Newly Diagnosed Aspergers-need good books

Discussion in 'disABILITIES Community Board' started by staceyhzoo, Apr 13, 2011.

  1. staceyhzoo

    staceyhzoo Mouseketeer

    Joined:
    Jun 27, 2009
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    My dd (5) was dx with Asperger's. I honestly expected HFA since she has a speech delay (but it's due to birth injury). She was dx 18 months ago as SPD.

    I need some good books to read and to get my family members to read to help them understand her. My family is amazing and understanding, but dh's is old school and says she's defiant and stupid. She's very intelligent and has some amazing abilities for a 5 yr old, but is delayed in some areas.

    I know I'll need more support, I'm just trying to get my thoughts together and this is the best place I know to start. I've lurked here for a year or so on and off.

    Her current IEP has her getting speech therapy 2 times weekly and a consult with an OT. She is a PreK program and has been since feb. It took 15 months for her IEP. She goes to private OT weekly, sees a psychologist/psychiatrist (hubby/wife that we love), and goes to a specialty institute that concentrates on neurologic issues. I have here on a wait list for Play Therapy there. She's also on 2 waiting list for a ASD school and a developmental specialist (both are 1 yr plus)

    I would love suggestions and advice and any info. Her Drs want us to go gluten free, but she has food allergies and that will severely limit her diet.

    I apologize for any typos or unorganized thoughts. This is the first few mins I've had in a week :)
    Thanks!!
     
  2. bookwormde

    bookwormde <font color=darkorchid>Heading out now, another ad

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    THe first read is "The complete guide to Aspergers" by Tony Attwood, also for your husband "genious Genes by Fitzgerald and Perfect targets. All 3 are availabel on Amazon in soft back.

    Make sure the school it doing a social skills program and is using a universal design curriculum to support her exectutive function preferences and needs.

    Making sure every staff at the school that comes in contact with her has read the Attwood book is a must also.

    bookwormde
     
  3. HeatherL

    HeatherL Mouseketeer

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    I agree that the Tony Attwood is a great book to start with! You can also try reading anything by Stanley Greenspan-he has written many books on autism and special needs. Also, I HIGHLY recommend Temple Grandin's books. She has provided me with so much insight into my son's world. I went to see her speak last year and she is truly amazing.
     
  4. brat

    brat DIS Veteran

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    Jan 15, 2011
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    Since you mention the food issues, my fav food Spectrum book is "Special-Needs Kids Eat Right Strategies to Help Kids on the Autism Spectrum Focus, Learn, and Thrive by Judy Converse, MPH,RD, LD
     

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