Hurwitzfamily04
The love of a family is life's greatest blessing
- Joined
- Aug 8, 2009
I am totally 100% new to this whole website..so bare with me.
I'd like to introduce myself first. My name is Erika. I am a 19 year old wife and mother to a wonderful family. Only 19?!?..is probably what you are all thinking..and yes, I started early, and have come a long way, but I wouldn't change what I have for the world. And I guess now would be a great way to introduce the rest of the cast..
Gary-My husband who is 22 years old. He is full of humor and always has some way or another to make the children laugh so hard they have tears running down their faces.
Jayden (the wish child)-My super sweet angel. He is 4 years old and adorable.
Gabberiella-My fallen angel. lol. She is 2 years old..yes yes terrible twos my goodness.
So that's my wonderful family..
I cannot believe that my son's wish trip is just around the corner. His chance to see Mickey Mouse in person! And for my daughter..a hug from "Mimmy" (Minnie Mouse)
About my son:
My son Jayden, was diagnosed at 1 year old is CP. From the time he was born until his diagnosis, we knew something was different with him. He matured slower than normal. He just didn't hit his milestones with the rest of the kids his age. The family doctor said that everything was normal, he must have just been developing slower, but he would catch up with some time. As time passed and he didn't improve he was taken to a specialist and then was diagnosed with CP. He then was having some mild seizures, so he was taken to a neurologist and given a MRI. The MRI showed large white masses in and throughout his brain. He was then diagnosed with what is called a Leukodyptrophy. Specifically Vander Knapps Disease. His diagnosis is not yet final because people with Vander Knapps tend to have a larger head size compared to those without this disease. My son, has a normal head size, which is very rare. In fact, no doctor that we have seen so far has seen or heard anything like it before. The doctors have said that my son should progress should decrease, but he just keeps getting stronger and able to do more for himself. He now is in preschool and is learning slowly but certainly, how to walk with a walker and use sign language to communicate (he more frequently uses his wheelchair). He was just recently diagnosed with hip disphasia. He is going strong and working hard to meet his goals. He is improving with each day that passes and is extremely bright. He is definitely looking forward to his trip to Disney World!
Jaydens family doctor has just been wonderful to Jayden. Whenever he is sick she will see him right away, and she really has a great and sincere heart. She actually is the one who referred Jayden to the Make a Wish Foundation. She really is a great woman.
And now we are all booked and ready to enjoy a brilliant week in Orlando Florida, visiting Micky, Minnie, Donald, and Goofy!
On our trip it will just be us four! A nice family vacation, all planned around my first born sweetie.
So thats all for now folks, about a month and a half away, and it's time to start planning. Any comments or suggestions are greatly appreciated!
More to come...
I'd like to introduce myself first. My name is Erika. I am a 19 year old wife and mother to a wonderful family. Only 19?!?..is probably what you are all thinking..and yes, I started early, and have come a long way, but I wouldn't change what I have for the world. And I guess now would be a great way to introduce the rest of the cast..
Gary-My husband who is 22 years old. He is full of humor and always has some way or another to make the children laugh so hard they have tears running down their faces.
Jayden (the wish child)-My super sweet angel. He is 4 years old and adorable.
Gabberiella-My fallen angel. lol. She is 2 years old..yes yes terrible twos my goodness.
So that's my wonderful family..
I cannot believe that my son's wish trip is just around the corner. His chance to see Mickey Mouse in person! And for my daughter..a hug from "Mimmy" (Minnie Mouse)
About my son:
My son Jayden, was diagnosed at 1 year old is CP. From the time he was born until his diagnosis, we knew something was different with him. He matured slower than normal. He just didn't hit his milestones with the rest of the kids his age. The family doctor said that everything was normal, he must have just been developing slower, but he would catch up with some time. As time passed and he didn't improve he was taken to a specialist and then was diagnosed with CP. He then was having some mild seizures, so he was taken to a neurologist and given a MRI. The MRI showed large white masses in and throughout his brain. He was then diagnosed with what is called a Leukodyptrophy. Specifically Vander Knapps Disease. His diagnosis is not yet final because people with Vander Knapps tend to have a larger head size compared to those without this disease. My son, has a normal head size, which is very rare. In fact, no doctor that we have seen so far has seen or heard anything like it before. The doctors have said that my son should progress should decrease, but he just keeps getting stronger and able to do more for himself. He now is in preschool and is learning slowly but certainly, how to walk with a walker and use sign language to communicate (he more frequently uses his wheelchair). He was just recently diagnosed with hip disphasia. He is going strong and working hard to meet his goals. He is improving with each day that passes and is extremely bright. He is definitely looking forward to his trip to Disney World!
Jaydens family doctor has just been wonderful to Jayden. Whenever he is sick she will see him right away, and she really has a great and sincere heart. She actually is the one who referred Jayden to the Make a Wish Foundation. She really is a great woman.
And now we are all booked and ready to enjoy a brilliant week in Orlando Florida, visiting Micky, Minnie, Donald, and Goofy!
On our trip it will just be us four! A nice family vacation, all planned around my first born sweetie.
So thats all for now folks, about a month and a half away, and it's time to start planning. Any comments or suggestions are greatly appreciated!
More to come...