Anyone Else's Fybromyalgia Really Bad Right Now?

[luvthatduke]

Argghhhhhhhhhhhh!
I can't sleep!

My fybro has been terrible for the past couple
of months, and has worsened in the past few weeks.
I've spoken to numerous people who have it,
or know someone who does,
and it seems that all of us are feeling it more than ever?

I've got to get back to the doctor...

 

[Marseeya]

Poor thing! I think it's just the time of year for it.

Mine's been really bad these past few months as well. I ache all over and wake up so stiff and sore. I'm walking around like an old woman.

How's your thyroid? I just found out my numbers were way up, which could be contributing to how bad I feel. Maybe you should get them checked out.

I hope you feel better soon.

 

[CathrynRose]

Argghhhhhhhhhhhh!
I can't sleep!

My fybro has been terrible for the past couple
of months, and has worsened in the past few weeks.
I've spoken to numerous people who have it,
or know someone who does,
and it seems that all of us are feeling it more than ever?

I've got to get back to the doctor...

Funny you mentioned this. Im been considering getting "tested" for this, because Imhaving so many of the symptoms of it... Ive had them for awhile, but last couple months they've been horrid.

 

[luvthatduke]

Thank you Marseeya - I'll talk to my Dr. about the thyroid.
Boy, do I know the "old woman" feeling,
and I have 2 year old - but he keeps me going!

CathrynRose, you proved my point/post,
it seems so many people are feeling the symptoms much worse lately.
I hope you get some answers soon.

 

[Dakota_Lynn]

Yes, mine has been terrible for the last few weeks, too. I seem to always get worse this time of year for some reason. It really sucks! I had been doing so incredibly well all summer that I thought maybe I was getting cured, but nope! It's particularly hard when it comes on so hard after such a lovely period of feeling healthy.

 

[Talking Hands]

Yes, mine always gets bad this time of year. Having a hard time getting to sleep and staying asleep. Stiff and hurt all over. yuck

 

[chell]

It always gets worse for me in the winter. This year my doctor went up on my meds to get me through the winter - apparently it is the normal thing for it to get worse this time of year.

Even when it isn't very cold I seem to get cold and can't get warm no matter what. Anyone else like this?

 

[luvthatduke]

Ugh.

I'm sorry we're all in this together,
but I find consolation that it's somewhat normal.

Said a prayer for us all.

And, Happy New Year! (DH was up all day watching DS while
I tried to make up for lost sleep - he went to bed at 12:02,
but then DS got woken up by the fireworks outside our window...).

I'll put my sleeplessness to good use & plan this year's trip!

 

[Mickey527]

I was just diagnosed and I have to say the pain is incredible. I had cancer last year and when I started having pain I immediately thought it might have been the cancer spreading to the bone. All my scans came back negative and after more testing they said it is fibromyalgia. There is not much to read about this on the internet and not much that can be done about it. I was given neurontin but it didn't work so I am trying some new meds next week after some surgery I need.
My Oncologist, General Practicioner and neurologist want me to go on disability because they said that the way I am now is the way I will always be. I am 51 and can hardly walk, especially in the morning. I look like I am 90, my mother walked better when she was 76 and she had COPD and CHF.
Is anyone else totally disabled from this? Peggie

 

[luvthatduke]

Peggie, you just described me to a "T" and I'm 42!
I sometimes stumble, or even slur my words...

I am SO sorry you had Cancer, and then what must have
been an awful scare until you were diagnosed with Fybro.
You've had/have a full plate... Prayers for you...

 

[Marseeya]

It always gets worse for me in the winter. This year my doctor went up on my meds to get me through the winter - apparently it is the normal thing for it to get worse this time of year.

Even when it isn't very cold I seem to get cold and can't get warm no matter what. Anyone else like this?

Chell, I can probably sound like a broken record about this (am I showing my age bringing up records?) but the cold sounds more like hypothyroidism. When my numbers are up, as they are now, I'm very sensitive to cold.

 

[LBAK]

I think it's bad now because of the stress of the holiday season and now that we can finally wind down it's killing us. My RA and fibro started acting up really bad around Thanksgiving and it just won't quit. All of us need some serious R&R now. Take care of yourselves everyone!

 

[olena]

I just returned from visiting Mom in Florida. Her Fibro was especially bad. She was doing much better when she wasn't smoking. It was like she didn't have it at all. We'd have to struggle to keep up with her. But she's resumed the habit and is back to spending 3-4 days a week in bed. I went with her to the doctor and he put her on Cymbalta (sp). Hopefully that will help.

I know Winter makes it worse, so I guess it's a good thing they moved to Florida a couple of years ago. I doubt she could hack a real Winter.

 

[Dakota_Lynn]

What is everybody doing to control their pain? I really could use some ideas. I take a lot of hot showers, which gives temporary relief. In warmer weather, I take walks which helps with the stiffness, but it's too cold to go out there now. I take neurontin which usually works really well and I also take vicodin as needed. I'm allowed to take two a day (three if the pain is terrible), but I rarely take more than one (broken in half for two doses). But the last two weeks, I've had to take two full pills each day and honestly, I'm still having a lot of pain. Ugh! This is one of the worst flair-ups I've ever had. I'm so stiff I can hardly move.

If anybody has any ideas, I'm open to hearing them! Maybe this is a good place to share ideas for pain control since so many of us are having problems right now.

 

[chell]

Chell, I can probably sound like a broken record about this (am I showing my age bringing up records?) but the cold sounds more like hypothyroidism. When my numbers are up, as they are now, I'm very sensitive to cold.

Just about every year they test my thyroid but it always comes back normal. I have too many symptoms though and wonder if normal for the books is not normal for my body. But doctors don't always listen to us.

As for the records, don't worry about it - I do the same thing.

As far as pain control I eat lots of Ibuprofen. It seems to work the best for me out of any of the meds I have tried. I don't take as much as it sounds like. If I take any in a day it is somewhere between 2 - 5 for the entire day and I don't take it daily.

Nice long, warm baths are wonderful but sometimes I'm afraid I'll get in the tub and can't get back out. Right now is one of those times. Junior used to always help me back out of the tub so that I wouldn't hurt myself getting out.

Today is such a nice day out but I don't feel like getting out and doing what I should because the pain today is real bad.

 

[Marseeya]

I take Ibuprofin. 600 mg seems to be the magic number for me, although if there's a day where I'm going to be doing a lot of activity (WDW anyone?), I'll take 800 mg, plus some Tylenol.

I really can't take anything stronger than Ibuprofin because I'm completely worthless with the way pain pills knock me out. I'd rather put up with the pain (to a certain extent) than be knocked out like that.

 

[Talking Hands]

ALeve 2 tid or Tylenol Arthritis 600mg 2 tid
Hot bathes. Heat patches. Massage therapy.
Toughing it out at times.
Rest as needed.

 

[luvthatduke]

I take Advil, but it's not cutting it.
I had ice fall off of 2 story building 10 years ago
and hit me square on the head,
which is what s-l-o-w-l-y brought on the Fybro
(trauma to the body, especially spinal).
I took Elavil then for the seratonin to help alleviate the pain,
but stopped when going through infertility treatments.
I want to try that first, I have to get to the Dr.
and have all new testing done, tho,
as the symptoms have worsened considerably all of 2005,
with some new ones that are not too much fun!

 

[Planogirl]

I'm curious, what are the symptoms?

My heart goes out to all of you who are in pain!

 

[luvthatduke]

I'm fairly new to the diagnosis, and not receiving proper treatment currently.
Joint pain, extreme stiffness, some swelling (joints and/or tissue),
extreme fatigue, all-over pain (like you're getting the flu),
forgetfulness, lying down is all you desire but if tends to make it worse.

Anyone have others? I'm sure I haven't covered it too well.