figmentswife
One little spark will light your fancy
- Joined
- Jul 23, 2011
My DH was diagnosed with UC in mid 2010, it progressed very fast and he started remicade in December 2010. He had done very well until October 2012. In November 2012 they started him on steroids again and he can't seen to get off of them. Every time he gets down to 10mg, he starts having issues. Anyways. Things got so bad this week I had to take him to the hospital, they released him this afternoon with pain medicine and orders to see his Dr. tomorrow (he already had the appt, so that was good) I just don't know how to help him. I am not a huge fan of his Dr. She is a good Dr., I just don't like her personally but he does. Dh has a rare liver disease that caused the UC and has had 2 appendicitis's (yes, I said that, he had it removed back in 2002, and the "stump" removed in 2010) and a couple of other rare things happen. His Dr. never seems to remember these little details, that I think could have a huge impact on his health.
We are making a list of questions and such to take in the morning, but poor guy is so in and out on the pain med's I am doing a lot of it myself at this point.
What do we need to ask?
What has worked for others?
I also should include that his CT today showed his small intestines and colon are all swollen, so the steroids are not working. Also his last set of blood work there are a few things out a wack - WBC is high, liver panels high - but his Dr. wasn't concerned and told him that was normal because of the steroids. - Ummm, I am thinking that liver panels being high in a patient with a rare liver disease needs to be looked at (but I am not a Dr.)
How do I make sure she listens tomorrow. DH isn't very forceful, or forth coming with ALL information (he forgets) and he asked me to come with him and do the talking
Thanks for the help
We are making a list of questions and such to take in the morning, but poor guy is so in and out on the pain med's I am doing a lot of it myself at this point.
What do we need to ask?
What has worked for others?
I also should include that his CT today showed his small intestines and colon are all swollen, so the steroids are not working. Also his last set of blood work there are a few things out a wack - WBC is high, liver panels high - but his Dr. wasn't concerned and told him that was normal because of the steroids. - Ummm, I am thinking that liver panels being high in a patient with a rare liver disease needs to be looked at (but I am not a Dr.)
How do I make sure she listens tomorrow. DH isn't very forceful, or forth coming with ALL information (he forgets) and he asked me to come with him and do the talking
Thanks for the help