Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FIVE!!

Discussion in 'disABILITIES!' started by maroo, Sep 27, 2011.

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  1. Jakentysmom

    Jakentysmom Mouseketeer

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    Christi- :cool1: woohoo for dates!!! We will be there the same time!!! Where are you guys staying? Also, we heard from our wish granters one time when they came over. Then we are going to a hockey game with them next weekend. But that was decided when they came over because Jacob is a big fan and their company just happen to have tickets. I have not heard from them since and that was last month. But I emailed asking for an update and he did not even say a word to me...just forwarded the email convo he had with the wish manager.

    Dana- those shirts are AWESOME!! Turned out very nice!
     
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  3. NEmel

    NEmel Mouseketeer

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    So happy for you and Angel Christi!!!:cool1::cool1:

    We have had a lot of contact with our wish granters. One did a photo shoot for the boys and the other and I talk quite a bit. Everytime I have a question I usually email them. A couple of times I have emailed the MAW coordinator. Both are young so they are a lot of fun, plus it it one of their first wishes so pretty special for her. They have both been great and I plan on staying in contact with them.
     
  4. angel's momma

    angel's momma DIS Veteran

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    Thank you :)

    Yes, you will ::yes::

    :rotfl: Thank you :) I totally understand ::yes:: Hope you get your dates soon :hug:

    Thank you :) I noticed that we overlap :) We're staying at Pop, that's where we've always stayed. Have a great time at the hockey game :)

    Thank you :) I knew that you've had a lot of contact with yours, and with your chapter, which is so wonderful. :lovestruc

    I just thought that our wish coordinator is doing things that I thought the wish granter usually took care of.
     
  5. momma31

    momma31 Earning My Ears

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    Hello,
    I am new to the board. I came across this board trying to find information about an upcoming disney trip through MAW. My dd was granted a wish for disney world. I am a big planner. Thing only thing i have been told is that my dd trip will be in april. We have never been to disney so I do not know what to expect. What will the weather be like? What do i need to bring with us? How much money should I save? Should i take her wheelchair or her medical stroller? Sorry for alll the questions, I am a person that likes to know about everything and in this I know nothing lol.
     
  6. angel's momma

    angel's momma DIS Veteran

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    :welcome: momma31 Yay that DD is getting her wish :cheer2:
    I'm up way later than I should be, but I'll be back later to try to answer your questions - I'm guessing somone will answer before then though :)
     
  7. Mom2M07

    Mom2M07 Mouseketeer

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    We actually haven't gone on our MAW trip yet (we're hoping for late April to mid-May for us) but think I can answer some of your questions. The weather should be nice .... hot (70s to upper 80s), but not terribly so. There will be some rain, as there always is in FL, but nothing that should last long or interrupt your vacation. Are you staying at GKTW? If so, youll have a washer/dryer in your unit. You'll need to bring clothes, toiletries, any and all medical supplies that your daughter requires, extra space to bring home special goodies, etc. MAW will give you spending money. I don't know how much they give (depends on lots of factors, I think) but it should be enough to cover food and expenses and give you all a good time. If you plan lots of character meals or special experiences, you may need more money than they provide, but you should be fine for basic expenses with a few extra treats. As far as medical stroller vs. wheelchair - we are still trying to answer that same question! How old is your daughter? What are her needs, support-wise? I'd bring whatever supports her best and is most comfortable. I know that my daughter fatigues quickly, so we need to plan for the worst and expect the best for her! We'll probably bring our wheelchair, but if your medical stroller gives enough support, you may find that easier to manage.

    So happy to hear that your daughter is receiving her wish!
     
  8. Kirlinale

    Kirlinale Mouseketeer

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    :confused3


    Firstly - don't give a hoot what ANYONE thinks..

    I've been to WDW and DL 7 times since Kira was born.. She was 4 months old our first trip... Just a quick medical orientation - Kira has a brain tumor, epilepsy (intractible due to unreated cortical dysplasia) Completed 2 1/2 years of chemo when she was three - Crainiotomy (open brain surgery) when she was three when her Brainstem tumor was determined to be inoperable. Has had numerous hosptial stays in ICU for status seizures - some lasting weeks - Has at least one seizure a day to 100's depending on day - takes 4 seizure meds w/ moderate control - is in surgical review for possible removal of the dysplasia - She is also developmentally delayed, has some physical disabilities as well as some behaviour - That's just the short list...

    That being said - Her needs change daily - sometimes she needs a wheelchair , sometimes not, sometimes she looks and appears totally typical and sometimes not... We have had varying issues at WDW w/wheelchairs and strollers so I will try to help you best I can ...

    When she was an infant - this was not an issue...

    When she was three - we used a regular stoller but got a 'stroller as a Wheelchair' tag for her - we also had an umbrella stroller for those 'good' days and getting around to short trips to downtown disney, dinner, the resort...

    Our next trip we took our McClaren Special needs stroller chair - This was good but it did not allow for her to rest a it only had a slight recline. It was light and easy to use - and had no problems with Gate Checking it.. This was the easiest one to use - but at the same time - got a lot of questions from CM's as to whether or not it was a 'Wheel Chair' which got annoying :confused3.

    The next two trips we took an umbrella stroller for the quick trips around resort , dinner etc.. and her Safari Tilt in Space (my all time favorite chair) - however, the Safari is a pain in the butt to lug around did not fit easy in the trunk of rental cars - and we did not by the carrier case for it so it got banged up gate checking it - BUT having something that FULLY reclined was more valuable - Kira needed to rest , especially after seizures - which with any other chair would require us going back to a room or lounge .. having her able to sleep in the chair allowed us to stay and enjoy our time.. BUT it was a pain to manuveur through the crowds when reclined.. and it was very big to handle... If she was smaller I would have rented a Jogging Stroller which would be easier and give more shade and storage - plus you would not risk the airline issues or having to lug it all over.. I know MAW can help secure rentals ...

    Our last is the Convaid Cruiser Meto - Which I have now and I love .. it's light, easy to use , and comfortable - but does not recline.. which I miss... she no longer fits her safari so we donated it and I am now looking at other options...

    Kira has had good days and bad at WDW and DL and it was totally necessary to have options...

    If I were to do it again -

    I would bring the lightest , easiest chair you can .. McClaren type or Convaid ... Rent a Jogging Stroller (two seater if you can so you can put a pillow and some extra stoage ) With the MAW Gac and Stroller as a WC tag you should have no problems.. At the airport having a light stroller a blessing and a cheaper one incase of damage... We have used the accessible in airport transportaion (golf carts) for the bad days - used the light chairs for the good ones..

    For our MAW trip ... We are going on the Disney Dream - then a few days a Universal (extention) .. was going t do Disney parks but our older kids want to go to Universal and it's better on my wallet...

    I am taking her Metro Chair for the Cruise , airports and light travel. I am looking into renting a reclining chair or larger chair for the universal part of the trip ..

    If your child is small enough a Wagon could work out well too...

    HAve a great trip!!!
    Nicole
     
  9. Kktraylor

    Kktraylor Mouseketeer

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    Found out good news today...because Ava's IQ identifies her as "exceptionally gifted", they're sending out a gifted teacher for her. Now I don't have to stress about no doing enough. :-). Other than that...nothing new. We haven't heard anything on our dates, which means we can't really make plans for the rest o our family yet. We haven't figured out how we'll get the money yet anyway. Lol
    Kristy
     
  10. esbelcher99

    esbelcher99 Earning My Ears

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    We are going on our MAW trip the last week of march. We are staying at the Animal Kingdom Resort, not GKTW. My question is, will we still be eligible for the same perks inside the park as the gktw families. Also, will we be able to visit gktw?
     
  11. JWCJ

    JWCJ Mouseketeer

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    Ja's wish grantor's ears must have been burning, because last night I received an email from her :) She sent some cute certificates confirming our Akershus, 'Ohana, and BBB reservations. She said there's also something in the mail for Ja's birthday.


    Yay for a wish! We'll be there April 27 - May 4 :goodvibes The weather better be nice, because I want to go to the beach, darnnit!!
    I've found that reading people's trip reports have really helped with figuring out what to expect.


    That is spectacular about the gifted teacher!
    Hope you get dates soon so you can figure things out.


    Yes, you'll be able to visit GKTW. If we weren't at the village, AKR is where I would have loved to stay. You must be getting excited with the trip so close!
     
  12. esbelcher99

    esbelcher99 Earning My Ears

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    We are very excited! Just found out today when we are going so we are trying to start planning
     
  13. kalimom6

    kalimom6 Mouseketeer

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    I think I read a trip report recently where they stayed on wdw property but went to GKTW for their orientation/tickets. If GKTW is full people do have to stay elsewhere. Beings your trip is coming up I would contact GKTW with your questions.
     
  14. LittleEsmom

    LittleEsmom Mouseketeer

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    We will be there March 23-29!
     
  15. LittleEsmom

    LittleEsmom Mouseketeer

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    YAY for the gifted teacher:banana:
    Praying you find out your dates really soon:thumbsup2
     
  16. angel's momma

    angel's momma DIS Veteran

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    :welcome: esbelcher99

    Yay! :cheer2: I especially love Ohana ::yes::
     
  17. NEmel

    NEmel Mouseketeer

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    Welcome!! :wave2: AK looks amazing can't wait to hear more about your trip!
     
  18. taimie

    taimie Earning My Ears

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    we are so excited. we received our flight literary in the mail last week. The trip now feels real. Our coordinator said we will receive everything in the mail about a week be for we leave. SO excited.
    Just wondering how come some wish coordinators come to the home and others don't? We had to meet MAW in another town, and the person we meet then is not our coordinator. I have only spoke to her on the phone. Another family from the same town as us has their coordinator coming to their house. They have the same wish as us too by the way. It is the same person. So I was just wondering.
    we are so ready and excited for this trip!!!!
    Taimie
     
  19. angel's momma

    angel's momma DIS Veteran

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    Yay for the flight info Taimie :)
     
  20. blessedmom4

    blessedmom4 WE BELIEVE IN MIRACLES! ~~Nearly twice as many chi

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    Maroo, I PM'd you a while back that I FINALLY finished Lisa's TR (Just have a few tidbits I want to add). I think you have Lisa's PTR linked, but not our TR, if you want to add it for me. THANK YOU from tthe bottom of my heart for ALL you have done for so many wish families!

    I want to say WELCOME to all of the new wishtrippers I haven't had a chance to say hi to and invite you over to my newest thread "Oops, She Did It Again." There is a party going on to celebrate my Princess' party:TENTH birthday! party: Come on over, say hello and join in the fun. EVERYBODY is welcome both old friends and friends not yet met!
     
  21. Mom2M07

    Mom2M07 Mouseketeer

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    I think we're close to getting our dates! On Friday, our wish granter told us that they were "almost" ready to schedule our trip and wanted to confirm our first choice for dates. We gave her our preference and she's going to let MAW know tomorrow. I'm hoping that we'll have our dates sometime this week. Nana is coming with us, too!:cheer2:
     
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