Advice needed- child with food allergies

g3pak

DIS Veteran
Joined
Mar 14, 2008
DD 10 has food allergies- carries epi-pen for peanut and egg and has less severe dairy allergy. (We have never had to use the epi-pen, knock on wood). We have been to WDW several times and they are awesome with our requests at restaurants. I expect the same on a Disney cruise. DW and I have been on one Disney cruise and I want to take the family on one in 2015. DW doesn't feel comfortable being on a ship or in a foreign port and away from American hospitals in case DD has accidental contact with an allergen and goes into anaphylactic shock. (Btw DW is an RN at a pediatric hospital).

Can anyone educate us concerning this? How good are the medical facilities on board? I told DW surely they have dealt with this before and are equipped, but she doesn't want to take chances with our child.

Any information is greatly appreciated.
 
DD 10 has food allergies- carries epi-pen for peanut and egg and has less severe dairy allergy. (We have never had to use the epi-pen, knock on wood). We have been to WDW several times and they are awesome with our requests at restaurants. I expect the same on a Disney cruise. DW and I have been on one Disney cruise and I want to take the family on one in 2015. DW doesn't feel comfortable being on a ship or in a foreign port and away from American hospitals in case DD has accidental contact with an allergen and goes into anaphylactic shock. (Btw DW is an RN at a pediatric hospital).

Can anyone educate us concerning this? How good are the medical facilities on board? I told DW surely they have dealt with this before and are equipped, but she doesn't want to take chances with our child.

Any information is greatly appreciated.

The medical center onboard is an outside company contracted by DCL to handle the medical issues onboard. It's basically equipped like a small emergency room. The numbers of pediatric supplies onboard isn't large, but there are some.

I've only heard good things about the medical care onboard. DH had to visit the med center on one of our cruises (possibly something he ate on a port excursion upset his stomach). He was quarantined for 24 hours. That's our only actual experience with the med center.

I have been on DCL cruises that had to change their itinerary in order to drop off sick passengers.

One thing that's most important, be sure to have the allergies noted on your reservation. That's how they can be aware of special diets/food supplies needed for your specific cruise.
 
I have nothing to add on the medical care on board. But I also have a son with food allergies (peanuts and tree nuts) and I have no qualms about sailing with him. If the allergy is noted on your reservation, they will bend over backwards to make sure she is taken care of and has food that is safe for her to eat. For the main dining rooms, they have a separate area of the kitchen where they can prepare food for those with allergies to avoid cross contamination. Buffets might be a little trickier but if you ask, they will point out exactly what is dairy/egg/nut free as well.
 
I will make sure her allergies are noted. We do this when visiting WDW and they are great. A chef always comes out and talks about the meal before it is even prepared.

DW is just concerned if she has an accidental exposure outside of Disney's control. Are the odds really low for this? Yes, but since it is our daughter, my DW is nervous about taking the chance.
 
I have several food allergies and DCL handles it fine. I worry about outside food too and avoid excursians that have a meal
 
We are cruising the Panama Canal soon with our 4 year old egg, peanut and tree nut anaphylactic reaction daughter. She is also allergic to milk and we avoid gluten. I am allergic to tree nuts and gluten.

With other cruises, we have always had extra Epi-pens and our allergist sends us with a prescription for steroids to start incase we have to use the Epi-pen while at sea. We travel with a lot of Benadryl as well. We purchase travelers insurance that includes medical evacuation and are very careful about the food we eat in foreign ports. So far, we have not had any issues. This will be our first DCL cruise and I have done a ton of research and so far, it seems like this is the best line for food allergies.
 
I have many food allergies. DCL asks that you order your food 24 hours in advance so that the kitchen has time to prepare the food safely. They are really good about accommodating my many food allergies. We cruise without kids because of DCL's ability to handle food allergies. You can make arrangements to have food waiting for you when you get back from shore excursions so that you don't have to worry about eating in the ports of call. Your Head Server is in charge of getting food from the kitchens for food allergy needs. They really don't want you to order room service as it is prepared in a separate galley. However, I have ordered food for one of the main dining rooms and had it covered and taken it with me to another part of the ship.
 
I have anaphylaxis to dairy, peanuts, tree nuts, and seafood (fish/shellfish/crustaceans/molluscs/etc) and cannot have artificial sweetners. I have cruised with Disney twice and been quite comfortable with the safety of my food both times.

DCL handles food allergies a little differently than WDW, but they set a similar gold standard.

It is important to note the allergies on the reservation; if they haven't been already you can add them.

DCL also has a special services team you can call or email and speak to about the allergies and how they will be handled. In my experience, they are very knowledgeable and helpful. The info on how to contact them is on DCL's website.

The following is a mix of info I was given in advance and learned during our two cruises; however, other people may have had different experiences !!!!


- people with food allergies should eat the in main dining rooms for all three meals (I suppose one could call this a "strongly encouraged to") as the "quick service" locations do not have large kitchen facilities and may not be able to accommodate; (at the very least, expect that QS options will be limited if they can accommodate)

- that said, on our most recent cruise (Nov 2014, Fantasy), I did eat at the quick service places a few times -- each time I told the person who takes the orders that I had food allergies and they got a chef for me to talk with. Similar to WDW, except without them writing things down, the chef talked with me about what I wanted and how they would make it safe for me. NOTE: I chose things that I knew had a reasonable chance of being made-safe-able :-)

- note that it is often VERY VERY VERY VERY noisy in the QS areas and very hard to hear the CMs (and I am guessing likewise hard for them to hear you). I have a "food allergy" notecard (4x6 pale yellow index card) with my allergies printed on it and was able to give that to the chefs -- it helped quite a lot. BUT, if you are going to try QS, I HIGHLY suggest you go at a time when they are not very busy and when there are not a lot of people around, thus making it quieter and more likely the chef and you can actually hear each other properly. Especially the first time.

- the first QS item I had was a hamburger and fries; the chef that time told me they had allergy safe chicken fingers available; I had those the next time.

- I forget how I figured this out, but I came to learn that a safe pizza was possible; I ended up having pizza twice: the chef used an Udi's pizza crust (I even saw him taking it out of the recognizable Udi's package), sauce, pepperoni and Tofuti's dairy-free "cheese" cheddar slices (he showed me the package and ingredients to ensure it was safe); he put it on aluminum foil then on the baking tray. YUMMY !!!! And awesome because it is so very rare to get safe pizza anywhere but in my own house. Because the kitchen area is visible to the guest area, I got to see him washing his hands (more than once), cleaning the prep area, getting the ingredients from cold storage, preparing it, etc. Kind of neat to see it all in action.


- on boarding day those with food allergies are supposed to go to the location on the navigator that people who need to make dining changes are to go to (i.e. on fantasy: Royal Court, using the side door not the main door); IME I introduced myself, they looked me up and they confirmed that they had my food allergies correct. then they gave me a menu for my dinner that night and I ordered what I wanted to have -- this gives the chefs time to make your meal as safe as they can given X hours notice. Note that the dining change time is only during a very limited timeslot of a couple hours -- this was our priority once we were on board and that window opened.

- each night at dinner in the MDR the head server has primary responsibility for allergy meals, but it may be them or it may be your server who actually does the most work (on our first cruise the head server was the one I dealt with almost exclusively; on the second the head server checked in on us and handled a few things, but the primary person was our server, who was excellent and well-informed on food allergies)

- each night at the end of dinner in the MDR you will be brought the menu for dinner the following night and asked to place your order -- this gives them almost a day to make safe food ! :-)

- I learned I could ask for a menu item we had already had that I really liked that that was not on the new dinner menu and they would try to get it for me -- each time I asked they managed to get it (the item I remember the most was an amazing butternut squash soup that I asked for a second night in a row :-) )

- once our server learned I LOVED the safe bread he had found for me, he made sure we had LOTS and LOTS -- they ran out the second night, and he made sure that did NOT happen again :-)

- the day before Castaway Cay at dinner in the MDR you will also be asked to place your order for lunch at CC. There is not a printed menu, so it is more of a conversation of the types of food they have and what you would like. you will be told where (which of the dining places) and after what time you can come have your lunch on CC (our was after 12 noon)

- at CC you go to the appointed location after the specified time and track down a CM and tell them you have an allergy meal and ask where to pick it up; they will direct you to the area to go to. there will be a CM there who will take your name and stateroom and may ask what you had ordered and they will go back and get your food.

- at CC at teh dining areas there are things like (commerical packaged) snack bags of (Lays?) potato chips (plain and BBQ I think), cut up (eg melons, watermelon) and whole (eg apple, banana) fruit, fountain ddrinks, and other additional items which may be safe to eat as well

- we never tried room service but i have read mixed messages on whether a food allergy person can order from them or not; certainly room service is in the same pile as QS: strongly encouraged NOT to because the kitchen facilities are not as extensive as the MDRs


As for reactions.

I buy an annual multi-trip travel medical insurance policy that covers pre-existing condidtions if they are stable for seven days before departure and which includes medical evacuation coverage. It covers upto $5 million. I also have a smaller level of travel coverage through work's health insurance plan that fully covers all pre-existing medical conditions, as long as the trip length is not over a certain number of days that I stay well short of.

I have a battery-operated portable nebulizer anyway but i bring extra meds for it. My doctor has prescribed me prednisone with specific instructions for how to take it and when to go see an MD should I need it while travelling (it is only for this purpose). i take measures to reduce my general allergen exposure when traveling (some i do at home normally, others are just for traveling).

I bring nitrile gloves and sanitizing wipes and any hotel room/stateroom we stay in gets surfaces we will/may/might use thoroughly wiped down as a priority when we arrive. It takes a lot of wipes.

I carry multiple epi-pens and auvi-Q/allerjects while travelling. I think this time I had 6 ? At all times on the ship outside the stateroom I carry at least one on my person, along with my asthma rescue inhaler and benadryl tablets. I have a couple different pouches they can go into, depending on the activity i am in. Most commonly, the pouch is one that i carry inside a cross-body bag (Disney makes a nice small navy one with the DCL brand on it; the neoprene pouch from Epi-Pen ccarrying an epi-pen, asthma inhaler and benadryl fits in it just perfectly along with an iphone :-) ). I also have a good quality brand name waterproof pouch-thing that the epipen and inhaler in their pouch went into when i was snorkeling at CC -- I wore it while snorkeling; it has a strap that is intended to be cross-body but i wore it as a waist belt and the pouch-thing itself floats; it took a bit of getting used to since it floats; but i found a happy position for it and it stayed on me the whole snorkel. i am pretty sure i looked very strange to anyone watching :-)

On our last cruise one night at dinner I had a mild reaction to the airborne seafood and had to leave the MDR mid-meal. I did not use the epi-pen (my emergency plan allows this given the mild single-system symptoms i was having at the time -- other people's may not !!!). Our server was great. He noted that a later night's dinner would have even more seafood in the air because there was a lobster item on the menu that most people would have, so at his recommendation I made arrangements to have my meal delivered to my room instead for that night. I missed the drawing night at Animators, but did have a great Animators meal in my room, dessert and all :-)

I do not know how complicated of an anaphylaxis emergency the medical center can handle nor what their protocol is nor when they would decide evacuation is required, as I have not had to use them. My sister did have an eye-based allergic reaction to food at Cabanas (presumably cross-contaminated) on our first cruise that she got to visit the medical center for. They were prompt and very professional. As a result of that adventure, we decided to take a town car service to our second cruise so we could get on earlier and actually eat that first lunch at an MDR instead of Cabanas being the only option open.


Hope this helps some.

-SW
 
DCL is just as good about allergies, IME, as WDW and DLR. I've never had an issue at any of them. I would, however, be extra careful about eating any food while in a port (other than Castaway Cay). I can't comment on the medical standpoint, other than you can't live your life in fear of something that is very unlikely to happen. Talk to your daughter's doctor and get whatever meds/equipment they recommend.
 
Thank you everyone. Such wonderful information. Hopefully this will put my wife's mind at ease and allow us to go.
 
My DS also has a severe food allergy (peanuts) and I understand that it can be very scary. We have sailed DCL several times and always been happy with the allergy plans they have in place. I can't comment on the ships medical facility as we have never used it.

We also have been very blessed and never had to use his Epi-Pen. Unfortunately, this is something he will have to deal with for his entire life (per his Dr) so we have drilled into him, starting at a very young age, to always be cautious. He is 15 now and while it's still scary we have managed through caution and prayers to avoid any reactions thus far.

Ultimately it's your decision and I wish you all the best.
 
I have severe food allergies and have not had a problem. Our last cruise we shared a table with a boy allergic to peanuts. His parents let him eat a lentil soup not realizing that lentils are related to peanuts. They gave him the epi-pen just in case. The medical center kept checking on him and the dining room sent the rest of their meal to the cabin. He was fine after some rest. HTH
 
My DS8 has a severe food allergy to dairy called FPIES. This is not responsive to epinephrine or steroids. We often vacation at WDW due to their fabulous handling of allergies (BTW, we just took him to Disneyland in Oct and were disappointed in most food places there). A few years ago I took my sons, without DH, on our 1st Disney cruise. I was in an absolute panic about the food situation. I ended up speaking directly to a nurse who works in the medical center on the Dream to run through the medications and medical support he would need in the case of an ingestion. I am a pediatric subspecialist physician. I found her quite knowledgable and she assured me that they indeed had all of the supplies and medications on board so I felt much better before our trip.

We always note the allergy on the reservation (I actually call a few times to make sure it is on there) and learned on that 1st cruise to ask for a table for just our family at dinner. This is because on that 1st cruise we sat with another family with 3 young girls who were basically slathering butter all over the table, their faces, and all over all of their food each night which made me so nervous. Also, they tended to have to wait for our food to get theirs because DS8's special order did seem to take a bit longer.

We have since been on that 1st cruise (Dream) as well as 2 others (Dream and Magic). We never once went to the restaurant on the first day to check in and order the 1st night's food as a PP mentioned - I did try to do this on the 1st cruise upon boarding but the CMs I asked had no idea what I was talking about. However, with the PP's advice I will do this in April on the Wonder!

That 1st cruise our head server was terrible and did not help us at all. Our poor overworked server helped us with the next day's meals and he got an enormous tip from me (head server did not!). On the other trips the head servers were more helpful. We did indeed order all his meals for the next day after dinner. For the most part, we were able to pick the meals up at the buffet (breakfast or lunch on Dream) or in a MDR and eat there or take his up to the buffet (breakfast on Magic).

The very best experience was our 2nd cruise on the Dream with servers Rachel and Leslie. They were fantastic and they basically told DS to order whatever he likes to eat at home. He had pizza and potstickers and all of his favorites as well as special desserts each night and they found him rolls for each night (which my other son also ate because they were plain).

The last cruise we took was a 3-night on the Magic without DH again (he prefers his golfing trips to cruising!). For the 1st time we had the late dinner seating and so some mid afternoon snacking had to take place and we basically stuck to fruit and hot dog/brats for DS8 from the spots on the pool deck.

We have never done an excursion except for on CC. We have always cruised to Nassau and haven't gotten off the ship on that day. I am not sure what we would do if we did an excursion that would encompass a meal. I did check out Atlantis and they supposedly do accommodate food allergies at some of their restaurants, but we ended up not going there. On our upcoming cruise (Wonder) we have a stop at Key West - I think we will just get off the ship and do a self-guided walking tour and return to eat on board.
 
I buy an annual multi-trip travel medical insurance policy that covers pre-existing condidtions if they are stable for seven days before departure and which includes medical evacuation coverage.

Where do you buy that? I haven't heard of an annual multi-trip insurance product in the States.
 
We cruised for 14 nights on the Wonder in September with our 4 y/o, who is allergic to the top 8 allergens plus sesame. We had absolutely no problems, and did not visit the medical center. It was awesome! We also have never had to use the epi-pen.
One piece of advice I would offer, is to bring pre-packaged safe snacks from home to take with you off the ship while you are in port. You are not allowed to bring food off the ship, including fruit, unless it is factory sealed pre-packaged food. They don't have much to offer for you to take from the ship. They gave us a whole box of Enjoy Life cookies one day to take with us, but I wish I had more from home.
I am also a pediatric nurse and I felt comfortable taking our son on the cruise.
 
We cruised for 14 nights on the Wonder in September with our 4 y/o, who is allergic to the top 8 allergens plus sesame. We had absolutely no problems, and did not visit the medical center. It was awesome! We also have never had to use the epi-pen.
One piece of advice I would offer, is to bring pre-packaged safe snacks from home to take with you off the ship while you are in port. You are not allowed to bring food off the ship, including fruit, unless it is factory sealed pre-packaged food. They don't have much to offer for you to take from the ship. They gave us a whole box of Enjoy Life cookies one day to take with us, but I wish I had more from home.
I am also a pediatric nurse and I felt comfortable taking our son on the cruise.

Cherylleen, who was on your server team? Do you recommend them?
 
Our head server was Sarah from England; our server was Jorge from Peru; and our assistant server was Zimik from India. They were wonderful, and took very good care of both of our children. It could not have been better.
 
Cherylleen, who was on your server team? Do you recommend them?

I would like to know this as well. We will be on the Wonder for 14 days in May.

Our head server was Sarah from England; our server was Jorge from Peru; and our assistant server was Zimik from India. They were wonderful, and took very good care of both of our children. It could not have been better.

Do be aware, however, that teams are changed around all the time - people go on vacation, people change ships, people get promoted. It's better to request ONE because otherwise they don't know which is the priority. In the case of allergies, everything will have to be checked through the head server, so I would go with him/her for the request. (In this case Sarah.)
 
Do be aware, however, that teams are changed around all the time - people go on vacation, people change ships, people get promoted. It's better to request ONE because otherwise they don't know which is the priority. In the case of allergies, everything will have to be checked through the head server, so I would go with him/her for the request. (In this case Sarah.)

Great tip, thanks!
 

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