Anyone here with family member with epilepsy and epileptic encephalopathy?

[OneMoreTry]

Just out of interest, does anyone here travel with a family member with epilepsy and encephalopathy? Our daughter, 22, has intractable epilepsy and severe cognitive disability. We have been to WDW many times with her. Specifically, she has a NEXMIF mutation, FWIW. It is very similar to Dravet syndrome. I thought maybe we could share some stories.

 

[eleda72]

Just out of interest, does anyone here travel with a family member with epilepsy and encephalopathy? Our daughter, 22, has intractable epilepsy and severe cognitive disability. We have been to WDW many times with her. Specifically, she has a NEXMIF mutation, FWIW. It is very similar to Dravet syndrome. I thought maybe we could share some stories.

Hello from Norway
I have Epilepsy and my daughter also... she is 25 years old.
I don't know what encephalopathy is.... but moth my daughter and I also have ADHD, and my daughter has Tourettes syndrome
We have been traveling to WDW around 15 times since 2001. Our next trip will be in October/November 2022

 

[SueM in MN]

My youngest daughter has epilepsy, which is only partially controlled. Before COVID, we went on 2 long WDW trips a year.