sammie girl
Mouseketeer
- Joined
- Apr 19, 2009
Hi! I am new to this and also I don't know very much about computers. Please bear with me through this and I do hope I get it right.
I am first going to try to add pics so you all will know who you are reading about. Hear it goes and I hope I get this right.
I am going to stop here for a minute to see if this worked!
Didn't work. I will try to figure that out later.
So I will start with my family. There are 4 of us. Mom (me) 34, Dad Greg 41, Alexis 7(wish child), and Trent 4.
DH and I have been married 9 years this June 10. Alexis was a twin but I lost her twin in my second trimester. I was put on bed rest after that and ended up having toxemia/preeclampsia and was induced 2 weeks early. As a baby she cried alot and was switched to special formula due to projectile vomiting all the time. She still had trouble but it didn't seem quite as bad. She had lots of ear infections (something like 9 rounds and 8 shots of anitibiotics before her first birthday. She had tubes put in when she was 1 but they didn't really help either. When she was about 19 months old we woke to her screaming in the night. When I checked on her she had blood leaking from her eyes and was having trouble breathing. (she had been sick with a cold and another ear infections up to this point). I got her in the car and drove straight to the ER. She ended up having pink eye and pneumonia. About a month later she had another ear infection and was sleeping with DH and me when I woke because she was burning up. Checked her temp and it was 106.3. Freaked out again and back to the ER. The doctor said temps were normal and it was fighting the infection so back home we went against my wishes. I just wasn't comfortable with that high fever. So the following day we went to her regular ped. for a follow up and to ease my worry. He said that her tonsils were touching so we ended up in children's mercy. She had her tonsils and adnoids out. (Also she was allergic to milk etc., if it touched her skin she would even break out.) After having her TNA she was no longer allergic to milk. Weird and all but she got ahold of some at her daycare and they said she had no reaction so I tried at home and her supposed allergy to it was gone.
After her surgery things improved greatly. We had normal kid stuff to deal with but she seemed to be really healthy.
Then last year when she was in kindergarten she kept getting recurrent UTI's. She would get off meds and have another UTI within a few days. We went through the list bought new clothes, undies, soap, etc. But nothing worked. Her pediatrician seemed to think it was something I was doing wrong and implied that on many occassions. I was very upset by this and decided to try out a new ped. for an opinion. Our first visit at the new doctor was last August 14, 2008. We walked in gave the history and the doc said they needed urine, which we figured. The test came back as having sugar in it. I told the doc that was always the way it was and her old doc said not to worry about that. They took a finger prick anyway and her blood glucose was over 400. I again told them her old doc did that also but checked later and said she was fine it was a false alarm. This new doc wouldn't hear of it. Said we were going to Children's Mercy right then and there. O.K. I said, still not to worried because I new it would be a false alarm. My daughter had also been throwing up at night (old doc said it was the way we fed her) she had also been wetting the bed (again was told some kid go through that) and had been very irritable and cranky (again was told it was probably a phase but he would watch for some type of emotional disturbance). We got up to the hospital and it was confirmed that my beautiful little girl who had been so sick with UTI's was a diabetic type 1. My world was turned upside down. All of the things my daughter had been going through was related to diabetes but was ignored. I am so thankful I switched docs but only wished I would have done it months earlier.
We have been adjusting our lives to diabetes now. My daughter has a pump now and we go day by day. Last week was a hard week for her and I have already gotten 3 calls from the school today. She goes to a private school and there isn't a nurse so the secretary has volunteered to learn as much as she can but still will call me for everything they do.
I didn't mean to make it that long.
Next is my son who has had his tonsils and adnoids out but is a healthy happy boy full of energy. He really keeps me on my toes. He is in preschool but loves to be home with mommy.
After several calls from a friend I finally filled out our paperwork for Dream Factory last December or January. I don't remember as I thought she really wouldn't qualify. I had the same thought as everyone about it only being for kids who were way worse off than us.
I will get to the phone calls on my next post so I don't bore you all to much. I also want to get some help on posting pics. Hopefully they will be on here before long.
Thanks for reading this far.
I am first going to try to add pics so you all will know who you are reading about. Hear it goes and I hope I get this right.
I am going to stop here for a minute to see if this worked!
Didn't work. I will try to figure that out later.
So I will start with my family. There are 4 of us. Mom (me) 34, Dad Greg 41, Alexis 7(wish child), and Trent 4.
DH and I have been married 9 years this June 10. Alexis was a twin but I lost her twin in my second trimester. I was put on bed rest after that and ended up having toxemia/preeclampsia and was induced 2 weeks early. As a baby she cried alot and was switched to special formula due to projectile vomiting all the time. She still had trouble but it didn't seem quite as bad. She had lots of ear infections (something like 9 rounds and 8 shots of anitibiotics before her first birthday. She had tubes put in when she was 1 but they didn't really help either. When she was about 19 months old we woke to her screaming in the night. When I checked on her she had blood leaking from her eyes and was having trouble breathing. (she had been sick with a cold and another ear infections up to this point). I got her in the car and drove straight to the ER. She ended up having pink eye and pneumonia. About a month later she had another ear infection and was sleeping with DH and me when I woke because she was burning up. Checked her temp and it was 106.3. Freaked out again and back to the ER. The doctor said temps were normal and it was fighting the infection so back home we went against my wishes. I just wasn't comfortable with that high fever. So the following day we went to her regular ped. for a follow up and to ease my worry. He said that her tonsils were touching so we ended up in children's mercy. She had her tonsils and adnoids out. (Also she was allergic to milk etc., if it touched her skin she would even break out.) After having her TNA she was no longer allergic to milk. Weird and all but she got ahold of some at her daycare and they said she had no reaction so I tried at home and her supposed allergy to it was gone.
After her surgery things improved greatly. We had normal kid stuff to deal with but she seemed to be really healthy.
Then last year when she was in kindergarten she kept getting recurrent UTI's. She would get off meds and have another UTI within a few days. We went through the list bought new clothes, undies, soap, etc. But nothing worked. Her pediatrician seemed to think it was something I was doing wrong and implied that on many occassions. I was very upset by this and decided to try out a new ped. for an opinion. Our first visit at the new doctor was last August 14, 2008. We walked in gave the history and the doc said they needed urine, which we figured. The test came back as having sugar in it. I told the doc that was always the way it was and her old doc said not to worry about that. They took a finger prick anyway and her blood glucose was over 400. I again told them her old doc did that also but checked later and said she was fine it was a false alarm. This new doc wouldn't hear of it. Said we were going to Children's Mercy right then and there. O.K. I said, still not to worried because I new it would be a false alarm. My daughter had also been throwing up at night (old doc said it was the way we fed her) she had also been wetting the bed (again was told some kid go through that) and had been very irritable and cranky (again was told it was probably a phase but he would watch for some type of emotional disturbance). We got up to the hospital and it was confirmed that my beautiful little girl who had been so sick with UTI's was a diabetic type 1. My world was turned upside down. All of the things my daughter had been going through was related to diabetes but was ignored. I am so thankful I switched docs but only wished I would have done it months earlier.
We have been adjusting our lives to diabetes now. My daughter has a pump now and we go day by day. Last week was a hard week for her and I have already gotten 3 calls from the school today. She goes to a private school and there isn't a nurse so the secretary has volunteered to learn as much as she can but still will call me for everything they do.
I didn't mean to make it that long.
Next is my son who has had his tonsils and adnoids out but is a healthy happy boy full of energy. He really keeps me on my toes. He is in preschool but loves to be home with mommy.
After several calls from a friend I finally filled out our paperwork for Dream Factory last December or January. I don't remember as I thought she really wouldn't qualify. I had the same thought as everyone about it only being for kids who were way worse off than us.
I will get to the phone calls on my next post so I don't bore you all to much. I also want to get some help on posting pics. Hopefully they will be on here before long.
Thanks for reading this far.
We were really excited because this is the first family vacation we will be going on. My kids and I have went places in the past but there dad has never been with us. We have been to disney 3 times by ourselves and with my mom.
She gave Lexi a t-shirt, pin, camera with a free develope ticket and a little bag. We signed some forms and she left. I eventually told Lexi we wouldn't be staying where we had looked at but instead would stay at a hotel. She was very upset to say the least. I won't put everyone through that ordeal again but on to the good news.
What will DH work do?
