She was getting a bit better toward the end, but as a parent of a child with a birth defect, that is probably not what most parents of health children would consider better.
That child is going to have numerous surgeries over the years and it will be a slow process for her. The doctors in the kind of case will take it little by little allowing for her natural growth to work for her and to catch her up. Our own daughter has been through about five main surgeries for her head and face (not including the orthopedic, neurological, and others) over the years. As a matter of fact in her last facial surgery two years ago, we managed to make her breathing a bit better, but we didn't get full distraction of her face. She was wearing the RED system that that child was wearing in the last show surgery, and like her has some problems which necessitated early removal. It did help her breathe better, which was our main goal for her for that surgery. However, she will have to have a final surgery after she is finished with her teen growth. At that time they will probably do the rebuild of her face which may require wiring her mouth shut, but should not only improve on her breathing, but her biting, looks, and overall breathing related problems.
In the case of each child the doctors have to decide just what each surgery should accomplish, and for most people that would actually seem like little. However, in a lot of cases, the little by little method works best for them.
Fortunately for us, our child's face is no where near as bad as that little girl's, and we realize that overall we've been fortunate in her facial surgeries.
Faith's story, up until age 8, she is 16 now, is found at Crouzon.org or Crouzons. org. I never can remember which it is.
Kim
Here is the actual page for Faith's story.
Of course since this was written, her age has doubled and her surgeries as well!
http://www.crouzonsupport.org/faith.html
