Wong-tinez: A Cultural Phenomenon FINAL UPDATE Pg79 #1176 & 1177 NEW PICS

[Goofyluver]

Announcement:

I stole DisneylandMama's Lover...

That's right...I'm a man stealer!

If you guys aren't on her pre-trippie...hop on over there right now!!! What are you thinking???

Anyway, guess what I just did! Go 'head...guess away!

I just bought myself a man! That's right, I suuuuure did! And, he loves Disney just as much as I do!

His name is Mike...some call him Tour Guide Mike...and I just paid $18 bucks for that dude. And...lemme tell you...he is hotter than a jalapeno!!!!

Back up Tracy...he is MINE now!!!

 

[DisneyJo]

Ooooooo you know you have to share him don't you! Cos I love him too

Get ready for some serious reading and lots of confusion!!!!!

 

[Goofyluver]

Ooooooo you know you have to share him don't you! Cos I love him too

Get ready for some serious reading and lots of confusion!!!!!

Back up Jo...he is mine all mine!!!

But, what he does while I'm away...I'll never know...

 

[Parla]

Announcement:

I stole DisneylandMama's Lover...

That's right...I'm a man stealer!

If you guys aren't on her pre-trippie...hop on over there right now!!! What are you thinking???

Anyway, guess what I just did! Go 'head...guess away!

I just bought myself a man! That's right, I suuuuure did! And, he loves Disney just as much as I do!

His name is Mike...some call him Tour Guide Mike...and I just paid $18 bucks for that dude. And...lemme tell you...he is hotter than a jalapeno!!!!

Back up Tracy...he is MINE now!!!

Cool, I was thinking of buying him but I don't know where I would find the time for a man right now. Don't tell DH I said that.

 

[rentayenta]

Okay…so Tera and I are obsessive planners. Tera…the mom who is perfect in every way, and me…Miss OCD. We are girls that wanna have fu-un! O-oh, girls just wanna have fu-un! (I was singin’ there…did ya’ like it? Luvz me some Cindy Lauper…yes I do!)

There’s another reason that Tera and I want this trip to be perfect and I think we should share it with you. I’m not gonna write for Tera, she’ll add her explanation on her baby genius. But, you’ll see that we bond on many different levels:

Tera and I are both parents of very special children. Extraordinary children, dawlings! Both Tera and I have special needs children. They have different needs, but both have medical bizness goin’ on! We try to keep positivity at all times…but we both know how hard it is to parent these kiddos.

My son, Jon, was born almost 11 years ago. 5 days after he was born I knew something was wrong. I knew it…felt it in my bones. Jon was severely developmentally delayed. He couldn’t hold his head up until he was 4 months old. He didn’t crawl until after a year, etc., etc. He has been in Speech, Occupational Therapy, and Physical Therapy since the age of 2 months. I searched for years for a cause. I got my answer when Jon was 4 years old, after years of doctors, tests, pokes, and prods.

Jon was diagnosed with Agenesis of the Rostrum of the Corpus Callosum (ACC). ACC is a malformation of the portion of the brain that transmits information between the two hemispheres of the brain. Therefore, any message transmitted between the two hemispheres is affected, either transmitting slower than normal or not being transmitted at all. In addition, Jon has been diagnosed with Static Encephalopathy (a neurologic condition meaning that neurologic functioning is impacted), Sensory Integration Dysfunction, Hypotonia, depressed immune system, slowed growth, asthma, and allergies. He also has orthopedic needs…he was in leg and foot braces for years. However, they didn’t help and made it difficult for him to walk and run, and we decided a year ago to forgo the braces. In addition, Jon has speech and language delays, fine motor, and gross motor delays. We were told a bit over a year ago that Jon’s disorder (ACC) places him most probably somewhere on the Autism Spectrum. However, I have chosen to stick with the medical diagnosis that we have, and not pursue a diagnosis of Autism. Hey…doesn’t the kid have enough labels? Quite a lot for a teeny, tiny 10-year-old, huh?

ACC is the same diagnosis that the real-life “Rain Man” suffers from. ACC affects all persons differently. There is a wide spectrum of symptoms and manifestations of this condition. Jon lies somewhere in the mild to moderate section of the spectrum. Jon is 10 and is in the 5th grade. However, Jon is functioning in the 1st to 2nd grade academic curriculum. He recently tested on a mid-1st grade math level and a mid-2nd grade reading level. Jon is impacted academically, cognitively, and socially. He functions about on a 6-7 year old level cognitively. He struggles with academics…things that came so easy to me as a child, take Jon years to comprehend. Jon has many friends…and kids seem to enjoy him. But, he is not on the same level as his age-peers.

Jon has struggled his entire life. He was very sick for many years, due to his depressed immune system. He was in the hospital and at the doctor constantly when he was younger. He still gets sick far more often than most children, but he is nowhere as ill as he was as a young child. His asthma and allergies also make infection a constant risk. He has recently been diagnosed with depressed growth. We will have to make a decision in the near future about growth hormones, depending on how much he has grown by the time he goes to the next appointment.

A lot to handle? Absolutely.

But, Jon is amazing. He is amazingly sweet and amazingly funny. He will never know the extent to which he has affected my life. He has taught me far more than I can ever teach him. I would have 1,000 Jons. (Remind me I said that when he is in his bratty moments)

I think parenting is the most difficult J-O-B in the world. Being the parent of a special needs child magnifies the difficulty of being a parent in general. But, the gifts far outweigh the negatives. Jon has taught me that we must relish the small things in life. Things like taking a trip to Disney…may be just a good time for some, but for us, it’s a life experience. It’s something to bring a smile to our kiddos faces!

Over Jon’s lifetime, we have been told what he will never be able to do, or what he can’t do…by several doctors. Here’s a short list:

1. Jon will never walk…and if he does walk, he won’t run…and if he does run, he’ll fall down all the time…(guess who is a speed demon now!)
2. Jon will never read (guess who’s a great reader?)
3. Jon will never write…his fine motor skills won’t allow him to do so (guess who has gorgeous handwriting?)
4. Jon will have to use a computer to communicate because his speech will be limited as well his written abilities (Jon uses a computer all right…to play video games!)

I have never listened to the “He can’ts or he won’ts!” If I did…where would he be now? I’m a fierce mommy! I am a strong advocate for my son. I owe him this. Because he has paid me in unconditional love that only he can give! It’s hard…it’s the hardest thing in the world. But, it’s miraculous to watch. Jon brings me more joy than I could ever put into words. I am amazed that I was blessed enough with the honor to be his mother. He amazes me on a daily basis. I am so lucky. He is truly a gift in my life.

So, you see, when you think I’m a psycho planner lady…remember, in the back of your mind, that I’m doing it all for him. And, who’s been by my side the entire way? My very BF…Tera…the most perfect mommy in the world. Take it away Tera…luvz you girl!

Here is the enforcer at the Albuquerque Balloon Fiesta!

What a foxy dude! You have touched my heart and written words so tender. Life is beautiful!

 

[Goofyluver]

What a foxy dude! You have touched my heart and written words so tender. Life is beautiful!

You're a great mommy!!!

 

[rentayenta]

You're a great mommy!!!

Are you sure you don't mean motha?!

 

[Goofyluver]

Are you sure you don't mean motha?!

You know...some times the "motha" comes flyin' outta me...

 

[rentayenta]

You know...some times the "motha" comes flyin' outta me...

Me too.


I love that you and Tera have been friends for so long. It's fun to read about friends who met IRL first!

 

[meeskamouska]

Goodness....I have been so busy this week I have had no time to DIS!! So, I am here and see we have some new folks...thanks for joining us!! I see Jennifer has been pimping us out again!!!

 

[WDWHeather]

Goodness....I have been so busy this week I have had no time to DIS!! So, I am here and see we have some new folks...thanks for joining us!! I see Jennifer has been pimping us out again!!!

Well, you know how she is...

 

[Goofyluver]

I have OCDis!!!!

Yesterday, I bought myself TGM...

Last night??? I was up for hours planning and planning!

We have to make changes people!

How did I ever survive without my Mike???

I bought *gasp* a lime green notebook, and I'm making spreadsheets!

DLMama---It's all your fault!!!

 

[Parla]

I have OCDis!!!!

Yesterday, I bought myself TGM...

Last night??? I was up for hours planning and planning!

We have to make changes people!

How did I ever survive without my Mike???

I bought *gasp* a lime green notebook, and I'm making spreadsheets!

DLMama---It's all your fault!!!

Oh, I don't know if I want to do all of that. Why don't you just tell me if the 11th or 12th would work for meeting you for lunch at either AK or Epcot. We haven't decided between those two parks on those two days. The day we do AK we will hit DTD in the afternoon and evening. We have to do MK on the 10th because it was the only day we could get CRT. And I was thinking we should do MGM on the 9th. Even though we won't get there until probably2 PM. I just hate being all the way down there and not getting to experience a single moment of Star Wars.

I guess I should add that DH wants Flame Tree Barbeque for lunch at AK. We plan on eating all over WS so that lunch isn't as specific. We will probably do more Epcot on the 13th. We leave that evening (need to be at the airport by 5) so that day could just be about things that were missed.

 

[Goofyluver]

Oh, I don't know if I want to do all of that. Why don't you just tell me if the 11th or 12th would work for meeting you for lunch at either AK or Epcot. We haven't decided between those two parks on those two days. The day we do AK we will hit DTD in the afternoon and evening. We have to do MK on the 10th because it was the only day we could get CRT. And I was thinking we should do MGM on the 9th. Even though we won't get there until probably2 PM. I just hate being all the way down there and not getting to experience a single moment of Star Wars.

I guess I should add that DH wants Flame Tree Barbeque for lunch at AK. We plan on eating all over WS so that lunch isn't as specific. We will probably do more Epcot on the 13th. We leave that evening (need to be at the airport by 5) so that day could just be about things that were missed.

We have 12:00 ADRs for RainForest on the 12th. That is our AK day! Why don't we meet sometime in the morning?? Maybe we could go get an ice cream?? Or do a ride together??

We have to meet you!!! Name a time and we'll meet you!

What about 10:00 in Dinoland?? We can meet by the boneyard or something. Whaddya think??

 

[Parla]

We have 12:00 ADRs for RainForest on the 12th. That is our AK day! Why don't we meet sometime in the morning?? Maybe we could go get an ice cream?? Or do a ride together??

We have to meet you!!! Name a time and we'll meet you!

What about 10:00 in Dinoland?? We can meet by the boneyard or something. Whaddya think??

If you plan on doing the Nemo show in the morning we could do that! We could really do some chatting waiting in a line! The boneyard sounds good because we totally skipped Dinoland last time and that is the main reason we are hitting AK this year (and for another ride on EE). We have no plans on doing the Safari or Festival of the Lion King this time. We can just plan on AK that morning and make more specific time arrangements as it gets closer to allow us both some leeway (I'm sure you might change your schedule by then...).

 

[Goofyluver]

If you plan on doing the Nemo show in the morning we could do that! We could really do some chatting waiting in a line! The boneyard sounds good because we totally skipped Dinoland last time and that is the main reason we are hitting AK this year (and for another ride on EE). We have no plans on doing the Safari or Festival of the Lion King this time. We can just plan on AK that morning and make more specific time arrangements as it gets closer to allow us both some leeway (I'm sure you might change your schedule by then...).

Meeeeeeee????

 

[Goofyluver]

Mmmmmmkay...so I have posted previously that I invested in a new boy toy...named Michael. And...I think he loves me back...that's alls I'm sayin'!

Anywho...once I bought TGM yesterday...I have spent hours planning like a nut! I was up soooooo late last night planning our days. The good news is that for the most part, our original plans are holding strong...I only made a few mistakes, and ONE HUGE mistake that I can't correct.

We had originally planned to do World Showcase on Thursday, the 14th, and Future World on Saturday, the 16th of June. However...after researching, the 14th is EMH day at Epcot. And, all of "them" will be there late in the day. Sooooo...we have to get there early and leave early to avoid "them." (I looooooove saying that!) World Showcase doesn't open 'til 11:00, and we need to be outta the park by 3 or 4. BUT...Future World opens at 9:00, so we flip-flopped our days. We also want to see illuminations. That was gonna be Thursday with WS. But, Michael says that Illuminations will be a serious NO-NO on Thursday cause all of "them" will be there for EMH that night. So, Illuminations goes to Saturday too!

Also, all of our parks looked good according to Michael. MGM on a Sunday for Star Wars Weekend is A-OK! Michael says Saturday is packed like sardines!

The bad thing that I can't correct???

Jon picked MK for his bert-day on Monday the 11th. Michael says nevah evah do MK on that day...and certainly nevah evah do Spectro & Wishes. Well, it's Jon's bert-day...and he gets to pick. So, hopefully it won't be too bad...

So, with that said...I'm gonna cover our daily plans from Saturday to Tuesday.

Saturday, June 9th: This is the day we fly in. We fly our of Dallas at 3:45, and we get to Orlando at 7:15. We'll ME it over to ASMusic and be there hopefully about 8:30. Check-in...eat...look...sleep! We're heeeeeeeere baybee!

Sunday, June 10th: MGM Day!!!

This is Star Wars Weekend...not something I am particularly excited about. But, the enforcer will probly pass out when he sees Bubba Fat! (yes, Bubba Fat will be there)

MGM opens at 9:00. We want to be there for opening, so that the boys can stand on line to get autographs from people that I don't even know who they are...

Today is also the day we go get Felicia...our Focker Crocker!!!!

Michael says we should get FPs for Star Tours first thing!!!

We want to see Little Mermaid, Indiana Jones, Beauty, and Lights Motor Action as early as possible.

Jon also wants to see the HS Musical Pep Rally...even though I've told him a thousand times that Ashley Tisdale won't be there...(he says she's "hot")

Monday, June 11th: MK AND JON'S BERT-DAY!!!!!!!

I'll probably go more into exact details of his 11th latah...but we do want to be here at the park for opening.

2 openings 2 days in a row??????????

We still have our lunch ADRs for CP...

We're also gonna take a break during the middle of the day...cause 9:00 AM til 11:00 at night is no fun with kiddos that tire easily!

We are doing Adventureland, Frontierland, and Liberty Square today. We'll see how well we stick to this...

Michael says we need to get to POTC, Aladdin, Jungle Cruise, BTMRR, and Splash Moutain early...but who wants to be wet first thing in the morning???

And...my hair fros!

We are gonna do Spectro & Wishes back2back! Wish us luck...with all of the crowds...sorry Michael...but I hafta go against you on this one!

Tuesday, June 12th: AK!!!

I love AK...I've seen several people who didn't like it...but personally, I loooooove it!

We'll take our time getting in today...but not too late says Michael!

We have ADRs for RFCafe for lunch!

And...we are gonna have a dis meet!!! We are gonna meet Parla and her fam! Her head's in the gutta...stay away from her...she may bite!

Michael says to get Dinosaur FPs first...so we'll do that!

Also, we have to hit up the Safari, Lion King, Bug, and Nemo early...we may meet Parla at Nemo...





Mmmmmmmkay...so there is Saturday through Tuesday! Thanks Michael...you've been a great help!

Oh...and I've crossed over to the dork side...I mean the dark side! I have a binder and everything. I'm trying to figure out the best way to spreadsheet our crap...I mean itinerary...

 

[Parla]

It all sounds good but it's really making me wish we could do MGM on Sunday and see the opening. I'm so torn between CRT and Star Wars. DH says he doesn't really care and he actually requested CRT (the goober liked their breakfast) and knows DD will be so excited to go again. She just tried on the dress from last trip and it's too tight. I totally plan on picking up a new one in the park but I have a different one I got at Disney on clearance (she doesn't know I bought it). I need to take a picture of it and see what people think. I like the fact that the WDW ones are better quality than the cheap ones we get around home. Sorry, I think I'm starting to highjack your PTR. I don't wanna get my own! I'm giving you a great dis meet so don't get too mad at me.

 

[WDWHeather]

You gals are under one month before your trip! Woo hooty!

 

[tigger536]

Mmmmmmkay...so I have posted previously that I invested in a new boy toy...named Michael. And...I think he loves me back...that's alls I'm sayin'!

Yeah, Jon can have Ashley...us gals will fight over Mike!

Today is also the day we go get Felicia...our Focker Crocker!!!!

2 openings 2 days in a row??????????

In a Mike Schneider in "The Waterboy" voice: "You can dooo eeet! You can dooo eeet!"

Splash Moutain early...but who wants to be wet first thing in the morning???

You guys are going in a month right? By then it will be hot enough you won't care!

And...my hair fros!

Buy a cool hat when you get to WDW. An excuse to buy a souvenir: less time worrying about hair = more park time = more value out of your WDW vacation. It pays for itself. I love fuzzy Disney Math (shout out to V)!

It all sounds great! I am so excited for you guys!