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Thank you so much for taking the time to keep us updated. Ashley and all of you are constantly in my prayers. It must be exhausting for you and your family and I think a planned holiday is important so that you have something to aim for. Ashley seems like such a fighter. Having you there...

Thank you so much for taking the time to update us on Ashley's condition. I'm glad you and your family are changing your goals for her - she will need you to keep grounded and concentrate on all the little improvements and celebrate them. I know it will be a long haul for you all. But she is...

Just wanted you to know that I am still keeping Ashley, you and all your family in my prayers. Hope things are progressing. Jackie x:hug:

Haven't read the whole of the thread but wanted to say to TC and GrandMum particularly how you and your families will be in my thoughts and prayers this evening. I only got as far as reading about GrandMum's loss today and couldn't continue with the thread for tears. All of us who have loved...

Which you are entitled to! That was partly the reason why I headed this thread the way I did, and posted it on this particular section of the forum, so that people who didn't wish to know wouldn't read it. For me, the ileostomy is a disability and why should it be something to be hushed up yet...

Believe me, you have all the prayers my family and I can muster. As a mother I can only imagine what you are going through. And poor George so near to the start of their lives together having to see her go through this. You will be in our prayers this evening along with a friend of mine who...

How true is that?! I am always open and honest about what has happened to me. At the end of the day, the more of us talk openly about such matters, the more support we can be to others who are going through the same thing. I will never understand the "shh" approach to bowel and bladdder problems...

Just found this! Very funny.:rotfl2: Jackie

Jackie, take any type of medication with you in the carry on. I am flying with Virgin Atlantic. So far their Special Assistance Department have been wonderful. I have a wheelchair to transport and crutches (which I use indoors and occasionally outside). I will take all medication with me...

Yes I am a member of two. Was astounded to find that none of them had ever visited Disney!! Several had been to Europe but didn't really get the answers I needed. With you and goofieslonglostsis, I have more information from two people than I had with two forums devoted to people with...

Thank you both for your invaluable advice. There is a lot in your posts that I will take into consideration when packing etc. Will be interesting though as I am diabetic too so most of my luggage will be full of medical stuff! I have bought myself a cool bag for my insulin as that will have to...

I have a permanent ileostomy and consequently have a bag attached to my stomach to collect waste from my small intestine. Is there anyone on here that also has an ileostomy or a relative/friend with one and who has travelled to WDW? I just wondered whether you had any trouble with adhesive of...

Oh no!!! Get him DNA tested immediately!:rotfl: Thankfully, my soon to be 16 year old is as stupid as I am over Disney and probably wants to go even more than me - if that is at all possible!!:lmao: J. x

Wow - that pixie dust really gets around! What a lovely, thoughtful thing for them to do. It must be so much harder to plan when you have a disabled child. Luckily, its only me to worry about - DH and DS are fighting fit! We haven't been to WDW since June 2005 so I want to make next year's...

I am disabled, sometimes using a wheelchair, sometimes just crutches. I do not need a wheelchair to get around my home, or in a hotel room. We have booked 3 weeks at Port Orleans Riverside in August 2010 :banana: through Virgin Holidays. I have just received my invoice which has requested a...

Hi Mandy - we are going to WDW 2nd-23rd August 2010 staying at Port Orleans Riverside - first visit since June 2005!:banana: Jackie

God bless you all and please know that prayers are being said for all of you over here in London, England. I didn't you know or Alize but from the other posts here I can see that you both touched many peoples' hearts. Take comfort that you surrounded him with love during his time with you. I am...

I had to have my colon removed in April 2006 following a very severe flare up of Ulcerative Colitis. I was supposed to be having a reversal surgery after about 3 months but then developed insulin dependent diabetes. This was caused by long term, high dose, steroids which I had prior to the...

Oh Katholyn. I am so sorry to hear of all this additional stress and worry that you are going through. :grouphug: Prayers and many, many good thoughts are coming to you from London, England. Be strong. Wilgus needs you. I remember when my husband was facing a life threatening illness/surgery...

That is excellent news. :Pinkbounc The difference to your life will be amazing and that next trip will be all the sweeter. Jackie