happymommy
DIS Veteran
- Joined
- Jan 8, 2006
Hi, All!
I've been to WDW so many times, before kids and then after kids. We all love it so much, but my DH and DS have grown away from it lately
I find so much useful information here, and just wanted to "talk"!
My daughter used to always get more tired than most kids get at Disney (well, we do walk a LOT!). I last brought a stroller to share when she was in first grade, and then a year or two later (I forget) ended up renting one for a day for her to nap in.
Long story short, we are finding (still waiting on the final diagnosis from the pediatric rheumatologist) that she has a connective tissue disorder. Her joints ache, and she fatigues easily, has skin that stretches more than normal, has stretch marks on her legs (and chest), gets headaches, and throws up easily and often. Fun times!
Last trip was a week ago, and after one day, she asked for a wheelchair rental. I knew nothing about them, but gave it a shot and rented one (ended up renting for 4 of our days, the long walking ones). Wow, what a gift from above! She could rest her legs, and still do everything she wanted! Most lines we could go through with it too!
If any other parents have kids like her, what she MAY have is Ehler Danlos Syndrome. In any case, it could be WAY worse!
We actually just planned another mom-daughter trip for 10 nights in August, and I already know we'll either rent chairs at the parks, or ask at Pop (where I booked us - she's always wanted to stay there!) if they have a loaner to really minimizer her walking.
Any advice is totally welcome! We did get her the new card (first day - she said she knew she couldn't stand long, so we could get return times and let her rest instead), and that worked out very well! It's not like we had to do every ride; we've been many times so a few things a day was fine!
I've been to WDW so many times, before kids and then after kids. We all love it so much, but my DH and DS have grown away from it lately
I find so much useful information here, and just wanted to "talk"!
My daughter used to always get more tired than most kids get at Disney (well, we do walk a LOT!). I last brought a stroller to share when she was in first grade, and then a year or two later (I forget) ended up renting one for a day for her to nap in.
Long story short, we are finding (still waiting on the final diagnosis from the pediatric rheumatologist) that she has a connective tissue disorder. Her joints ache, and she fatigues easily, has skin that stretches more than normal, has stretch marks on her legs (and chest), gets headaches, and throws up easily and often. Fun times!
Last trip was a week ago, and after one day, she asked for a wheelchair rental. I knew nothing about them, but gave it a shot and rented one (ended up renting for 4 of our days, the long walking ones). Wow, what a gift from above! She could rest her legs, and still do everything she wanted! Most lines we could go through with it too!
If any other parents have kids like her, what she MAY have is Ehler Danlos Syndrome. In any case, it could be WAY worse!
We actually just planned another mom-daughter trip for 10 nights in August, and I already know we'll either rent chairs at the parks, or ask at Pop (where I booked us - she's always wanted to stay there!) if they have a loaner to really minimizer her walking.
Any advice is totally welcome! We did get her the new card (first day - she said she knew she couldn't stand long, so we could get return times and let her rest instead), and that worked out very well! It's not like we had to do every ride; we've been many times so a few things a day was fine!