Ethan is adorable.
So sorry that your family has gone through so much. Very happy that Ethan is getting his wish. I hope you have a wonderful trip.
Thank you!!!
I'm back and caught up - still saying prayers for David and his family.
Is it SUNDAY yet?? Do you have ANY plans that day?? I thought there was something on your calendar, that maybe you were busy... maybe not???
Can't wait to hear all about it when you get back!!
Thank you. He had a bit of a setback yesterday. Parents think he had a mini stroke but CT scan didn't show anything. He has a history of seizures so the drs think that's what he had (but his right side drooped, etc). The only way to know for sure was to do an MRI but he'd need to be sedated and they'd rather not mess with that. If it was a seizure, he should be symptom-free today. Til then, he'd been doing pretty darn well.
As for me...I'M FREAKING OUT!
A couple of heart families we know went to Disney this summer for their wish trips and they both wore their wish shirts the entire time. That's great for saving luggage space (we are flying American and have to pay baggage fees. YUCK) and they said it really helped with being accommodated (easier to spot out in a crowd) but one of E's teachers from church made him some appliqued shirts for the trip. I had bought a few, too, when the
Disney store had them on sale. What to do?
Sunday- we wil be at GKTW that day. We'll probably go to Wal-Mart at some point. Does anyone know if we need to bring our own shampoo? I am not picky while on trips so the less I have to worry about the "3 oz rule," the better!
Here is our "itinerary" (subject to E's mood!)
Sunday- GKTW
Monday- Magic Kingdom (though it closes at 7 but we are hoping to do the Halloween Party at GKTW after)
Tuesday- Universal/IoA
Wednesday- AK/HS (thoughts on this?)
Thursday- sis-in-law flies out at 6:30am. GKTW day and then Christmas that night** (unless we come up with something for during the day)
Friday- Had bfast at Cape May for 10:10 but may cancel due to cost and the fact that we will be at the MK from 4pm-12am that day for the MVMCP
Saturday- MIL/FIL leave. Sea World?
Sunday- Bfast at H&V at HS (tentative- this is if it's the only way E can see Oso and if he still wants to)
Monday- Magic Kingdom on our own dime
Lunch at Crystal Palace, maybe.
Tues- DTD and then fly home.
We had our send-off party this past Sunday. I'll get some pictures up as soon as I'm able. I'm kind of like a chicken with my head cut off right now
. They gave us our check and shirts and info packet (parking for the airport, etc). I'm about to go start packing our bags, just so I get an idea of what we're bringing, etc.
EEEEK!!! I hope that our plans turn out to be good ones. I'm so nervous!
Here's a rundown of the "essentials" I'm packing:
sunscreen, moleskin, bandaids, anti-chafing stick, glow sticks/bracelets, autograph cards/clipboard, sharpies (must buy), filtered water bottles, hat for DH, sunglasses, lanyard for E to attach his wish button to, soft-sided cooler, small flashlight (our phones have an app but it can run the battery down), extra duffel bag, chargers, headphones, memory cards, camera(s)- wishing I also had a camcorder, extra shoes (for me
), activities for the plane, ponchos, E's costume, shout wipes.
I'm sure I'm missing something. I have a box-o-stuff for this trip-as I thought about it, I'd just chuck whatever I thought might be trip-worthy into a rubbermaid container.
Oh man. On top of packing, I wanted to get our house organized so that, while we are on the extended part of our trip, my inlaws could come over and set up our Christmas tree as an extra surprise for Ethan. That's not gonna happen!! LOL. I'm now thinking it'll be fun to set it up as a family
.
I'm a go-with-the-flow type person but there's something about reading plans and people's TRs that makes me panic that I haven't mapped out our days WITHIN the parks. Will focus on that on the plane if I don't get to it this week.
EEEEEEK!!!! The time is going to FLY BY this week!!