Editing
I wasn't going to post but figured sometimes you have to have courage and maybe it will help someone in a similar situation as myself.
Some days are great and some days are not ,,that's the life living with an autoimmune invisible disability.
Yes I used to be the person who would take every available moment to do that last minute holiday shopping ,dining and exploring but I have learned if I ignore the need to rest/sleep when exhaustion takes over I will pay for it for days.
This sleep is not normal ,,it's like a whole body crash. Typical times are late afternoon to early evening.
One day on my last trip I made it to IOA and then on my way to Hagrid's I crashed, only 1/2 hr in the park ,,,walked back to Royal Pacific and had the desk call me a Taxi to Surfside. I was so sad and mad that I wasted a 1 park to park pass with EP........ but later realized that I did the best I could and am still trying to accept it.
My trips have become more pick a few things to do and if I can then do them ,,if not try again next time.
This is hard when paying for passes and dining events to know that I may have to cancel or just not go.
No refunds.
I have to avoid stress which also can set off symptoms.
I hate not being normal anymore but hey I am not sure what is normal anymore.
So yeah figuring out a game plan for the last day is important to me.
Hope that helps you see why it's important to me.
Thanks for listening
Hugs
Mel