- Joined
- Aug 23, 1999
Bumping
Most attraction queues are either covered or indoors. Choosing a cooler time of year to visit may be beneficial if the heat and humidity are particularly bothersome for you.
I suppose Disney won't give carb counts because they can't guarantee they're accurate and they'd be liable if someone relied on the counts for setting their insulin dosage and was thereby injured. It sure is inconvenient, though.
We have done 2 WDW and a cruise since dx last year and the no carb counts doesn't really phase me. We go many places in life with no information and we weight, look things up etc. and then adjust later. Need a little more insulin, no problem. A place like Disney we err on the side of conservative and I would rather he be a bit high then lows. But that is our comfort level and we are fine with that. Others may want stricter control at all times.
I have type 2. It doesn't bother me much that information is not provided, but I have learned to be suspicious of anything I didn't prepare myself. I know how to estimate and what works for me, AND I don't take insulin.
I can only imagine what it's like to be a parent of a child with recently-diagnosed type 1. I'm glad there are many tools available now to help.
I'm going to refer you to the discussion about diabetes on this thread:
http://www.disboards.com/showthread.php?t=3263107
DAS (Disability Access Service) Cards are used for disabilities and the condition that causes the disability is not pertinent. Diabetes is not a disability; it is a condition that can cause disability.
The majority of people with diabetes posting on this board quickly test and treat if needed in lines and there are CMs with type 1 diabetes working in the heat.
Others do have more issues, so just asking for a DAS because you have diabetes doesn't tell the CMs what level of disability you have. Your task is to explain your needs related to your disability.
I'm actually going to combine this thread with the other thread.
This link is taking me back to this same thread?
My son (12 yo) just got diagnosed with T1D a week and a half ago. We didn't pick up on the symptoms because he has also gone through a huge growth spurt and it's summer. So, all of his symptoms- the weight loss, thirst, fatigue- could be explained by those two things. It wasn't until he came home from spending 3 days at a friends out of town that we realized something really wasn't right. But even then, we thought it was something like mono or strep because his throat was so raw. We ended up in ICU with extreme dehydration, numbers up to 900, DKA, and an A1c of 13.7.
We are avid Disney vacationers and our next trip is in October. This forum has been very encouraging and also very helpful. It's great to see how others have gone about their family vacation and the little adjustments to make to ensure a great vacation!
Just have fun. And test a LOT. And test at night, even if you don't normally. Bring twice as much as you think you'll need, and then a little extra. Carry low supplies with you, juice boxes or glucose tabs or whatever your son likes. Don't expect that anyone will let you jump in front of them in a line to "get a coke" (it's been suggested before..eye roll). Being prepared is the best thing you can do.My 3 year old DS was just diagnosed with type 1 a few weeks ago. We have a trip planned for the beginning of September that we are still planning on going on (this will be his 3rd trip to Disney, so we go somewhat often). This thread and others on the boards have been so helpful to me!! I have my calorie king app downloaded, pocket scale, frio cooling wallet, and extra supplies on the way. Planning on testing pretty frequently as we have noticed that our little guy gets low when he plays outside and we know it will be hot in September! Any other tips out there? It is overwhelming, but I know it is doable!
Just have fun. And test a LOT. And test at night, even if you don't normally. Bring twice as much as you think you'll need, and then a little extra. Carry low supplies with you, juice boxes or glucose tabs or whatever your son likes. Don't expect that anyone will let you jump in front of them in a line to "get a coke" (it's been suggested before..eye roll). Being prepared is the best thing you can do.
My 3 year old DS was just diagnosed with type 1 a few weeks ago. We have a trip planned for the beginning of September that we are still planning on going on (this will be his 3rd trip to Disney, so we go somewhat often). This thread and others on the boards have been so helpful to me!! I have my calorie king app downloaded, pocket scale, frio cooling wallet, and extra supplies on the way. Planning on testing pretty frequently as we have noticed that our little guy gets low when he plays outside and we know it will be hot in September! Any other tips out there? It is overwhelming, but I know it is doable!
My son (12 yo) just got diagnosed with T1D a week and a half ago. We didn't pick up on the symptoms because he has also gone through a huge growth spurt and it's summer. So, all of his symptoms- the weight loss, thirst, fatigue- could be explained by those two things. It wasn't until he came home from spending 3 days at a friends out of town that we realized something really wasn't right. But even then, we thought it was something like mono or strep because his throat was so raw. We ended up in ICU with extreme dehydration, numbers up to 900, DKA, and an A1c of 13.7.
We are avid Disney vacationers and our next trip is in October. This forum has been very encouraging and also very helpful. It's great to see how others have gone about their family vacation and the little adjustments to make to ensure a great vacation!
... I can't believe I am here saying this as I really almost had a nervous breakdown three months ago but it does get easier.
Me too!Mich Mouse -- I remember your posts earlier this summer and just wanted to say I'm so glad it's going well for you! Enjoy the rest of your vacation!
OP here and reporting live from Disney. I just want to reassure you that you can do this- I was so scared to come (alone managing six year old DS)
but didn't want my DS to think that D will stop us from doing anything.
I made lists, packed twice the supplies, had a grocery delivery to the hotel for snacks/juices and really prepared for this trip. The one thing I needed was a bigger, sectioned backpack. When I packed all my stuff it was too disorganized so I wound up purchasing a new one at the hotel. You are going to be fine!! I can't believe I am here saying this as I really almost had a nervous breakdown three months ago but it does get easier.