SixUnderSix
Earning My Ears
- Joined
- Jul 16, 2010
We have 6 kiddos and 3 have significant special needs - we've traveled to Disney on our MAW trip for one of our three year olds but have since, adopted another special needs 3 year old and we are fostering a special needs 1 year old. I have some questions from people who are more experienced than I am (P.S. We are an "on the go" family and we enjoy life with our kiddos to the fullest...yes I realize my situation may not be what YOU would want to travel with Disney with, but we want to celebrate with our angels while we have the chance - all three of our 'special' children have (or have had) life threatening issues - so please keep comments positive )
Here's what we look like:
Mom (me) - age 33 - perfectly able
Dad (husband) - age 38 also perfectly capable
Daughter - age 9 - A wonderful helper
Son - age 8 - severe ADHD but nothing that would interfere with our trip
Son - age 6 - a little hyper but lots of fun and able to help
Son - age 3 - Wheel chair, hypoplastic left heart syndrome, feeding tube, oxygen, pulse ox monitoring, and heat intolerable due to heart condition (he's prone to excessive sweating and overheating -- some of which we can manage with extra tube hydration).
Son - age 3 - wheel chair, severe fetal alcohol syndrome, legally blind (optic nerve hypoplasia), feeding tube, severe neurological impairment, etc.
Foster son - age 1 - immobile but not in wheelchair due to age (we will need to keep his stroller with us), he has a tracheostomy, feeding tube, requires oxygen, continuous pulse ox monitoring, frequent suctioning, also very heat intolerant, etc.
First of all, what accommodations do you think I should request? Will the mobility accommodations be enough or should I also get a DAS because we can't be in line for long periods of time due to our need for so much medical equipment that may require to be plugged in frequently and our need to have a reasonable place to suction our foster baby, etc. and our need to keep 2 of our kiddos out of as much heat as possible (I know it's Florida, though...lol).
My other question is about our foster baby whom we will be taking with us in September. He has a trach and requires a trach collar/heated humidification at night. I'm not sure if I could even pack our compressor and system and try to fly it there so my next logical choice is to rent one. I'm not sure if I'm not typing in the right search words or if I'm digging deep enough on google but I'm having a hard time locating a company that I can rent one from.
I've left myself ample opportunity to find and secure a rental, get required prescriptions for the oxygen, etc. but need help finding a company that I can rent these items from.
Any other suggestions in general (I've read the FAQs but know many of you have specific conditions, or your children do, that mirror ours and thought you might be able to help a little).....tips for traveling with 2 wheelchairs, a large medical stroller, 2 tanks of O2, 3 feeding pumps, suction machine, 2 pulse ox monitors, plus their supplies???
Hope you all have magical days - thanks for any help you can give
Here's what we look like:
Mom (me) - age 33 - perfectly able
Dad (husband) - age 38 also perfectly capable
Daughter - age 9 - A wonderful helper
Son - age 8 - severe ADHD but nothing that would interfere with our trip
Son - age 6 - a little hyper but lots of fun and able to help
Son - age 3 - Wheel chair, hypoplastic left heart syndrome, feeding tube, oxygen, pulse ox monitoring, and heat intolerable due to heart condition (he's prone to excessive sweating and overheating -- some of which we can manage with extra tube hydration).
Son - age 3 - wheel chair, severe fetal alcohol syndrome, legally blind (optic nerve hypoplasia), feeding tube, severe neurological impairment, etc.
Foster son - age 1 - immobile but not in wheelchair due to age (we will need to keep his stroller with us), he has a tracheostomy, feeding tube, requires oxygen, continuous pulse ox monitoring, frequent suctioning, also very heat intolerant, etc.
First of all, what accommodations do you think I should request? Will the mobility accommodations be enough or should I also get a DAS because we can't be in line for long periods of time due to our need for so much medical equipment that may require to be plugged in frequently and our need to have a reasonable place to suction our foster baby, etc. and our need to keep 2 of our kiddos out of as much heat as possible (I know it's Florida, though...lol).
My other question is about our foster baby whom we will be taking with us in September. He has a trach and requires a trach collar/heated humidification at night. I'm not sure if I could even pack our compressor and system and try to fly it there so my next logical choice is to rent one. I'm not sure if I'm not typing in the right search words or if I'm digging deep enough on google but I'm having a hard time locating a company that I can rent one from.
I've left myself ample opportunity to find and secure a rental, get required prescriptions for the oxygen, etc. but need help finding a company that I can rent these items from.
Any other suggestions in general (I've read the FAQs but know many of you have specific conditions, or your children do, that mirror ours and thought you might be able to help a little).....tips for traveling with 2 wheelchairs, a large medical stroller, 2 tanks of O2, 3 feeding pumps, suction machine, 2 pulse ox monitors, plus their supplies???
Hope you all have magical days - thanks for any help you can give