Fibromyalgia Thread

[SeaSpray]

OH MY GOSH I was just typing such a long, important post and hit a wrong key and kaboom GONE~

Anyways, I have some news that I would like to share with you all that I hope might be of help to some of you. I am hoping it does. As you all know, I have had issues with multiple food allergies causing chronic inflamed hives since Christmas.

These did not go away until I eliminated dairy, wheat, gluten, soy, eggs, and grains from my diet. It was an elimination diet to see what I was reacting to. That was great except when I cheated a little here and there. Then I started eating like this all the time, eliminating processed foods as much as possible. In other words, only one type of salad dressing that fit the above criteria, whole pure maple syrup. If it was processed it had to have less than 5 ingredients in it. Whole, fresh foods, fresh fruit and vegetables. I stopped cooking with Olive Oil and started cooking with coconut oil. I saw an improvement in my hives (they stopped, except for the rare few that I had here and there). I also started supplementing my diet with flax seed and chia seeds and almond butter, and started eating apples as they contain quercitin which helps my hives.

Then I started really eating well. But found I started breaking out again. I started reacting to things like bananas when I started adding them back in and gluten free oats, strawberries, spinach, nutrtional yeast. What I am saying is although I am eating 90% better that what i was (junk food take out all the time - I do still eat chips and french fries sometimes) I was reacting to whole healthy foods that I did not have a problem with before.

I also had to go off all of my meds, no multi-vitamin, no fibro meds, no advil. The only thing I take now is a B6 supplement that is organic and contains no gluten. I have to say considering I am off my fibro meds, my fibro is certainly not any worse, except when I have my period.

My digestion is soo much better, no diarrhea (sorry if that's tmi), no heartburn, acid reflux, no loss of voice cause acid reflux is so bad, no more sinus congestion, no bloating, no gas, no water retention. AND I am losing weight! Slowly but surerly. Not even extra weight when I have my period. I do tend to get migraines when I have my period but so far, I am still medication free and get through it and it's getting better. I feel so much better in so many ways. Still do not have a lot of energy though due to lack of sleep but most of that is due to my son lately and my kitty and noisy neighbours I feel about 85 % better but not 100% yet.

So I went to the healthfood store trying to find a vegan protein supplement because I am trying to find a banana free strawberry free dairy free smoothie that I like but is filling for breakfast. This is the trickiest meal for me, since most of my choices for breakfast it would seem I am intolerant to. So while helping me I started discussing how every day I seem to have new foods that are giving me hives again and am afraid that my list of foods will diminish so that I won't be able to eat even healthy foods and how I miss my bananas, etc. He started describing intestine Permeability (sp?) I said do you mean "leaky gut?" I was excited I knew what he was talking about but scared cause when I briefly read about that, I thought OMGosh I am glad I don't have that, it sounds gross" LOL He said eliminate some foods, potatoes have to go still I think and drink bone broth. THe gelatin from the bone or the bone marrow is very healing to our intestines.

I started researching this more and more and messaging people who were going through the same things. What i found has been very interesting: It would seem that most people with auto-immune issues such as chrohn's, fibro, colitis, also have digestion issues such as heartburn, ibs, etc.

It would seem that ALL of these symtoms apply to me, and that they all started back at least 8 - 10 years ago after I moved here and started eating way more grains, and whole grain whole wheat at that - nothing white, all brown bread, pasta, wraps, and lots of dairy in an attempt to be healthy. That is around the time that all my sypmptoms began and steadily got worse. I truly believe that all of these issues, are due to years of undiagnosed food intolerances to dairy and wheat which then inflammed my intestines and whole body, When the body experiences so much inflammation, the intestine walls become permeable and undigested food then leaks into the system which your body sees as an invader and attacks it. Therefore, resulting in foods that you are not intolerant to giving you a reaction.

So I could keep eliminating foods until the cows come home and won't get any closer to feeling better. And the foods I can't eat without an immune reaction (hives) will continue to increase/and/or the severity of my intolerance will increase. So the key is to HEAL my tummy and then I will be able to tolerate foods more easily. I will however still be gluten free and probably grain free and diary free, but if I want to have the odd piece of cheese I want to be able to without causing pain and hives.

So there are several protocols I have discovered about when trying to heal a leaky gut. Read about them here....

http://blog.healclick.com/evolving-paleo-diet-for-leaky-gut-syndrome/

There are several modifications to these for those with specific conditions like chrohn`s, and autoimmune conditions.

But I am finding this all very interesting and the steps I have taken I have seen an improvement in less than 3 months.

Sorry for the book but I hope this can help someone At the very least, give someone some reading to do to make a decision on your own. All our systems are different so these things, If tried would have to be tweaked according to us, however I believe this is onto something.

Love you all, keep well.

Thanks so much for all of that info. I firmly believe that my fibromyagia, RA, and IBS are all related. When I feel bloated and nauseous, those are the days when my joints and muscles hurt the most and I feel the most fatigued. It seems like a huge task to try and find out the offending foods, but I really am going to put in more effort.

Hugs and pixie dust to all.

Edited to add: A few weeks ago I started to take probiotic capsules, in the hopes of improving my stomach/intestine issues. I thought they were working fairly well until the last couple of days.

 

[rosanab1031]

OH MY GOSH I was just typing such a long, important post and hit a wrong key and kaboom GONE~

Anyways, I have some news that I would like to share with you all that I hope might be of help to some of you. I am hoping it does. As you all know, I have had issues with multiple food allergies causing chronic inflamed hives since Christmas.

These did not go away until I eliminated dairy, wheat, gluten, soy, eggs, and grains from my diet. It was an elimination diet to see what I was reacting to. That was great except when I cheated a little here and there. Then I started eating like this all the time, eliminating processed foods as much as possible. In other words, only one type of salad dressing that fit the above criteria, whole pure maple syrup. If it was processed it had to have less than 5 ingredients in it. Whole, fresh foods, fresh fruit and vegetables. I stopped cooking with Olive Oil and started cooking with coconut oil. I saw an improvement in my hives (they stopped, except for the rare few that I had here and there). I also started supplementing my diet with flax seed and chia seeds and almond butter, and started eating apples as they contain quercitin which helps my hives.

Then I started really eating well. But found I started breaking out again. I started reacting to things like bananas when I started adding them back in and gluten free oats, strawberries, spinach, nutrtional yeast. What I am saying is although I am eating 90% better that what i was (junk food take out all the time - I do still eat chips and french fries sometimes) I was reacting to whole healthy foods that I did not have a problem with before.

I also had to go off all of my meds, no multi-vitamin, no fibro meds, no advil. The only thing I take now is a B6 supplement that is organic and contains no gluten. I have to say considering I am off my fibro meds, my fibro is certainly not any worse, except when I have my period.

My digestion is soo much better, no diarrhea (sorry if that's tmi), no heartburn, acid reflux, no loss of voice cause acid reflux is so bad, no more sinus congestion, no bloating, no gas, no water retention. AND I am losing weight! Slowly but surerly. Not even extra weight when I have my period. I do tend to get migraines when I have my period but so far, I am still medication free and get through it and it's getting better. I feel so much better in so many ways. Still do not have a lot of energy though due to lack of sleep but most of that is due to my son lately and my kitty and noisy neighbours I feel about 85 % better but not 100% yet.

So I went to the healthfood store trying to find a vegan protein supplement because I am trying to find a banana free strawberry free dairy free smoothie that I like but is filling for breakfast. This is the trickiest meal for me, since most of my choices for breakfast it would seem I am intolerant to. So while helping me I started discussing how every day I seem to have new foods that are giving me hives again and am afraid that my list of foods will diminish so that I won't be able to eat even healthy foods and how I miss my bananas, etc. He started describing intestine Permeability (sp?) I said do you mean "leaky gut?" I was excited I knew what he was talking about but scared cause when I briefly read about that, I thought OMGosh I am glad I don't have that, it sounds gross" LOL He said eliminate some foods, potatoes have to go still I think and drink bone broth. THe gelatin from the bone or the bone marrow is very healing to our intestines.

I started researching this more and more and messaging people who were going through the same things. What i found has been very interesting: It would seem that most people with auto-immune issues such as chrohn's, fibro, colitis, also have digestion issues such as heartburn, ibs, etc.

It would seem that ALL of these symtoms apply to me, and that they all started back at least 8 - 10 years ago after I moved here and started eating way more grains, and whole grain whole wheat at that - nothing white, all brown bread, pasta, wraps, and lots of dairy in an attempt to be healthy. That is around the time that all my sypmptoms began and steadily got worse. I truly believe that all of these issues, are due to years of undiagnosed food intolerances to dairy and wheat which then inflammed my intestines and whole body, When the body experiences so much inflammation, the intestine walls become permeable and undigested food then leaks into the system which your body sees as an invader and attacks it. Therefore, resulting in foods that you are not intolerant to giving you a reaction.

So I could keep eliminating foods until the cows come home and won't get any closer to feeling better. And the foods I can't eat without an immune reaction (hives) will continue to increase/and/or the severity of my intolerance will increase. So the key is to HEAL my tummy and then I will be able to tolerate foods more easily. I will however still be gluten free and probably grain free and diary free, but if I want to have the odd piece of cheese I want to be able to without causing pain and hives.

So there are several protocols I have discovered about when trying to heal a leaky gut. Read about them here....

http://blog.healclick.com/evolving-paleo-diet-for-leaky-gut-syndrome/

There are several modifications to these for those with specific conditions like chrohn`s, and autoimmune conditions.

But I am finding this all very interesting and the steps I have taken I have seen an improvement in less than 3 months.

Sorry for the book but I hope this can help someone At the very least, give someone some reading to do to make a decision on your own. All our systems are different so these things, If tried would have to be tweaked according to us, however I believe this is onto something.

Love you all, keep well.

Thanks for the great info! A few years ago I completely cut out soda and have felt much better. About six months ago I cut out most fast food and definitely saw a difference with that. I most recently cut out potatoes because things like potato chips and French fries are very addictive to me and I will definitely over eat :/

I feel that something others need to look out for are artificial sweeteners! I have been speaking against these for years to my family members who swear by them and recently one of the top brands has been proven to cause cancer in rats!

As far as checking in: I volunteer each year for Camp Ronald McDonald and just came back from camp today after 8 days! It is such a beautiful place and everyone is so understanding there. I worked my butt off but had an amazing week! In a bit of pain now and extremely exhausted but its totally worth it. Now to recharge! Gentle hugs to everyone and much love!

 

[tiggspring]

sorry I have been mia. somehow my phone unsubscribed me! Now its taken me 45 minutes just to get to last page . Dis and my phone really dont like each other. My dd8 goes to dance nationals today so i may be mia a bit more.
Carie so sorry it been so hard sending pixie dust your way.

well phone really acting up. just know you guys are always in my thoughts
painfree vibes and pixie dust to all!

 

[carrie6466]

Thanks so much for all of that info. I firmly believe that my fibromyagia, RA, and IBS are all related. When I feel bloated and nauseous, those are the days when my joints and muscles hurt the most and I feel the most fatigued. It seems like a huge task to try and find out the offending foods, but I really am going to put in more effort.

Hugs and pixie dust to all.

Edited to add: A few weeks ago I started to take probiotic capsules, in the hopes of improving my stomach/intestine issues. I thought they were working fairly well until the last couple of days.

Thanks for all the support. I had a biopsy done and an ultrasound. they wouldn't give me the us results, but I know they are looking at two 'things' because I could see them. One is a cyst on the ovary and the other is a polyp in the uterus. Two weeks for the biopsy to come back, then I'll know for sure.

I quoted the above, because I totally agree. I feel terrible some days, have the worst stomach aches and that causes everything to ache and it seems like it takes forever to g
feel better!

 

[rosanab1031]

Thanks for all the support. I had a biopsy done and an ultrasound. they wouldn't give me the us results, but I know they are looking at two 'things' because I could see them. One is a cyst on the ovary and the other is a polyp in the uterus. Two weeks for the biopsy to come back, then I'll know for sure.

I quoted the above, because I totally agree. I feel terrible some days, have the worst stomach aches and that causes everything to ache and it seems like it takes forever to g
feel better!

Hope everything turns out for the best!

 

[rosanab1031]

So even with the fibromyalgia it has always been a dream of mine to participate in the Amazing Race! I know it will be hard for me to do but I have the determination and drive to do it. My sister and I have always talked about doing it together but now that she has gotten back together with her ex she ONLY wants to do it with him :/ She keeps telling me I "can't" do it and it really bums me out that people automatically count me out. I know the fibro will make it hard, but I know I would be able to handle it as long as I get to take all my meds with me. Haha. I'm just bummed that she's being a brat about it. Also, she now wants to postpone OUR trip to WDW and use MY DVC points to go on a cruise with her bf So yeah... sorry if that is a little off topic. Much love and gentle hugs to all!

 

[SeaSpray]

Thanks for the great info! A few years ago I completely cut out soda and have felt much better. About six months ago I cut out most fast food and definitely saw a difference with that. I most recently cut out potatoes because things like potato chips and French fries are very addictive to me and I will definitely over eat :/

I feel that something others need to look out for are artificial sweeteners! I have been speaking against these for years to my family members who swear by them and recently one of the top brands has been proven to cause cancer in rats!

As far as checking in: I volunteer each year for Camp Ronald McDonald and just came back from camp today after 8 days! It is such a beautiful place and everyone is so understanding there. I worked my butt off but had an amazing week! In a bit of pain now and extremely exhausted but its totally worth it. Now to recharge! Gentle hugs to everyone and much love!

How great that you volunteer at Ronald McDonald Camp each year! I'm sure that the kids and families truly appreciate all that you do there. I hope that you've been able to get some rest and are feeling a bit better now.

sorry I have been mia. somehow my phone unsubscribed me! Now its taken me 45 minutes just to get to last page . Dis and my phone really dont like each other. My dd8 goes to dance nationals today so i may be mia a bit more.
Carie so sorry it been so hard sending pixie dust your way.

well phone really acting up. just know you guys are always in my thoughts
painfree vibes and pixie dust to all!

Hi tigg, I'm glad that you checked in! I hope that your DD has a good time at the dance competition. Sorry about your phone troubles, that can be annoying.

Thanks for all the support. I had a biopsy done and an ultrasound. they wouldn't give me the us results, but I know they are looking at two 'things' because I could see them. One is a cyst on the ovary and the other is a polyp in the uterus. Two weeks for the biopsy to come back, then I'll know for sure.

I quoted the above, because I totally agree. I feel terrible some days, have the worst stomach aches and that causes everything to ache and it seems like it takes forever to g
feel better!

Hi carrie, have you gotten the official results yet? I hope that whatever it is, its nothing serious.

So even with the fibromyalgia it has always been a dream of mine to participate in the Amazing Race! I know it will be hard for me to do but I have the determination and drive to do it. My sister and I have always talked about doing it together but now that she has gotten back together with her ex she ONLY wants to do it with him :/ She keeps telling me I "can't" do it and it really bums me out that people automatically count me out. I know the fibro will make it hard, but I know I would be able to handle it as long as I get to take all my meds with me. Haha. I'm just bummed that she's being a brat about it. Also, she now wants to postpone OUR trip to WDW and use MY DVC points to go on a cruise with her bf So yeah... sorry if that is a little off topic. Much love and gentle hugs to all!

I'm sorry that you sister doesn't feel that you could compete in AR. I think it's extremely difficult for anyone, let alone someone with fibromyalgia and all that that brings with it. But nobody should tell someone that they "can't" do it. I'd be upset too about her wanting to go to WDW with her BF instead of with you, especially since it's YOUR DVC! If you need someone to go to WDW just let me know.



Pixie dust and hugs to everyone.

 

[brighteyes]

Thanks for all the support. I had a biopsy done and an ultrasound. they wouldn't give me the us results, but I know they are looking at two 'things' because I could see them. One is a cyst on the ovary and the other is a polyp in the uterus. Two weeks for the biopsy to come back, then I'll know for sure.

I quoted the above, because I totally agree. I feel terrible some days, have the worst stomach aches and that causes everything to ache and it seems like it takes forever to g
feel better!

Carrie, I hope the biopsy come back and everything is ok for you.

Tigg, Glad to see you and I hope your daughter does well at the dance competition, and nice to see you.

Rosanab, I agree with you about sweeteners and potatoes. I think my almost daily consumption of potatoes is in part - part of my problem with all these issues. Potatoes are extremely bad for autoimmune conditions. I am also eliminating nightshades which I tend to eat a lot of too. Chocolate and coffee are almost out too now.

I am sorry to hear about your troubles with the AR. I think that is awesome that you are motivated to even want to do it.

Kudos to you for volunteering at such an important place.

 

[rosanab1031]

How great that you volunteer at Ronald McDonald Camp each year! I'm sure that the kids and families truly appreciate all that you do there. I hope that you've been able to get some rest and are feeling a bit better now.

I'm sorry that you sister doesn't feel that you could compete in AR. I think it's extremely difficult for anyone, let alone someone with fibromyalgia and all that that brings with it. But nobody should tell someone that they "can't" do it. I'd be upset too about her wanting to go to WDW with her BF instead of with you, especially since it's YOUR DVC! If you need someone to go to WDW just let me know.



Pixie dust and hugs to everyone.

HAHAHA! Thanks SeaSpray!

Camp Ronald McDonald has become a very important part of my life and I go there for the kids as much as I go for myself. Haha. Camp just always makes me feel so much better! Granted I was VERY exhausted after words. Haha. Funny how that works that way I think it was because it was really cold this time around

My sister actually wants to do a cruise instead of our WDW trip so that she can bring her bf with her and wants me to bring my bf. I do want to do a cruise, but I want to do our WDW trip too. I am at a loss. But yeah it is my DVC and I will do what I want! Lol!

We should totally have a "Fibro Support" weekend! Or week! Haha! It would be great!

Wishing a painfree day to everyone!

 

[katrina1122]

Day 4 of a mild migraine. Woohoo.

So I'm wondering, does anyone else have lots of popping and cracking in your back and neck? I know it can be arthritis related too, but my xrays don't show it too bad, but the cracking has been getting worse and even painful sometimes now...which of course just sets off the fibro pain.

 

[tiggspring]

Day 4 of a mild migraine. Woohoo.

So I'm wondering, does anyone else have lots of popping and cracking in your back and neck? I know it can be arthritis related too, but my xrays don't show it too bad, but the cracking has been getting worse and even painful sometimes now...which of course just sets off the fibro pain.

Could it be the way you have been sleeping? A while back I was having terrible jaw pain. After taking flexeril for my back my jaw pain disappeared and I notice the way I was positioning my head at night was putting pressure on my jaw. Seems like when we make ourselves comfortable for one ache or pain we sometimes create another problem. I get a lot of popping/cracking in my ankles and I do not have any arthritis so it might be that.

 

[SeaSpray]

HAHAHA! Thanks SeaSpray!

Camp Ronald McDonald has become a very important part of my life and I go there for the kids as much as I go for myself. Haha. Camp just always makes me feel so much better! Granted I was VERY exhausted after words. Haha. Funny how that works that way I think it was because it was really cold this time around

My sister actually wants to do a cruise instead of our WDW trip so that she can bring her bf with her and wants me to bring my bf. I do want to do a cruise, but I want to do our WDW trip too. I am at a loss. But yeah it is my DVC and I will do what I want! Lol!

We should totally have a "Fibro Support" weekend! Or week! Haha! It would be great! Wishing a painfree day to everyone!

This sounds good to me!!

Day 4 of a mild migraine. Woohoo.

So I'm wondering, does anyone else have lots of popping and cracking in your back and neck? I know it can be arthritis related too, but my xrays don't show it too bad, but the cracking has been getting worse and even painful sometimes now...which of course just sets off the fibro pain.

I hope that your migraine has subsided by now. They changed the location of my desk at work yesterday morning and by noon I had the worst headache because of the overhead lighting causing me to squint because it felt like the sun was in my eyes. It never went away and I woke up this morning with the headache too. I took some ibuprophen and went back to sleep for another hour and fortunately it has settled down to a dull ache now. I may have to request that they move me to another location because there's no way that I can work like that every day.

I have a lot of cracking and popping all over; mainly my neck and shoulders. I blame it on my rheumatoid arthritis but it could also be pain from fibromyalgia. Most of the time I can't tell what causes which pains.

Could it be the way you have been sleeping? A while back I was having terrible jaw pain. After taking flexeril for my back my jaw pain disappeared and I notice the way I was positioning my head at night was putting pressure on my jaw. Seems like when we make ourselves comfortable for one ache or pain we sometimes create another problem. I get a lot of popping/cracking in my ankles and I do not have any arthritis so it might be that.

This has been my experience, too! You should see the way that I have to set myself up each night. Let's just say that it includes 3 pillows, 2 wrist braces, and a large plush Mickey Mouse under my left arm. DH comments "how cute, sleeping with your Mickey Mouse".

 

[mommasita]

HI all. I also have been MIA.. My boy's Grad went well, it just took up time, and many spoons ...

Thinking of everyone, although not always around..

Just booked a vacation (which we all need).. Leaving 6-14th for St. Lucia..

Just hoping I can sit comfortably somewhere.. I started pysio for my rotator tears, and it was amazing, not after though ... I go once more this week before I leave..

Giant gentle hugs

 

[SeaSpray]

HI all. I also have been MIA.. My boy's Grad went well, it just took up time, and many spoons ...

Thinking of everyone, although not always around..

Just booked a vacation (which we all need).. Leaving 6-14th for St. Lucia..

Just hoping I can sit comfortably somewhere.. I started pysio for my rotator tears, and it was amazing, not after though ... I go once more this week before I leave..

Giant gentle hugs

Yay! I'm so glad that your son's graduation went well!!!! Congrats to the Grad and his mom.

I hope you have a wonderful time in St. Lucia I hope that you can relax and enjoy your vacation to the fullest; you sure deserve it.

 

[mommasita]

Thank you!!
I hope you are having less pain, along with everyone else..

 

[carrie6466]

Hi all.

For a quick update, the biopsy results didn't come back, because they didn't get a big enough sample for the biopsy. So I get to do it again. Next time they are going to knock me out, do a d & c and get the sample that way. I'm being knocked out because I'm having another surgical procedure done the same day, by a different doctor. They coordinated it so I'd only be under anesthesia once. The other one is the plastic surgeon, who is going to clean up my non-healing mess and stitch it closed. It's an area that never healed properly after my surgery in March due to infection and other issues.

They are going to do all of it on 7/22. 28 or so days before my trip ::sigh::

I should be going home the same day, barring any complications. I should also have all my results back in a week or so following the surgery. I can't stand this anymore.

I hope your are all doing well. I haven't really been keeping up here, this is the first time I've been on the computer in days!

 

[tiggspring]

Happy 4th of july!!!


Hang in there Carrie (((HUGS)))

 

[mommasita]

Hi all.

For a quick update, the biopsy results didn't come back, because they didn't get a big enough sample for the biopsy. So I get to do it again. Next time they are going to knock me out, do a d & c and get the sample that way. I'm being knocked out because I'm having another surgical procedure done the same day, by a different doctor. They coordinated it so I'd only be under anesthesia once. The other one is the plastic surgeon, who is going to clean up my non-healing mess and stitch it closed. It's an area that never healed properly after my surgery in March due to infection and other issues.

They are going to do all of it on 7/22. 28 or so days before my trip ::sigh::

I should be going home the same day, barring any complications. I should also have all my results back in a week or so following the surgery. I can't stand this anymore.

I hope your are all doing well. I haven't really been keeping up here, this is the first time I've been on the computer in days!

Poor thing. Maybe being out will be easier on you.. Keeping you in my thoiughts and prayers

 

[disneydork3]

Hi everyone. I'm 36 and was diagnosed in Feb after months of unexplained pain in my joints, nerves and muscles. I didn't even want to move because i hurt so bad. I tracked my symptoms for 6 months and noticed they would start a few days before my cycle, last for about 2 1/2 weeks and slowly fade allowing relief for about a week or so only to start all over. All blood tests and X-rays came back ok but my rheumatologist's touch test confirmed the diagnosis. I'm not the norm but my obgyn said most cases are chronic but some are also hormonal. He advised me to eliminate gluten from my diet. I did extensive research and found it helped a lot of people. Pain meds were my last resort so I went gf march 1st which has helped tremendously. I still have flare ups, sometimes deep tissue pain, sometimes joint pain, sometimes my whole body hurts. But I can honestly say eliminating gluten has helped me personally. Good to know I'm not alone on this wild ride.

 

[SeaSpray]

Hi all.

For a quick update, the biopsy results didn't come back, because they didn't get a big enough sample for the biopsy. So I get to do it again. Next time they are going to knock me out, do a d & c and get the sample that way. I'm being knocked out because I'm having another surgical procedure done the same day, by a different doctor. They coordinated it so I'd only be under anesthesia once. The other one is the plastic surgeon, who is going to clean up my non-healing mess and stitch it closed. It's an area that never healed properly after my surgery in March due to infection and other issues.

They are going to do all of it on 7/22. 28 or so days before my trip ::sigh::

I should be going home the same day, barring any complications. I should also have all my results back in a week or so following the surgery. I can't stand this anymore.

I hope your are all doing well. I haven't really been keeping up here, this is the first time I've been on the computer in days!

I'm sorry that you have to have the biopsy done again. I hope it goes better this time, and that you get great results before your trip.

Hi everyone. I'm 36 and was diagnosed in Feb after months of unexplained pain in my joints, nerves and muscles. I didn't even want to move because i hurt so bad. I tracked my symptoms for 6 months and noticed they would start a few days before my cycle, last for about 2 1/2 weeks and slowly fade allowing relief for about a week or so only to start all over. All blood tests and X-rays came back ok but my rheumatologist's touch test confirmed the diagnosis. I'm not the norm but my obgyn said most cases are chronic but some are also hormonal. He advised me to eliminate gluten from my diet. I did extensive research and found it helped a lot of people. Pain meds were my last resort so I went gf march 1st which has helped tremendously. I still have flare ups, sometimes deep tissue pain, sometimes joint pain, sometimes my whole body hurts. But I can honestly say eliminating gluten has helped me personally. Good to know I'm not alone on this wild ride.

This is a great group of friendly people here. Sometimes we post a lot, and sometimes we don't. It comes with the territory;sometimes its hard just to try and put our thoughts in to words.

I'm glad that going gluten-free has helped you! I've been trying to cut down on wheat/gluten products, too. I have rheumatoid arthritis in addition to fibromyalgia, so anything that reduces inflammation helps.

I saw my doctor today. After being on Adderall XR for the past 30 days he increased the dosage. So tomorrow I'll see whether I feel a difference or not. I told him that I definitely have noticed a difference in my concentration this past month, and I feel a little less fatigued during the day.

I hope everyone is doing well.