linnettevl
Mouseketeer
- Joined
- Mar 18, 2004
- Messages
- 77
I have finally decided to go ahead with my trip to Disney, but I have a concern : I have pseudotumor celebri and because of this I have several surgeries for shunt placement from LP Shunts to the last one VP shunt, the surgery was almost a year ago, I just got news from my Dr. that the new shunt is blocked. this means that I have to go thru spinal taps every few weeks. My trip will be for 17 days I am worry that if I get a headache and will need a spinal tap do not know where to go. What hospital is close by?also I was told to stay mostly in bed, I do want to do this trip , my kids have to deal with me going into a hospital every couple of weeks, I spent the month of december in a hospital it was hard on them. My husband will be going with us , that will allow me to stay in the room to rest. Everbody is telling me to cancel the trip but I want my kids to have fun and live a little normal for a while. I do know my limitations and will try to listen to my body, still I am worry about not knowing where to go in case of an emergency.