Semi-vent... "Food Allergies" is a BIG budget buster.

[EEyorelover22]

I am with everyone that says it's very expensive...except I can no longer eat out so that cuts down an expense. For all of you with children...I cannot imagine.

I have had to change everything including my make up. I went with Bare Minerals and also some blush I found on the internet.

In addition to eggs, dairy, wheat (now all gluten it would seem too), I am now allergic to carrots, cucumbers, fish, seafood, peanuts, tree nuts, beef and corn. Corn is right up there with soy...I even had to change my toothpaste. I can still eat soy, but it is all processed with corn based products so I cannot. Corn is in everything..."natural flavors" is the way to hide it and in many ways it's worse because it does not have to be listed on the label like all the other allergens.

My vitamins are extremely expensive. Each supplement is $50 per month...calcium, Vit D and Vit C. That is way over what something on the shelf would cost.

Trader Joe's has good prices, but we don't have one near here.

If nothing else...this thread knows I am not alone.

I did have to throw out everything and start over because I was so sick. I can no longer even drink bottled water.

 

[SDSorority]

Eating out has become a nightmare for us too. When we go to dis now I rent points so I can have a kitchen. I guess that not eating out there and renting points balances out in the end. The fun...

I am with everyone that says it's very expensive...except I can no longer eat out so that cuts down an expense. For all of you with children...I cannot imagine.

I have had to change everything including my make up. I went with Bare Minerals and also some blush I found on the internet.

In addition to eggs, dairy, wheat (now all gluten it would seem too), I am now allergic to carrots, cucumbers, fish, seafood, peanuts, tree nuts, beef and corn. Corn is right up there with soy...I even had to change my toothpaste. I can still eat soy, but it is all processed with corn based products so I cannot. Corn is in everything..."natural flavors" is the way to hide it and in many ways it's worse because it does not have to be listed on the label like all the other allergens.

My vitamins are extremely expensive. Each supplement is $50 per month...calcium, Vit D and Vit C. That is way over what something on the shelf would cost.

Trader Joe's has good prices, but we don't have one near here.

If nothing else...this thread knows I am not alone.

I did have to throw out everything and start over because I was so sick. I can no longer even drink bottled water.

 

[disneyandme]

I can no longer even drink bottled water.

That's because most have corn in the water and it doesn't have to be listed. My DD has corn too-- along with many others, but corn is the great eliminator.

 

[bumbershoot]

I just want to hug everyone here, because I know it's hard enough for us, and we don't have anything like so many of you do!

That's because most have corn in the water and it doesn't have to be listed.

Fainting. In the water?


What about the new trend to make disposable dish/silverware compostable by making it out of corn? I HATE that trend. We noticed it when we were still wondering if DS had problems with all corn (turned out it's just if they turn it into a syrup and on from there, not an allergy but a sensitivity), and could see the nightmares of trying to buy anything packaged for people who can't have any corn.

 

[EEyorelover22]

Yes...it is in bottled water. Smart water seems to be the worst for me...more junk in it.

I have not yet found unwaxed dental floss which is a problem.

I had to change to a non disposable coffee filter too and don't drink coffee out anymore either because of the filters and not knowing if they are made with corn and as you point out...not to mention the wax on the inside of the cups which can be made out of corn.

Tea bags, glue on envelops all can contain corn. I've had to completely retrain myself in my daily life. Apples along with many fruits and veggies are coated in corn because of the wax.

I have to filter our water even at home because we live where we have to have a water softener. The months since September have been intersesting to say the least.

I use Tom's toothpaste which doesn't seem to bother me and I forgot to mention I found some corn free blush off the internet...Signature Minerals which isn't too expensive because although the Bare Minerals makeup doesn't have corn, the blush does.

Here is a WDW related question for you all. Because there is no way I could eat out...for medical reasons do you believe they would make an exception and allow the others in my room to be on the DP and not me?

I'm thinking no, but maybe someone would know here.

I ran the numbers with me having to be on it and there is no way we could use all of my credits during that time period especially not for counter service.

 

[clanmcculloch]

Here is a WDW related question for you all. Because there is no way I could eat out...for medical reasons do you believe they would make an exception and allow the others in my room to be on the DP and not me?

I'm thinking no, but maybe someone would know here.

I ran the numbers with me having to be on it and there is no way we could use all of my credits during that time period especially not for counter service.

Nope. On the disABILITIES! board people have reported that even for somebody who is 100% tube fed (not a single bite of food by mouth) has to have the dining plan. At fixed price restaurants, even if you can't eat a single bite you're usually charged for the meal (though you may luck out and get a manager who's willing to only charge an entertainment fee or even not charge but that's very much the exception and not the rule). Otherwise, basically everybody else in the room will have to use up the credits for you. There really are no exceptions for this. Lots have tried and this is a very consistent answer.

Have you run the numbers paying OOP for everybody rather than using the dining plan?

 

[EEyorelover22]

That is too bad...WDW will be out loads of $$ for this crew. Eventually it will only be DH and I and he will eat in the room with me and not eat out. A huge loss for Disney with us. We have always spent a ton on food for sit down meals there for 4 adults...my kids are in college.

I did run the numbers where we normally eat with the prices of the meals and where we normally eat...it's 500 less OOP and that's not figuring TIW card that we always purchase and if they are going to charge me for not eating forget it!! I refuse to pay for not eating. There is no place around here that does that and I go in and order hot water with lemon and that's it.

 

[clanmcculloch]

That is too bad...WDW will be out loads of $$ for this crew. Eventually it will only be DH and I and he will eat in the room with me and not eat out. A huge loss for Disney with us. We have always spent a ton on food for sit down meals there for 4 adults...my kids are in college.

I did run the numbers where we normally eat with the prices of the meals and where we normally eat...it's 500 less OOP and that's not figuring TIW card that we always purchase and if they are going to charge me for not eating forget it!! I refuse to pay for not eating. There is no place around here that does that and I go in and order hot water with lemon and that's it.

Please understand that the charge is only at the fixed price restaurants. At restaurants where you order off menus and pay for what you order then there won't be a charge. At the fixed price places, I think they had to do this because there were just too many people saying "oh I don't think I'll be eating for this reason or that reason so please don't charge me" but then they'd sneak food while people weren't looking. Rather than put the burden on servers and the restaurant managers to determine if somebody really did eat or not, they just charge everybody. Like everything else, it's the scammers that make things difficult for those with genuine special needs unfortunately.

I'm trying to figure out how it's legal to have corn in bottled water with no disclosure. Heck, I'm trying to figure out WHY it would be in there. Is it a component of the plastic which leaches into the water? Are there other foods that are found in trace amounts in bottled water? We're thank goodness not corn free but we do have a laundry list of foods we have to avoid. None of us is completely without symptoms but I always just assumed it was the fact that we also have other issues beyond just the foods (autoimmune issues plus environmental allergies).

 

[EEyorelover22]

Corn is not considered to be one of the big 8 allergens so it does not have to be listed on the label and many times it's because of a processing with corn. For example, table salt is processed using corn so I cannot eat regular table salt...I use sea salt.

If you look at the label for bottled water...there are chemicals that are used in the water. For whatever reason, one of them bothers me...no clue which one either. Smart water has more than the cheaper brands too.

Many of the gluten free products I don't touch because of zanthum gum which can be made from different products one of which is corn.

 

[disneyandme]

If an ingredient is less than 2% (i believe) of the total product, it doesn't have to be included on the label. This did change a few years back when the top 8 allergens had to be included even if they fell into the bottom 2%. Corn is not on the top 8 list and therefore doesn't have to be included unless it's above 2% of the total product.
By the way, for the person concerned with envelope, etc, check your paper towels as well- the glue that hold the first and last paper onto the roll is usually done with corn. There is also corn in most toilet paper.

 

[EEyorelover22]

yes...I am careful of the glue on the ends of the rolls of paper towels and toilet paper. I use a certain brand of toilet paper that doesn't seem to bother me. Travel is such funI even order it when at WDW so I have the right brand.

 

[tripplanner2]

Scott makes the tube less roll now. Does that work? I can't believe that can be an issue for you.

 

[sookie]

op - have you gone to a board certified allergist? if you have not, i recommend you do so.

 

[mjbaby]

I'm trying to figure out how it's legal to have corn in bottled water with no disclosure.

A similar problem exists w/ soy, even though it's one of the top allergens. Canned tuna "packed in water" will often list vegetable broth in the ingredients. The vegetable in question is almost always soy. So, it's not "tuna packed in water" but rather "tuna packed in soy" but the word SOY doesn't appear on the label as an ingredient, just in a brief notation that "this product was processed in a facility that may also process soy, nuts, or dairy."

It's really maddening.

 

[SDSorority]

Glimmer of hope....

I found this today- How to make home made lotion. TOTALLY doing this.

And if nothing else, it's a super cute video. http://www.mommypotamus.com/how-to-make-homemade-lotion-with-three/