Diagnosing Aspergers

tinkerbell27

Mouseketeer
Joined
Apr 30, 2002
My son was diagnosed 2 yrs ago with a langauge delay. A child Psycologist did about 3 hrs of testing on him and made the diagnosis. We always thought she was wrong or missed somethings. Well he is in Kindergarten now and his sp ed teacher and I both agree that we believe he has Aspergers. My question is where should I take him to for a diagnosis? A neurologist, or another child psycologist?
Thanks for you help!
Kelly
 
with 20 years experience and in current evaluations with a child....

Find a psych/behavioral specialist who works are specialized with children who have special needs. We are now working with the Marcus Institute in Atlanta (affiliated with Kennedy Krieger). Our school system even paid for his last round of educational testing to be done by them. They supported us in our opinion (and our specialized pediatricians opinion) that the school psych is not qualified to make ANY diagnosis (and we are in a big & excellent system). It is even better to work with a large facility because they have all kinds of specialists who can look at the whole child from different perspectives. Here are websites if you want to read what type of services they offer and you may want to look for in your area....

Kennedy Krieger info http://www.kennedykrieger.org/kki_2nd_inside.jsp?pid=1
The Marcus Institute info www.marcus.org
 
Originally posted by tinkerbell27
My son was diagnosed 2 yrs ago with a langauge delay. A child Psycologist did about 3 hrs of testing on him and made the diagnosis. We always thought she was wrong or missed somethings. Well he is in Kindergarten now and his sp ed teacher and I both agree that we believe he has Aspergers. My question is where should I take him to for a diagnosis? A neurologist, or another child psycologist?
Thanks for you help!
Kelly

I would think a child psychologist who is familiar with AS would be a good place to begin. But ask them about their familiarity before making an appointment, there are a lot of them out there who aren't sure about it!

My son doesn't have an "official" medical diagnosis (his regular pediatrician agrees with it 100% after reviewing the info about AS) but an educational one. We had taken him to a Developmental Pediatrician and after about 2 one-hour sessions where he observed him playing while he talked with us he said AD/HD, Dyspraxia and Sensory Integration Dysfunction, but definitely not AS! The Child Psychologist we took him to at the suggestion of the Developmental Ped agreed, only after saying he was too distracted for him to even begin a test with him (maybe 20 minutes spent with him).

Our school did an educational evaluation with the Autism Specialist from the district who spent more time with him than the doctors even came close to, in lots of settings. She said that he had all the classic signs of AS and that she would recommend to the Spec. Ed team to list that as his disability on his IEP.

For us, it came down to what we needed the diagnosis for. Right now we only really need it for accomodations at school since our insurance won't touch autism. But if we had to get a medical diagnosis I'd go to his regular ped and have her write it out since she agrees with the autism specialist. She even occasionally refers parents of some of her patients to talk to us when she suspects autism!

Hope that helps! :wave2:
 
My ASD son was officially diagnosed by a developmental pediatrician. I know some others who were diagnosed by a child psychiatrist or a neurologist. One of the big differences between high functioning autism and asperger's is when language developed. My older son who is close to asperger's had a speech delay, but when he started talking (around 20 months), he spoke in complete sentences. My younger son who is autistic didn't start talking until he was 3 and it came much more slowly. Now he is 7 and he still has trouble with pragmatic language skills, but get him talking about computers and it's hard to get him to stop talking. Even though my insurance specifiically excludes autism, my younger son receives medical assistance from the state to address many of his needs.
 
I had so much trouble getting my DS diagnosed. We still don't know for sure! The neurologist says pervasive developemental disorder, school psychologist says she's not sure. It's so hard to get an answer, especially when the child is high functioning, as many asperger kids are.
I just want to add my outrage that MadisonMom's insurance excludes autism from treatment:mad: . When are insurance companies going to change their ways!
 
so I'll just add a :hug:

Let us know:)

:sunny:
 
I have one daughter with non-verbal learning disorder, which is similar to aspergers (that's what the school psychologist thought she had at first) and one with high-functioning autism. We've been to develpmental pediatricians, psychiatrists, psychologists, neurologists, and neuro-psychologists. Both my kids got what I thought were the most useful evaluations from neuro-psychologists. Though it might really be more important how familiar the practicioner is with these disorders. I would ask questions to make sure whoever you go to is really familiar with autism spectrum disorders. I know how it feels to wade through the whole getting a diagnosis quagmire. You may want to pick up a book called "Quirky Kids" which talks some about getting a diagnosis and what to do after for autism and other similar disorders.

For MadisonMom and others having insurance problems, don't give up fighting! Many states have parity laws which require insurance companies to cover autism the same as other medical problems. Do a search for "autism parity law _state name_" for whatever state you live in. A lot of the autism web sites have information on your rights with insurance companies and public schools.

snoozn
 


snOOzn or anyone else,
Can you recommend some good websites and/or discussion boards for autism disorders?
 
Originally posted by Nik's Mom
snOOzn or anyone else,
Can you recommend some good websites and/or discussion boards for autism disorders?

Here is a great website with info and a discussion forum called OASIS:

http://www.udel.edu/bkirby/asperger/

It has tons of info on it! I highly recommend it.

For help with a gluten free/casein free diet, which has been very helpful for our son:

www.gfcfdiet.com

For books and other info from Future Horizons:

http://www.futurehorizons-autism.com/

And for some miscellaneous information:

http://www.autismhelp.info/main.htm

And for anyone in the Portland, Oregon area:

http://www.gameclubonline.com/

I hope these are of help to you.
 
Hi just wanted to let you know how we got the diagnosis. We saw a psychologist who specializes in Autism as well as a Neurologist. My DS now sees a psychiatrist who also agrees with this diagnosis. Talk with other parents who have children on the spectrum they will be your best resource.
 
My son was diagnosed 2 yrs ago with a langauge delay. A child Psycologist did about 3 hrs of testing on him and made the diagnosis. We always thought she was wrong or missed somethings. Well he is in Kindergarten now
i just wanted to mention that diagnoses made so early in life often change. It looks like your child's diagnosis of "Language delay" was made at about age 3. That might have been the most evident thing at the time, and as long as it got him the help he needed, it was probably adequate.
Sometimes Psychologists/Developmental Pediatricians don't give definite diagnoses before Kindergarten age because the diagnosis can change a lot as the child gets older and more mature.
 
Our DS began with AS symptoms at age 3. He is now 9. Most of his issues are social-he has a hard time interacting with peers. He does have some sensory issues, but performs above average academically. We started with our pediatrician who sent us to a special needs pediatrician. The SNPed sent us to a group for a neurological and neuropsychological workup. This is where the AS was confirmed.
On a side note, I was always dismayed by the amount of info on the diagnosis, but lack thereof on treatment. For us treatment took a year to fine tune- and still needs frequent adjustments. We have a pediatric psychiatrist for meds, a psychologist for weekly counseling, our spec needs pediatrician, a very supportive school staff and our own supportive family. One particular advantage is our psychologist- she was able to set up what's called DIAD-DS works with another boy his age and the psychologist once a week- has REALLY HELPED the social things. Finding the right meds was also big-ours is 12.5 mg Zoloft daily. It takes all parts working together to make progress. Sometimes progress is slow but baby steps are better than none.

When we started with our current psychologist, she asked what we hoped would come from all of this. I told her I just wanted him to smile again. Two years later, SMILES daily! Dreams can come true!
 
Nik's Mom and others looking for links--the links above look good--I checked out OASIS when I thought my daughter might have Aspergers. Here are a few more links that I've used:

http://www.autism-resources.com/links-pages.html
This page is just a list of links, several of which I have found helpful. I haven't tried all of them.

http://www.phad-fife.org.uk/
I found this one (a group in Scotland) after my daughter got her HFA diagnosis. There are some really good articles here for those with HFA or Aspergers

http://www.nldline.com/
My older daughter has NLD which is similar to Aspergers. This site is a great resource for me. It describes the difference between NLD and Aspergers for those who have an Asperger-y kid who doesn't completely fit that diagnosis.

And here are 2 books I've enjoyed recently:
http://www.amazon.com/exec/obidos/t...102-8260381-0121749?v=glance&s=books&n=507846
Quirky Kids isn't in depth on any one diagnosis, but it's a good general reference. I don't agree with the authors on everything, but it gives you a look at other families with quirky kids so you don't feel as alone!

http://www.amazon.com/exec/obidos/A...1283/sr=2-1/ref=pd_ka_2_1/102-8260381-0121749
The Essential Difference is about a fairly new theory that sees autism as being a sign of an "extreme male brain." It's probably not as useful as it is interesting and I can't resist books with little quizzes to take--I found out I have a male brain myself (and I am not a male!)

snoozn
 
In Birmingham we have the Sparks Clinic which is sponsored by Civitan International Research Center. It is where you can get a complete development neuropsych evaluation. Check in your area to see is civitan has any similar programs. Ours is at UAB (Univ of Ala at Bham). My son has a genetic syndrome but also has sensory integration dysfunction, vestibular dysfunction, and found out two days ago he has dyspraxia (and a host of other issues!). I always suspected dyspraxia but now we have a diagnosis. A ped. neurologist should be able to diagnosis aspergers. If it is language that is slow check apraxia. Do a search on the web and read about it. My son exhibited (still does) autistic tendencies when he was younger but has overcome alot w/ me working w/ him. He hasn't had alot of PT or OT since our insurance won't cover it but I have a general idea what to do so we do things at home. We qualify for a state program and they are going to provide his OT.
 
DS9 was diagnosed with Aspergers by the schools psychologist last year - testing (Free) recommended by the school. DH & I had never heard of Aspergers, but when I started reading about it it really fit our sons behavior. (And also DHs...but thats another story...) Our school system has been great! DS has an ISP (Instructional Support Plan) and he gets academic AND social counseling 2x a week for each. We also take him to a psychologist every other week during the school year and he sees the psychiatrist every 6 weeks or so to check on his meds. It will always be a challenge with him, but our life has improved GREATLY since his diagnose and all the help we have received from our school system. His teacher this year is wonderful. She is also the mother of 3 boys so she can see things as a teacher AND a Mom. To stop some of the frustration he feels she modifies his work load - once he doesnt HAVE to do something he then most times goes on to do it anyhow.

I am rambling...hope all goes well for you!

Jill (whose apostrphe key is still stuck..)
 
We are traveling to WDW beginning of November and staying SOG Resort. My DS, just turned 3, had been working with Speech Therapist and early intervention since age 2. Just evaluated by school system when turned 3. Possible AS, as he definately exhibits many of the traits - yet very smart although with sppech delay inable to always get his point across to me. We are beginning a LIU pre-school, wonderful teacher and he will be further evaluated there.
To my point: Thanks to all of you for posting. This has been a difficult time for me, as there seems to be so so many unanswered questions. But DH and I remain forever positive.

Lately, I have some concerns about our upcoming trip to WDW. I hope it isn't too much for DS. I have posted about viewing sites outside of parks for Wishes and Illuminations. He loves fireworks!
But can become terribly overwhelmed in crowds and waiting. I have considered the GAC - just in case. Can others post their experience.
Thanks to all!:wave:
 
Hi -- I am shouting for emphasis. It is the best thing to do for everyone concerned. My son is 8 and we were at WDW last March.
He has HF Autism, so HF that we felt guilty to request a GAC right off the bat. 1st day at MK was great (rainy so there weren't many lines) but second day at MGM was very difficult. We were so stressed and kids so off the wall that when we went to the office for the GAC, they didn't even ask for any paperwork or diagnosis. While there are still small lines, it made our trip more manageable.
Have a great time!:earsgirl:
Night Owl
 
Originally posted by lademps
I have posted about viewing sites outside of parks for Wishes and Illuminations. He loves fireworks!
But can become terribly overwhelmed in crowds and waiting. I have considered the GAC - just in case. Can others post their experience.
Thanks to all!:wave:
The GAC won't help that much with viewing for Illuminations or Wishes. One good viewing area for Illuminations (if you don't care that much about being close) is the bridge/walkway area that goes between Test Track and WS (in front of the First Aid station). It's a little removed from the sounds and definately removed from the crowds.
You may find that you don't have waits for much at all since you are going in early November. That should be before the Christmas/Thanksgiving crowds.
 
lademps,
I feel your pain! It is so difficult to go through this experience. I know because we are going through the same thing! So hard to get a diagnosis!
I say get the GAC! You won't always need it, but it's nice to have to avoid a meltdown in public.
 

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