princessfionasmom
DIS Veteran
- Joined
- Jun 3, 2008
My husband was recently diagnosed with leukemia, CML Blast Stage. We had no idea he was sick until just before valentines day. All of a sudden he was loosing his color and couldn't keep up with his running which was so unlike him. Well I dragged him to the Dr. on valentines day and she sent us right to the ER as his blood level was so low. When we got to the ER I heard one of the nurses say to another, have you seen his levels? I thought they were talking about how low his blood level was, because he was extremely low but we later found out it was his white blood count that was out of wack. So we were sitting in his room in the ER and in walks this Dr and introduces himself as the head of oncology , we both looked at each other and were totally dumbfounded. The Dr. went on to explain that my husbands white cell levels where out of wack all the way down the line but wanted to run a few more tests and we'd talk the next day. Well the next day the Dr. comes in and tells us he believes my husband has Chronic Meyoloid Leukemia but its a disease that can be controlled by taking a pill they would just need to do a bone marrow biopsy to confirm the diagnosis. A couple of days later we were at his office getting the test done and were told we'd have the results in 7-10 days. Well we get the results and it was a big slap in the face, blast stage. We were fully expecting that my husband would go on this pill that he would take to keep the disease in remission. Now we are faced with only one option, a stem cell transplant. It was so horrifiying sitting there listening the the transplant guy telling us that this is his only chance of surviving. They immediately started him on chemo and he goes for weekly spinal chemo and fusion chemo as well as taking a chemo drug called gleevec. They do the weekly spinal to prevent any blasts from going to his brain. It's just been so overwhelming. They are searching for a match in the bank right now and once we get a match my husband has to go thru intense chemo and irradiation to kill all his bone marrow and his immune system. I can't believe he has to go thru this. He has also taken such good care of himself, eats pretty good and exercises all the time, this is just crazy and so unreal.
My husband is being treated at Dana Farber in Boston so I know he will get the best care he possibly can. Anyway, I got my title Cancer Sucks from a pin one of the phlabotomists(sp?) was wearing, said one of his patients gave it to him. Well, sorry I went on and on, I just feel like I needed to get it all out as we have two young children so talking about it around the house is not favored upon. The kids know their dad is sick but we are not going to worry them unless it's absolutely necessary. I don't know why I keep rambling on, please excuse me. I'm just looking for prayers from those of you who pray and positive thoughts from those who don't.
Thanks,
Carmel
My husband is being treated at Dana Farber in Boston so I know he will get the best care he possibly can. Anyway, I got my title Cancer Sucks from a pin one of the phlabotomists(sp?) was wearing, said one of his patients gave it to him. Well, sorry I went on and on, I just feel like I needed to get it all out as we have two young children so talking about it around the house is not favored upon. The kids know their dad is sick but we are not going to worry them unless it's absolutely necessary. I don't know why I keep rambling on, please excuse me. I'm just looking for prayers from those of you who pray and positive thoughts from those who don't.
Thanks,
Carmel