luvmarypoppins
<font color=darkorchid>I am debating whether to pu
- Joined
- Aug 23, 2003
Just wanted to wish everyone a Happy and Blessed 2013 and as healthy as possible 2013 too!
Met with the surgeon today and he feels very strongly that I need a partial thyroidectomy. He says this is the only way to rule out cancer. My sister who had a mutli nodular goiter thyroid removed thinks this is highly unusual. Surgeon doesn't care what thyroid levels are until after the surgery because to him this is not about thyroid function; it is about the pathology. Does this sound wrong to anyone else? My sister is certain that I really don't need the surgery if my levels aren't changing. I'm very confused. I want to listen to my dr but my sister is persuasive as well.
Just be prepared that they may tell you it's benign and just remove half but as they do further testing after the surgery they can find that it's not benign. That happened to me and to a woman I work with so we had to go back in to have the rest of the thyroid removed.
mrsklamc said:There's been a lot of changes fairly recently in the field, I think- for example, I think it's standard practice to go w/ thyrogen now instead of the withdrawal I went through just a couple of years ago. I personally wouldn't want to do an uptake scan if I had it to do over again- not sure it didn't negatively impact how well my RAI worked. You've not had a fine needle biopsy though? That does seem a bit strange.
I believe you are right on the changes. 20 years ago, the withdrawal for the uptake scan was worse than the biopsy and total thyroidectomy! I am glad that has changed !
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I didn't have RAI either. My doctor said that what they found was so small and early and it's really a balancing act. She didn't want to put me through the RAI and possible side effects if it might not really be necessary, and like she said it can always be done later. I had a radical neck dissection last year that I may not have needed if I had the RAI but everything came back clean so I feel pretty good. I just think you have to monitor everything really closely.I still wonder whether having RAI would put my mind at ease as I do worry about cancer returning. I didn't have it 3 years ago because we were undergoing fertility treatments. Any thoughts on that? I don't see my Endo until August unless I have an issue. I wonder if there's any sense in just asking for the RAI.
Mari--I think the decision (for me) would depend a lot on your initial pathology.
Was your original tumor under 1 cm?
Were the cancerous cells limited to being within the tumor or did you have multifocal involvement?
Was the cancer well-differentiated or less differientiated?
If the answers are: Yes, limited to the tumor, and well-differentiated then ultrasounds and blood tests are probably fine.
Good questions. It amazing what I have forgotten in the past 3 years. Had to go look at a previous post. LOL The main tumor was only 3.5 mm and I remember language like "many multifocal something or other" and I also remember saying none were within a certain distance from the edge of the thyroid. I don't remember on the differentiated part. I have moved since then and the actual report is packed away somewhere.