that either people weren't diagnosed or people are in denial. I mean, there is some 2nd cousin twice removed (or some other nonsense) that I was told that they didn't have any mental health issues, and then told that they committed suicide. Okay, people, seriously. How am I supposed to give an accurate report? Then some cousin who, allegedly, a couple of generations back who had "something" wrong with him, then to be told by another relative that it wasn't a cousin, it was the next-door neighbor. HUH? What?

It's hard because we are so "out there" with DS's diagnosis. I believe that the people who were helping me with the family history were trying their best, but I think that they either weren't told things or don't really understand the whole concept. I think it's entirely possible that if I went back a generation, you know how it used to be fairly common for special needs to just be sent away to a home and never discussed again? Sort of RainMan-ish? I just have to wonder if that didn't happen at some point and nobody even knows about it.

 

[Brightsy]

My family has a history of sorts.
ADHD and dyselxia runs in my family. My paternal parent is dyslexic and adhd (undiagnosed for the latter).I have both. I gave up a child 19 yrs. ago and found out he has ADHD and dyslexia. My 9yr. son has ADHD and my youngest (7) has autism. Looking back on things there may be a person or three on both my side of the family and my DHs that today might very well be placed on the spectrum. If that isn't an argument for a genetic link I dunno what is.

 

[mechurchlady]

Hugs everyone and hands out apple tarts.

My whole maternal family has quirks it seems. The wheelchair should go out today. Crying and cold but my wrist is better. I need a higher and real bed soon. It is one thing after another. I just would like once for someone to hand me $5000 to catch up and have the things I need.\

I wish we could all meet and commiserate together. So many broken lives and we spend so much time fighting for normalcy and things we should not have to fight for. Government does not care and I gave up on church long ago. I may get banned again from another site. Does it ever let up.

I send you big hugs and lots of apple cider and apple tarts with lots of ice cream. Thanks for being there and helping me to slowly change things. Today I finally after a week brought in the laundry. Slowly inch by inch I do things but the SID is so bad lately and depression is not good either. I need a new mom, any volunteers. No diaper changing but midnight feeding is mandatory preferably chocolates.

hgus
Laurie

 

[DisDreaminMom]

Mechurchlady, lot's of chocolates and even more

House full of kids for the next three days.

DS spent the night at his cousin's house. Next door neighbor's 9 year old son was very nasty to DS according to DD. ("He's an idiot. He's retarded. I bet he doesn't even know his own name...") Guess what his mother's job is? Anyone? How about this: Autism Specialist!

I swear. I just don't get it.

 

[C&G'sMama]

Mechurchlady, lot's of chocolates and even more

House full of kids for the next three days.

DS spent the night at his cousin's house. Next door neighbor's 9 year old son was very nasty to DS according to DD. ("He's an idiot. He's retarded. I bet he doesn't even know his own name...") Guess what his mother's job is? Anyone? How about this: Autism Specialist!

I swear. I just don't get it.

Ugghh... Was his mom around to hear this? Man, that makes me nuts. Oh well... when your kid is in France, he'll be in reform school.

Is your son aware of this or is he oblivious? Mine is pretty oblivious, but I don't know if he'll always be.

 

[mechurchlady]

Big step for me was washing my hair. It is hard when washing is the garage but it is clean as is my face and shoulders. I would like to take a real bath all at once. Someday my tub will come for me.

I would set on that kid's mother and give her a lecture on bullying and its effect on kids in general.

I send you all big hugs and remind you that you all are special. Someday you may find out that you saved a life, changed a life, or did something that made people feel spcial. When it is dark for me people remind me of my goodness but I will never know the true impact I have on othrs.

Go forth and shine your light, your heart light, and spread your love and goodness around the world.

I am staying as you know I threaten a lot a is typical hypersensitive me.

I WANT BAVARIA BACK.

SUE DO SOME MAGIC PLEASE.

hugs and dole whips
Laurie

 

[DisDreaminMom]

Quickly, I will say, no his mother wasn't around. Also, DS is fairly oblivious but God help those bullies when DS becomes aware. At 6, he's bigger than the 9 year olds. He is so darn positive and nice, he just doesn't get it, though I know he is starting to register what they are saying. He just doesn't like to talk about it.

I did tell DD and DS that those type of kids will be in reform school someday. I was telling my mom yesterday that I was a nice kid, too until the bully girls at my school were vicious to me as a child. All I wanted to do was play horses at recess with my best friend (we're still best friends to this day, and we both have a barn full of horses.LOL) Anyway, the meanest bullies ended up with drug problems and one blew her brains out at age 19. I wasn't THAT sad when I heard.

How do you teach a sweet ASD kid the art of the snarky comeback? I learned it and now I am just so able to be really MEAN. I'm not really that mean, I guess just defensive. Since I can't teach these other kids empathy, which is the REAL problem, I have to teach my kid to have a deflector shield. Does anyone watch The Big Bang Theory? The character Penny was talking about that on the last episode and I thought, "Where will DS's hot protective chick be when he grows up?"

Funny, when my nephew is at my house and not near his parents, he is the sweetest child. When they come around, he's a basket case. We are total opposite parents. I am constantly after my kids to behave, be polite, be respectful, be responsible. My sister lets hers do anything and makes so many excuses for bad behavior until she's embarrassed. But it's funny how good they are around me. Strange.

Ladies, have a great day. Sending Mechurchlady a jacuzzi to soak in with bubbles for her SID.

 

[BeckyScott]

So DS is sick. But you know he doesn't get sick like other kids get sick.

Saturday he was running a fever but you'd never know anything was wrong at all. Acting perfectly normal.

Sunday he was a potato all day, so we knew something was wrong. Fever would come and go, and he was coughing.

Monday we called to get him into the dr. Fever, red throat, ear infection, slight wheeze, cough. Left with a script for Zythromax and a half dozen steroid pills if it didn't clear up in a few days. Since he was running a fever, no school that day.

Yesterday he was acting better, and usually for him the Zythromax works great. However, I think we have a problem, I think he's building up an immunity to it, because it isn't working as well as normal. (there's a whole 'nother discussion to be had about antibiotics and his intestinal flora) So we send him off to school, and in about an hour the nurse calls. Fever. Bye-bye.

Yesterday afternoon he was sitting up watching tv, not quite as perky as normal but not bad. My friend came over yesterday and he perked right up because he wanted to play with her iPhone. However, he wasn't in the mood to eat very much. By yesterday evening he was acting kinda iffy, and the cough is a real problem. It's a dry cough, but it's almost continuous. By bedtime, he had so many meds in him I was a little concerned. Albuterol inhaler, Pulmicort inhaler, Robatussin, Motrin, Singulair... I don't like doing that at all.

This morning, so far, he seems to be acting normal except for the cough, which is a bit better but still there. We will have to take his temp, and I don't know if we send him today or not, I guess we see what the next hour holds.

He really doesn't get sick that often. I mean, he has asthma and eczema and those are problems, but regular sick-sick not very often. His immune system is so bizarre. It's messed up but in a wierd way.

 

[bookwormde]

There has been a set of relatively nasty respiratory infections that have been going around for the last couple of years, which it takes a couple courses of antibiotics to get rid of, they seem to drag on forever. For the most part my DS (and the rest of my aspie family branch) have very active immune systems and get a quick ramp up in fevers but fight off most things in 12-24 hours, so we are “down” for a short time but bounce back quickly, this respiratory infection had me for over a month last year which is very unusual. It is also funny that while DS gets queasy stomach more often than the average child, 10 second after he throws up he is 100% just like it never happened. I cannot say if it has much to do with the autism gene set but definitely is atypical from the average population.

Hope he gets feeling better

bookwormde