DopeyDonald
Mouseketeer
- Joined
- Aug 23, 2011
- Messages
- 467
Hi My name is Emily. This is going to be a very special trip for our family. Our last annual trip in September didnt quite go as planned and this is going to be our in your face, you cant get US down make up trip. You see, on our trip in September, which by the way was supposed to be THE GREATEST TRIP EVER!!! (my first mistake was calling it that lol), my littlest daughter, Cassidy (4 almost 5) got very sick.
We thought she had the stomach flu. After 36 hrs of throwing up and one in room Dr. Visit, we took her to the E.R. We assumed she was just dehydrated and needed some I.V. fluids. A CT Scan revealed she had a 15cm mass in her abdomen. After an ambulance ride and an overnight stay at Florida Childrens for her, myself and my husband, we flew home to Minneapolis to seek treatment. My other kiddos and my parents stayed in Florida to finish out our vacation.
In Minneapolis, it was found that she has a very rare condition called Lymphatic Malformation. It is a congenital birth defect of sorts. The condition itself is benign, but complications can arise in the locale of the cystic masses. Hers is/was located in her abdomen. She had a successful (for now) surgery in September and is recovering very well. This is something that can return and be a bother or become more serious. If you would like to read more about our saga I did write a trip report about our experience. It's called the Short But Not Sweet Trip Report. I will try and link it in my signature.
Pretty much from the moment we left Florida, we were determined that we would get my Cassidy back. This was her 5th birthday trip. The kid is lucky enough to have spent her 2nd, 3rd, and 4th birthday at WDW. This was supposed to be extra special since she was turning 5. We had her actual birthday meal with cake planned for Cinderellas Royal Table. We had Pirates League appointments for all 5 of us to become Jack and his Skeleton Crew for the MNSSHP planned. We had Teas and Lunches with Imagineers and all kinds of amazing things to do. We began our trip on a Thursday and she was sick by Sunday. We did get many fun things accomplished, but still had so many yet to do.
I struggle with the feelings we have regarding this. Cassidys health and well being is so much more important than any vacation could ever be to us. We were focused solely on her and her surgery and recovery. In fact for quite a few weeks I was angry at Disney World lol. I got a bad feeling every time I so much as thought about it. I especially couldnt picture staying at VWL ever again. Its where her illness stared and where I spent 2 days with a throwing up kid.
That being said, the success of her surgery was so amazing and she is doing so well. Our hospital bills were much lower than anticipated also, due to my husbands amazing insurance policy. We started kicking around heading back to finish what we started. I know most of those who are reading this will understand. WDW is so much more to us than a theme park. Sure we love the rides and the characters and the million things to do. But its more than that.
For those days there are no phones, emails, IPods. No more Daddy being gone all week for work. No more exhausted, frustrated mommy from Daddy being gone all week at work. Its just us. And we kinda like each other. Disney is our time to remember that. And we sorely missed it. Especially now, after all that we went through in September.
Also, while my daughters condition is well and stable now, its possible that she could have a flare at any time. This is probably the negativity in my mommy personality coming out Im sure, but we just dont know. From what little is known about this condition, she more than likely WILL deal with it again at some point in her life. So we are going to LIVE every day and make all the awesome memories that we can. She very well likely could be just fine for a long, long time, but a Disney Trip will never be regretted! Lol. She is also taking some heavy duty meds right now that have some long term worries, so again, were gonna get while the getting is good.
Here is a pic to show just what she had in her tiny body and how successful the surgery was. Large Areas of White = BAD.
Wow that was the long intro, thanks if you read it all......
INTRODUCTIONS
WHEN AND WHERE
DAY ONE PLANS
*Scratching Record Sound - BIG CHANGES
New Arrival Day Plans
We thought she had the stomach flu. After 36 hrs of throwing up and one in room Dr. Visit, we took her to the E.R. We assumed she was just dehydrated and needed some I.V. fluids. A CT Scan revealed she had a 15cm mass in her abdomen. After an ambulance ride and an overnight stay at Florida Childrens for her, myself and my husband, we flew home to Minneapolis to seek treatment. My other kiddos and my parents stayed in Florida to finish out our vacation.
In Minneapolis, it was found that she has a very rare condition called Lymphatic Malformation. It is a congenital birth defect of sorts. The condition itself is benign, but complications can arise in the locale of the cystic masses. Hers is/was located in her abdomen. She had a successful (for now) surgery in September and is recovering very well. This is something that can return and be a bother or become more serious. If you would like to read more about our saga I did write a trip report about our experience. It's called the Short But Not Sweet Trip Report. I will try and link it in my signature.
Pretty much from the moment we left Florida, we were determined that we would get my Cassidy back. This was her 5th birthday trip. The kid is lucky enough to have spent her 2nd, 3rd, and 4th birthday at WDW. This was supposed to be extra special since she was turning 5. We had her actual birthday meal with cake planned for Cinderellas Royal Table. We had Pirates League appointments for all 5 of us to become Jack and his Skeleton Crew for the MNSSHP planned. We had Teas and Lunches with Imagineers and all kinds of amazing things to do. We began our trip on a Thursday and she was sick by Sunday. We did get many fun things accomplished, but still had so many yet to do.
I struggle with the feelings we have regarding this. Cassidys health and well being is so much more important than any vacation could ever be to us. We were focused solely on her and her surgery and recovery. In fact for quite a few weeks I was angry at Disney World lol. I got a bad feeling every time I so much as thought about it. I especially couldnt picture staying at VWL ever again. Its where her illness stared and where I spent 2 days with a throwing up kid.
That being said, the success of her surgery was so amazing and she is doing so well. Our hospital bills were much lower than anticipated also, due to my husbands amazing insurance policy. We started kicking around heading back to finish what we started. I know most of those who are reading this will understand. WDW is so much more to us than a theme park. Sure we love the rides and the characters and the million things to do. But its more than that.
For those days there are no phones, emails, IPods. No more Daddy being gone all week for work. No more exhausted, frustrated mommy from Daddy being gone all week at work. Its just us. And we kinda like each other. Disney is our time to remember that. And we sorely missed it. Especially now, after all that we went through in September.
Also, while my daughters condition is well and stable now, its possible that she could have a flare at any time. This is probably the negativity in my mommy personality coming out Im sure, but we just dont know. From what little is known about this condition, she more than likely WILL deal with it again at some point in her life. So we are going to LIVE every day and make all the awesome memories that we can. She very well likely could be just fine for a long, long time, but a Disney Trip will never be regretted! Lol. She is also taking some heavy duty meds right now that have some long term worries, so again, were gonna get while the getting is good.
Here is a pic to show just what she had in her tiny body and how successful the surgery was. Large Areas of White = BAD.

Wow that was the long intro, thanks if you read it all......
INTRODUCTIONS
WHEN AND WHERE
DAY ONE PLANS
*Scratching Record Sound - BIG CHANGES
New Arrival Day Plans