Queenie122
Mouseketeer
- Joined
- Jan 24, 2008
Hi Everyone! So I'm new to this whole report thing but I figured after all the amazing WISH trip reports I have read from those who have gone before, I owe one to all those who will come after us. We're going to *attempt* to do some live reports while we're down in Florida but no guarantees! I hear there is only dial up in the Villas
This trip is my DD's Make a Wish trip - her wish is to "Dance with the Princesses" and "See Cinderella Castle." I'm hoping we can make that come true!
So, let's start this off with our cast of characters.
Me, 34 I'm a stay at home Mom who loves her job I have some of my own medical issues to deal with so between DD and myself we are always at one doctor or another. HUGE Disney fan! I have family that lives in Orlando so over the years have been lucky to visit many times and most of them got into the parks for free or at a discount!
DH, 33 Does computer type stuff for work. Loves to play games and works for some gaming companies on the side in exchange for their products (works out for all of us!). Works very hard here at home to take care of his girls
DD, 3 1/2 Our miracle girl, Arabella, and this is her WISH trip. She's come a long way baby! See her story below.
DM, 57 (heh, I'm so bad!) No, seriously, my Mom has been a saving grace through all of this and I really think this ordeal has brought us closer together.
DB, 26 Lives here in the house with us. Is very much looking forward to enjoying this trip and adores his niece, so just seeing her happy will make it all worthwhile!
DD was born at 25 weeks gestation in Massachusetts (we live in New York) while we were away on vacation. She was 660 grams (1 pound, 10 ounces) and 13 inches long. Born with VACTRYL Syndrome, which is a collection of abnormalities, the most serious being a pinch in her airway to one of her lungs. This led to her needing a trach and needing long term vent support so also needed a feeding tube which she still has. She also had problems with her heart (healed on their own), her eyes (needed laser eye surgery), had an extra digit (had surgery to remove an extra thumb, still working on her hand issues). She also has a partial extra rib so we need to keep a close eye on her developing scoliosis. All in all, we were fairly lucky with the things wrong with her, most have been corrected or are under control. Because of all of this she spent the first 53 weeks of life in the hospital, 14 days in NICU in Mass, transfered her to a hospital closer to us where she stayed for 4 1/2 months, then to a Children's Hospital about 65 miles away for the last 7 months. We are still working on her physical issues from being in the hospital so long - when she came home at a year old she couldn't even sit up or eat anything by mouth and even today her muscles are weak. Thank God her trach is long gone, she got it out when she was 2 1/2. Still working on her feeding issues, that looks to be pretty long term.
Otherwise she is a very intelligent, happy and laid back little girl!
Our trip is planned for May 10th - May 20th, 2008 and we are all SO super excited. I can not tell you how much we all desperately NEED this trip. I have lots of planning done already and have been keeping decent track of the process and what has happened already. I'll share it all here over the next bunch of days. I hope someone reads and / or enjoys this!!!
Here's some pictures to get us started.
DD at Halloween - it's TinkerBella!!
Here's me, DH and DD all Disneyified!
Finally... DD with her special MAW bear.
This trip is my DD's Make a Wish trip - her wish is to "Dance with the Princesses" and "See Cinderella Castle." I'm hoping we can make that come true!
So, let's start this off with our cast of characters.
Me, 34 I'm a stay at home Mom who loves her job I have some of my own medical issues to deal with so between DD and myself we are always at one doctor or another. HUGE Disney fan! I have family that lives in Orlando so over the years have been lucky to visit many times and most of them got into the parks for free or at a discount!
DH, 33 Does computer type stuff for work. Loves to play games and works for some gaming companies on the side in exchange for their products (works out for all of us!). Works very hard here at home to take care of his girls
DD, 3 1/2 Our miracle girl, Arabella, and this is her WISH trip. She's come a long way baby! See her story below.
DM, 57 (heh, I'm so bad!) No, seriously, my Mom has been a saving grace through all of this and I really think this ordeal has brought us closer together.
DB, 26 Lives here in the house with us. Is very much looking forward to enjoying this trip and adores his niece, so just seeing her happy will make it all worthwhile!
DD was born at 25 weeks gestation in Massachusetts (we live in New York) while we were away on vacation. She was 660 grams (1 pound, 10 ounces) and 13 inches long. Born with VACTRYL Syndrome, which is a collection of abnormalities, the most serious being a pinch in her airway to one of her lungs. This led to her needing a trach and needing long term vent support so also needed a feeding tube which she still has. She also had problems with her heart (healed on their own), her eyes (needed laser eye surgery), had an extra digit (had surgery to remove an extra thumb, still working on her hand issues). She also has a partial extra rib so we need to keep a close eye on her developing scoliosis. All in all, we were fairly lucky with the things wrong with her, most have been corrected or are under control. Because of all of this she spent the first 53 weeks of life in the hospital, 14 days in NICU in Mass, transfered her to a hospital closer to us where she stayed for 4 1/2 months, then to a Children's Hospital about 65 miles away for the last 7 months. We are still working on her physical issues from being in the hospital so long - when she came home at a year old she couldn't even sit up or eat anything by mouth and even today her muscles are weak. Thank God her trach is long gone, she got it out when she was 2 1/2. Still working on her feeding issues, that looks to be pretty long term.
Otherwise she is a very intelligent, happy and laid back little girl!
Our trip is planned for May 10th - May 20th, 2008 and we are all SO super excited. I can not tell you how much we all desperately NEED this trip. I have lots of planning done already and have been keeping decent track of the process and what has happened already. I'll share it all here over the next bunch of days. I hope someone reads and / or enjoys this!!!
Here's some pictures to get us started.
DD at Halloween - it's TinkerBella!!
Here's me, DH and DD all Disneyified!
Finally... DD with her special MAW bear.