Earning My Ears
- Sep 3, 2016
Thank you all for all the great advice for this trip and good ideas for accommodation which I'll definitely consider if we're lucky enough to be able to come again.
This is interesting thank you. My son has had an EEG, but the doctors were looking for absence seizures so wasn't done overnight. No one's ever mentioned him having a sleep study. I think I learn more from other parents and their experiences than I do from the specialists!Since you mentioned you're going to the doctor, our story: When the meltdowns began to change for the worse (age 6.5), we did a sleep study with overnight EEG and discovered that she has a serious form of epilepsy and wasn't having a sleep structure - she was having subclinical seizures almost all night, every night, which was seriously exacerbating behavior issues during the day (I can't imagine behaving nicely when seriously sleep deprived). There are disorders that start at different ages, such as this one. She's now being treated with major anti-epileptics and it has helped daytime behavior tremendously. Anyway, it took way too many doctors before someone believed me about the behaviors getting much worse. It helped me to keep a log of meltdowns and show it to her doctor so they would take me seriously. Also, definitely note any regression or stagnation in educational goals as that is a excellent indication that something new is happening. I hope you have a fabulous vacation.