Transplant Appointments and mixed news

TheDisneyDoll

DIS Veteran
Joined
Mar 12, 2014
Back in 2016 I received a double lung transplant after spending three weeks on life support in a coma caused by by end stage Cystic Fibrosis.
The transplant caused a lot of other health conditions that I currently deal with including diabetes, GERD, nerve damage and a handful of other things. After going through chronic rejection my new lungs were severely damaged and i'm in consideration for a second transplant should my health decline much more (i'm slightly to health just yet to be relisted)
I was inspired after making a comment on my personal blog how I struggle with managing my diabetes properly and I got a lot of replies of people going through the same thing so I collaged together this video over viewing my appointment.





I got some exciting news in the form of being offered a drug trial but I also received some bad new. I have severe acid reflux (GERD) and it is causing problems with my lungs, weight and I may need surgery in the future to fix it.
 

sjrec

DIS Veteran
Joined
May 31, 2016
I’m so sorry you are going through all this-I so hope you get stronger and better so you can fight this. :hug:
 

PollyannaMom

I was a click-clack champ!!
Joined
May 16, 2006
:hug: Glad you got some supportive comments from others who are struggling. - Things are always easier to deal with when you don't feel so alone. I hope the new routine works out!
 

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