On TLC has anyone seen the show "Archie the 84 lb Baby"???

[Disney1fan2002]

Oh what a heartbreak! The baby is 2 years old, and he is a giant! he weighs 84 pounds. He has gained a pound a week pretty much since he was an infant. Dr's determined that he still continued to grow at that rate regardless of how much or how little food he consumed. He lives in England, and the Dr's finally were able to indentify his condition as a genetic disorder called MoMo. There are only 3 known cases in the world. No cure, no treatment. Archie's mum found a family in Brazil with a 17 yo old who may have the same disorder. She was the 1st one to be diagnosed. It gave Archie's family hope that he will live at least that long and go to school and even walk.

He is such an adorable baby. The show was filmned in 2004, so he is 3 now. Just watching it, my heart raced with fear for this family. How can a child grow at that rate and live long?

 

[chadfromdallas]

84 pounds on a 2 year old heart and organs

 

[DisneyAddict_M]

My nephew is almost 3 months old and he has gained a pound a week since he's been born (the baby is HUGE!). I can't imagine having that go on for 2 years.

On an unrelated note, my dd's nickname is MoMo. I didn't realize she was named after a genetic disorder.

 

[Beauty]

That is so sad and there is no cure? So so sad. That baby is adorable.

 

[luvmarypoppins]

Yes I saw the show and my heart just ached for this family but the mom had a mission to be as pro active with information as she can and I really admire her courage for that and the love she has for her son. I am in the midst of my own mission for one of the ds now. We are going to the pediatric specialist tues. and they also want me to take ds 17 to a genetic counselor, we have already been to one. When you have a rare syndrome its hard to even diagnose it, no less disseminate the information on it. I am also considering calling our pediatric friend in dallas, he also teaches at childrens medical center so I might run my ds symptoms by him and see what he thinks. I am not holding my breath for tues, since this dr. is new and right out of med school, but she will consult with the lead dr. for ds. I am asking any and every question I can think of. Also rare syndromes are at the low end of the funding list.